News archive
CRB's research scores top quality in evaluation
[2012-01-31] In last year’s research evaluation at Uppsala University, CRB’s research was graded world-leading level. After the evaluation, Mats G. Hansson, director of CRB, initiated an internal process to work with the feedback from the international expert panel that looked at the centre’s research.
According to the international panel, the centre's publications “range among the top-quality in the field” and they were impressed with the creative research environment.
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- We are very happy with the good grade, Mats G. Hansson says but, he continues, we decided to use this opportunity to start a process to develop our research even further. The panel suggested efforts could be developed into larger, focused research themes, and we decided to try and do that. |
The panel also encouraged CRB to become more visible, a suggestion that has started a very interesting and creative process:
-The Ethics Blog is a result of the work we have done since the evaluation. We are also looking at improving our website structure and content. And we have decided to become more visible in the public debate and strengthen our dissemination and international collaboration activities, Mats G. Hansson says.
Evaluation: facts
The evaluation (Quality and Renewal 2011) was carried out by international expert panels. The aim was to identify strong areas and successful groups at Uppsala University, emerging science and promising initiative for future research.
The panel used a five-grade evaluation scale (1-5), with “world-leading level” and “internationally high standard,” as the top two. CRB’s top quality evaluation (grade 1) puts the centre in the highest score.
Research and confidentiality
[2012-01-17] The first in a series of three programmes in a radio series on 'research to be quite about' deals with confidentiality and contains interviews with, among others, Mats G. Hansson and Elisabeth Rynning and on research, confidentiality and legislation.
Read more and listen to the programme (in Swedish) >
Debate on the Swedish Data Inspection Board's decision to stop LifeGene
[2011-12-22] The Swedish Data Inspection Board recently stopped LifeGene, a large biobank at Karolinska Institutet. In the Swedish daily paper Svenska Dagbladet, eight professors describe the decision as "controversial and narrow minded". The write that politicians need to take their responsibility and give the Data Inspection Board better guidance through new legislation.
Follow the debate in Swedish on SvD Brännpunkt >
The Ethics Blog discusses this in English: The Swedish Data Inspection Board stops large biobankAre the Sámi just like everyone else?
[2011-12-21] A paper from Anna Lydia Svalastog looks at the encounter between the Christian missionary religion and the Sámi ethnic religion. The paper is published in the symposium report Uppsala mitt i Sápmi.
Brainstorm features profile of Kathinka Evers
[2011-12-07] The latest issue of Brainstorm features a profile of CRB neuroethics researcher Kathinka Evers.
The Brainstorm Newsletter is published by the Canadian Neuroethics Interest Group (CNIG). You will find more information about the group and Newsletter on the CNIG website >
CRB welcomes Marit Silén
[2011-12-06] Marit Silén, RN, recently defended her dissertation at the School of Health Sciences, Jönköping University. She now joins CRB to do see whether ethical rounds can be used to improve the ethical climate in psychiatry outpatient clinics.
It is time to talk about ethics!
[2011-11-07] The Centre for Research Ethics & Bioethics (CRB) is starting an ethics blog! In the blog, researchers from CRB discuss their own research and comment on debates.
Pär Segerdahl is the editor of the Ethics Blog:
- We need to discuss the ethical questions that arise when we conduct research and provide health care. We also need to reflect on how we talk about these questions. Society is changing and we need to stop talking about ethical issues in old terms, he says.
Pär Segerdahl is a philosopher and his research in the last few years has dealt with the language of apes, animal welfare and gender. But his perspective is not the only one. The content of the blog draws from the whole group of researchers at CRB, coming from different disciplines and perspectives.
- We have ethicists, philosophers and lawyers, but also doctors, nurses, a pharmacist and a psychologist. Some of them will appear as writers in the blog and all of us contribute to the discussion, says Pär Segerdahl.
The initiative came from Mats G. Hansson, director of CRB.
- Many of our research questions actually arise in dialogue with researchers and hospital staff. We have thought about ways to share results and discuss with the people who give us the input
- The blog will be a complement to publications, conferences and our website. I see it as a way to share not only knowledge, but also the debates and discussions we have within the group and with other researchers, Mats G. Hansson says.
The bulk of the blog content deals with the research that is conducted at CRB. Just starting, the focus lies on biobanks and health care. But, Pär Segerdahl and Mats G. Hansson promise more will come. If you are interested in ape language, neurophilosophy, doping and how we should handle human remains, you will not be disappointed!
CRB has decided to do two separate blogs: one in Swedish dealing with the Swedish debate and one in English. According to Mats G. Hansson, this is because the audiences differ slightly. The English version is more geared towards the scientific community.
- We need an English language blog to discuss bioethics research with bioethicists and the doctors, nurses and scientists dealing with the issues at hand. We need to discuss research ethics with the researchers that face problems. These are not national issues that can be discussed in Swedish only, Mats G. Hansson says.
Visit the Ethics Blog at www.ethicsblog.crb.uu.se, or, if you speak Swedish, have a look at etikbloggen: www.etikbloggen.crb.uu.se
Read about it at:Essays on Sami culture
[2011-11-03] Anna Lydia Svalastog runs CRB's international network collaboration on culture, health and bioethics. Together with Eva Forsgren and Jan-Erik Lundström, she has received 100 000 NOK from Fritt Ord to publish the essay collection Visions of Sápmi Cultures: Time, Change, Difference.
More Medical Law at Uppsala University!
[2011-10-31] Medical Law is expanding. The group around professor Elisabeth Rynning at the Department of Law is growing and CRB has recruited two associate professors to our team of biobank researchers, Anna-Sara Lind and Jane Reichel.
This autumn, three LLD students and one research assistant start their work at the Department of Law, thanks to funding from the Söderbergska foundations. On December 9, our first LLD in Medical Law, Ewa Axelsson, will defend her thesis.
Too many restrictions in European biobank research
[2011-10-13] In an article in the September issue of Biopreservation and Biobanking, Mats G. Hansson argues that legislators, ethical review boards and data inspection authorities need to adopt a wider view of integrity in their work with biobanks. They also need to take into consideration the patients' interest in a sound scientific basis for medical diagnosis and treatment.
Read article: Biobanking Within the European Regulatory Framework: Opportunities and Obstacles, Hansson MG, Biopreservation and Biobanking 2011;9(2):165-167.
Time to abandon biobanking consent rules?
[2011-10-05] Today, Joanna Stjernschantz Forsberg was interviewed on Nature News Blog about an article where she and colleagues asks who really benefits from informed consent for biobank research. The article was published in British Medical Journal today.
Read interview with Joanna Forsberg on nature.com >
Who benefits from informed consent for biobank research?
[2011-10-05] Today, an article on BMJ.com asks who really benefits from informed consent for biobank research. According to a group of researchers at the Centre for Research Ethics & Bioethics (CRB), the demand to obtain informed consent, which is meant to protect people, may in fact be harming them.
As individuals, we have a self interest in research that improves healthcare. That, says Joanna Stjernschantz Forsberg, PhD student at the Centre for Research Ethics & Bioethics (CRB) and first author, is based on as many of us as possible participating in research. She and her co-authors argue that requiring informed consent for biobank research is problematic for two reasons: First, it consumes resources that could be used either for more research or for health care. Second, it imposes a risk of selection bias that in turn could invalidate the results. So, the demand to obtain informed consent, which is meant to protect people, may in fact be harming them.
Read article at BMJ.com: Stjernschantz Forsberg J, Hansson MG, Eriksson S. Biobank research: Who benefits from individual consent? BMJ2011;343:d5647.
More:
Genetic counseling reduces risk for anxiety
[2011-10-02] Professor Karin Nordin was interviewed in Uppsala Nya Tidning about a Mordic study of over 4 900 adult men and women, of whom 900 received genetic counseling. The study, she says, shows that such counseling often helps patient's deal with the knowledge of increased risk for cancer.
Interview in UNT (Swedish )>
The study in Acta Oncologica: Health-related quality of life among women with breast cancer – a population-based study
TV4 Nyhetsmorgon on the ethics of exhibiting human remains
[2011-09-27] On September 27, the Swedish TV4 show "Nyhetsmorgon" aired an interview with Malin Masterton, CRB and Geoffrey Metz from the Museum Gustavianum on the ethics of displaying human remains in museums in connection with a panel debate held at the National Historical Museum.
See clip from Nyhetsmorgon > (in Swedish)
Presumed consent and taking organs from the unwilling
[2011-09-21] Joanna Stjernschantz Forsberg, PhD student and Stefan Eriksson, Senior Lecturer, both at CRB have posted a rapid response in BMJ to "A nudge in the right direction for organ donation—but is it enough?" by Hugo Wellesley. In their response they list three reasons why Wellesley's claim that if "an opt-out system is able to achieve donation rates higher than 62 % then it must be taking organs from unwilling donors", is flawed.
Read respose: Presumed consent and taking organs from the unwilling
Culture, Health and Bioethics network grows
[2011-09-09] Håkan Tunón, Senior Research Officer at the Swedish Biodiversity Centre (CBM), Swedish University of Agricultural Scinces, joins the Culture, Health and Bioethics network.
Hot debate about human remains in Swedish museums
[2011-09-05] On september 27, Malin Masterton will participate in the new debate series "Hot History" arranged by the National Historical Museum in Stockholm.
In her PhD thesis, Malin Masterton argues that the dead have moral standing which should be acknowledged, based on the respect for human life. The rest of the panel consists of archaeologist Åsa M Larsson, journalist Niklas Orrenius, director general Katri Linna and head of museum Anders Björklund. Tickets (free) >
Applications welcome for the spring edition of our popular Neuroethics course
[2011-08-19] Our popular web based course in Neuroethics is now open for applications. The course deals with both applied and fundamental neuroethics and includes clinical perspectives. Due to the new fees for foreing students, the application deadline was two months earlier than normal. We have places left and accept applications from eligible students on a first-come-first-serve basis! Neuroethics 7,5 credits >
Four themes in current Swedish Bioethics debate
[2011-07-07] In the latest issue of the Cambridge Quarterly of Healthcare Ethics, Stefan Eriksson and Gert Helgesson summarizes four themes in recent Swedish bioethics debate: end-of-life care, dual-use research, scientific fraud, and biobanking.
Abstract: Four Themes in Recent Swedish Bioethics Debates
Akademiska sjukhuset starts project to reduce the number of cancelled surgeries
[2011-07-05] Cancelled surgeries are not only costly. In a recent study in Clinical Ethics, researchers from CRB, Karolinska Institutet and Karolinska University Hospital have shown that cancelled surgeries have ethical, psychological and medical consequences. In yesterday's edition, Uppsala Nya Tidning (UNT) reported that Akademiska sjukhuset (Uppsala University Hospital) are starting a national project to reduce the number of cancellations .
Read article in UNT (in Swedish): Färre operationer ska ställas in >
Ethical dilemmas when elective surgery is cancelled
[2011-06-22] Planned operations are sometimes cancelled when the health care system is overwhelmed by emergency cases. When this happens, hospitals lose money, wait lists grow and efficiency decreases. At the same time, a group of patients who have prepared mentally for a daunting, dangerous and potentially deadly procedure are informed their surgery is cancelled.
According to a group of researchers at Uppsala University, Karolinska Institutet and the Karolinska University Hospital in Huddinge, this has ethical, psychological, and medical consequences. The results have been published in an article in the latest issue of Clinical Ethics.
Read press release from Uppsala University >
Article: Magnusson H, Felländer-Tsai L, Hansson MG and Ryd L, Cancellations of elective surgery may cause an inferior postoperative course: the ’Invisible hand’ of health care prioritization?, Clinical Ethics 2011;6(1):27-31.
Family ethics in health care and social services
[2011-06-21] CRB received 250 000 SEK from Riksbankens Jubileumsfond for the initiation of our international multi-centre research collaboration on family ethics. The group will hold its second meeting in Uppsala on October 6-7.
Improving the ethical climate in psychiatric outpatient care
[2011-06-20] The Centre for Research Ethics & Bioethics (CRB) has received 1 513 000 SEK from AFA Insurance for a collaborative effort with the Uppsala County Council. The project will investigate whether supervised ethical rounds can improve the ethic al climate in psychiatric outpatient clinics.
This project has been developed as a result of existing collaborations between CRB, the Uppsala County Council and Akademiska Sjukhuset (Uppsala University Hospital).
Press release from AFA Insurance (in Swedish) >
Learn more about the project (in Swedish) >
Older news
2011-06-20
New Faculty assignments for Anna T Höglund
From 1 July 2011, Anna T. Höglund chairs the gender equality committee for the disciplinary domain of medicine and pharmacy. She is also the domain's representative in a new University library consultative group for quality and development.
2011-06-14
HPV immunization: Challenges and opportunities
In the latest issue of Vaccine, PhD student Maria Gottvall et al investigate school nurses' perceptions of HPV immunization, and their task of administering the vaccine in a planned school-based program in Sweden. Read abstract: Challenges and opportunities of a new HPV immunization program - Perceptions among Swedish school nurses
2011-06-01
Mats G. Hansson fellow at Lichtenberg-Kolleg
For the academic year 2011/2012, CRB's director, professor Mats G. Hansson, will be fellow at the Lichtenberg-Kolleg, Georg-August Universität Göttingen. Lichtenberg-Kolleg website >
2011-06-01
Application open: Neuroethics spring 2012
Our popular web based course in Neuroethics is now open for applications. The course deals with both applied and fundamental neuroethics and includes clinical perspectives. Priority will be given to applications received before August 15. Neuroethics 7,5 credits >
2011-05-31
Gene doping and the responsibility of bioethicists
In an article in Sport, Ethics and Philosophy, Ashkan Atry et al argue that bioethicists have a moral and professional obligation to uphold a realistic and up-to-date conception of genetic enhancement.
Read abstract of Gene Doping and the Responsibility of Bioethicists >
2011-05-25
Research ethics for the social sciences
The popular course in research ethics for PhD students in the social sciences is offered again this autumn. Register by September 15 >
2011-05-20
Conference report: Nordic Biobank Research - Obstacles and Opportunities
On May 3-4 180 persons from all over Europe met in Uppsala for two days of interesting discussions on Nordic biobank research. The speakers have now made their presentations available on the conference website.
2011-05-17
Updated: CRB publications on nursing ethics
We have updated our popular report with abstracts of our publications on nursing ethics. The report has links to journals. A pdf version is available for download.
Nursing Ethics Report >
2011-05-13
Screening for intimate partner violence among women
In a report published today by the National Centre for Knowledge on Men's Violence Against Women (NCK), it is suggested that all female patients should be asked whether they have been subjected to violence.
Anna T. Höglund, associate professor and senior lecturer at CRB is the author of two chapters in the report, one on ethical aspects and one on gender perspectives on screening for intimate partner violence among women.
For more information, read the press release from NCK (in Swedish)
Download report (pdf, in Swedish) >
Also read the debate article in Dagens Nyheter (in Swedish): Vården måste fråga kvinnor om de har utsatts för våld
2011-05-09
Support our team in the 2011 editon of Akademiska Rodden!
For the second time, the Centre for Research Ethics & Bioethics enters our team "Etikroddarna" in the University rowing competition "Akademiska rodden". The competition starts at 10:00 AM on Fyrisån between the S:t Olofs- and Haglunds bridges (skolbron).
Read more (in Swedish) >
2011-04-21
Updated: CRB publications on biobank ethics
We have updated our popular report with abstracts of our publications on biboankethics. The report has links to journals. A pdf version is available for download.
Biobank Ethics Report >
2011-04-19
Risks and benefits of re-consent
In a commentary to an article in Science by S.B. Trinidad et. al., Joanna Forsberg, Mats G. Hansson and Stefan Eriksson argue that the authors’ view onparticipants’ interests is too limited. Because all individuals share an interest in optimal healthcare and requiring consent may hamper research, observational research that imposes only diminutive risks can justifiably be carried out without consent. Read "The Risks and Benetifts of Re-Consent" in Science. 2011-03-18
Is medical ethics doing it's job? Conference articles in Journal of Internal Medicine
In June 2010, CRB and Cesagen arranged an international multi-disciplinary conference in Uppsala. Articles from this conference are featured in the April issue of the Journal of Internal Medicine, with an introduction by chairs Mats G. Hansson and Ruth Chadwick.
Read introduction >
More from the JIM April issue >
2011-03-14
CRB enters a team in Akademiska rodden
For the second time, the Centre for Research Ethics & Bioethics enters a team in the University rowing competition "Akademiska rodden" on May 21.
2011-03-01
Hinder för forskning innebär ökade risker för patienterna
Dagens krav på informerat samtycke innan en patient kan inkluderas i en forskningsstudie innebär att särskilt sårbara och utsatta patientgrupper utestängs från den bästa behandlingen, skriver Mats G. Hansson, professor i biomedicinsk etik och föreståndare för Centrum för forsknings- & bioetik i senaste numret av Läkartidningen.
Läs debattartikeln i senaste numret av Läkartidningen >
2011-02-21
European Science Foundation report praises Uppsala University's work to secure research integrity
The European Science Foundation (ESF) has completed a study of how institutions of higher education in different countries proactively approach research ethical issues. Uppsala University is held up as a positive example in the associated report.
Read more >
2011-02-21
New CRB Newsletter
New issue of the CRB newsletter out! Read more about nursing ethics, the upcoming biobank conference and the European Science Foundation report on research integrity.
CRB newsletter >
2011-02-16
New blog about Family Ethics
A new blog on issues relating to ethics and family has been set up. It is run by Marian Verkerk at the University Medical Centre Groningen, one of the partners in a new research collaboration on family ethics. Despite many attempts to broaden its ethical gaze beyond the patient-centred focus of traditional medical ethics, bioethics remains strongly individualistic. The patient is treated as a self-interested individual unencumbered by personal relationships, and the principle of self-determination is dominant. However, many areas of biomedicine call for a more relational perspective. A workshop in Groningen on 28-29 April 2011 will kick-off a joint venture into just that.
Partners in this international research collaboration are the Centre for Research Ethics & Bioethics, the Expertise Center Ethics of Care, Groningen University, the Centre for Biomedical Ethics, National University of Singapore, the Policy, Ethics and Life Sciences Research Centre, Newcastle University and the Department of Philosophy at Michigan State University.
Follow our work at www.family-ethics.com.
2011-02-14
Does Informed Consent Have an Expiry Date?
New article by Gert Helgesson and Stefan Eriksson in Cambridge Quarterly of Healthcare Ethics.
Abstract >
2011-01-24
Övning ger säkerhet i vården: Debattartikel i Sydsvenska Dagbladet
Tusentals personer skadas och dör varje år av misstag och felhandlingar i den svenska sjukvården. Ett sätt att se till att hälso- och sjukvårdslagens intentioner följs är att göra systematisk, avancerad simulatorträning till ett upphandlingskriterium i sjukvården. Det skriver Li Felländer-Tsai, Mats Hansson, Göran Hermerén och Ingemar Ihse i dagens upplaga av Sydsvenska Dagbladet. Läs debattartikeln >
2010
2010-12-28
The Swedish National Centre for Research in Sports funds project on doping
CRB receives continued funding from the Swedish National Centre for Research in Sports for the PhD project "Is Fair Play Compatible with Doping in Sport?"
2010-12-16
Commitment to medical law at Uppsala University
With a co-funded grant of SEK 6.6 million from the Ragnar and Torsten Söderberg Foundations, Uppsala University will be reinforcing its research in medical law, an exciting and expansive research field of great societal significance. Uppsala will thereby clearly be the hub for the subject in Sweden.
Read more >
2010-12-06
Svårt att påverka ungas sexattityd
Med enkla medel kan man kraftigt förbättra ungdomars kunskaper om den sexuellt överförda virusinfektionen HPV som kan orsaka livmoderhalscancer. Men kunskaperna ökar inte viljan att använda kondom eller vaccinera sig skriver dagens Uppsala Nya Tidning (UNT) om Maria Gottvalls studie som nyligen publicerats i International Journal of STD & AIDS.
Läs mer i UNT >
Artikeln i International Journal of STD & AIDS >
2010-12-06
Minimal ethical framework for biobank research
Mats Hansson contributes an article on the need to donwnregulate in the new book Methods in Biobanking, edited by Joakim Dillner. In the article, he argues for a minimal ethical framework for biobank research.
Read abstract >
2010-12-06
Neuroetihics in Spanish
Kathinka Evers’ book on Neuroethics (when matter awakens), has been translated to Spanish. It has been published in Argentina and will soon be available in Spain. Neuroethics in Spanish >
The book was originally published in French in 2009.
Neuroethics in French >
2010-11-30
En fråga om jämställdhet
För några år sedan ville alla vara feminister. I dag har jämställdheten halkat rejält på dagordningen. Inget kan hävda att vi uppnått det vi ville. Så hur gick det egentligen till när en av vår tids stora frågor trillade under mötesbordet? Läs intervju med Anna T. Höglund >
2010-11-24
The moral primacy of the human being: A reply to Parker
Article by Gert Helgesson and Stefan Eriksson in the Journal of Medical Ethics in reply to Parker's article "The moral primacy of the human being".
Read more >
Article in the Journal of Medical Ethics >
2010-11-24
New network members: Culture, health and bioethics
The network on culture, health and bioethics has three new members: Lars Werdelin from the Swedish Museum of Natural History, Kate Senior from the Menzies School of health research in Darwin and Richard Chenhall from the University of Melbourne in Victoria Centre for Health and Society, Melbourne School of Population Health. The aim of this multi-disciplinary network is to sharpen conceptual and theoretical understandings of culture through interdisciplinary discussions.
Network pages >
2010-11-17
Focus on nursing ethics
For many years CRB has developed nursing ethics from different angles. Currently we have three PhD projects running on gender aspects in telenursing, guidelines for Do Not Resuscitate (DNR) orders in oncology care and social and ethical aspects of HPV vaccinations. Find out more about our research >
We have published a report with all our publications in the field on our website, complete with abstracts and links to journals.
Download nursing ethics report >
2010-11-10
CRB attends PEALS workshop
PEALS hosted a two day workshop where the two centres met to discuss collaborations. The workshop is part of a strategic collaboration on ethics research between Uppsala University and Newcastle University.
About the workshop >
2010-11-09
In search of the missing subject: narrative identity and posthumous wronging
Online pre-publication of article by Malin Masterton et al in Studies in History and Philosophy of Science
More >
2010-11-09
Knowledge of human papillomavirus among high school students can be increased by an educational intervention
New article by Maria Gottvall et al in the International Journal of STD and AIDS. More >
2010-10-22
New senior lecturer in research ethics
We are happy to announce that the Faculty of Medicine has appointed a new senior lecturer in research ethics, Stefan Eriksson. He is Associate Professor of Research Ethics and the editor of CODEX, a gateway to various research ethics guidelines. He will continue to develop our courses for PhD students.
2010-10-19
New CRB newsletter
The CRB newsletter has been quiet for some time but now it's back! We are opening our neuroethics course for students at foreign universities. Read more about our work with gender issues and the new network on culture, health and bioetics.
Read newsletter >
Subscribe >
2010-10-15
Mothers and fathers get different advise
Men and women are treated differently when making paediatric health calls to Swedish telenurses. A study in the online version of the Journal of telemedicine and telecare shows that fathers more often are encouraged to take the child to the doctor.
The study has been covered by several Swedish media, including Uppsala Nya Tidning, Sveriges Radio, Dagens Medicin and Vårdförbundets.
Read article in the Journal of Telemedicine and Telecare.
2010-10-15
Gender and Bioethics
In the new book Never Mind the Gap! Gendering Science in Transgressive Encounters by Marta Blomqvist and Ester Ehnsmyr (eds) Anna T. Höglund has written a chapter on gender and bioethics. The book is published by the Centre for Gender Studies at Uppsala University.
More information >
2010-10-05
Web-based course in Neuroethics spring 2011
The course is relevant for a broad range of students, graduates and professionals in for example health care, natural and social sciences, medicine, law, philosophy, psychiatry, and is open to anyone who is interested in the ethics of neuroscience.
Swedish students: Apply before October 15 via studera.nu.
Students at foreign universities are welcome to apply on our website. Application deadline: January 15.
2010-09-27
CRB welcomes Kavot Zillén
Kavot Zillén started her LLD studies in Medical Law in september. Her thesis focuses on which way healthcare professionals' religious beliefs and values have an impact on their obligations to provide good healthcare. Read more >
2010-09-22
Open lecture: Rights of past people. Preservation or reburial of old human remains?
Today, Wednesday September 22, Malin Masterton speaks at the Geographical Society of Uppsala. Welcome to the Ekonomikum Faculty Club (17:00).
2010-09-21
By request: Biobanks as resources for health
In 2003 we published a final report from the project "The use of human biobanks". By request, we are now publishing a pdf version of the report.
Hansson, M.G. & Levin, M. (eds.), 2003: Biobanks as Resources for Health
Recent publications on biobank ethics from CRB are listed with abstracts in in our report on biobank ethics.
2010-09-15
Gene myths in public perceptions
New article by Anna Lydia Svalastog in Public Understanding of Science.
Read abstract on the journal website >
2010-09-02
CRB welcomes new staff!
In September we welcomes Roya Hakimnia, who will look at gender aspects in telenursing, Mona Pettersson, who will look at definitions and guidelines for DNR decision and Tove Godskesen, who will work with participation in oncology trials.
2010-09-01
Updated biobank ethics report
Download pdf >
2010-08-31
Tobias Renberg joins CRB
Tobias Renberg, PhD in Social Pharmacy, joins CRB to investigate how patients perceive participating in research on chronic inflammation.
Read more >
2010-08-24
The role of guidelines in ethical competence-building: Perceptions among research nurses and physicians
New article by Anna T. Höglund, Stefan Eriksson and Gert Helgesson in Clinical Ethics.
Read more on journal website >
2010-08-24
Is patient involvement during hospitalization for acute myocardial infarction associated with post-discharge treatment outcome? An exploratory study
New article by JE Arnetz, U Winblad, AT Höglund, B Lindahl, K Spångberg, Wallentin et al in Health Expectations.
Read more on journal website >
2010-08-24
Mats G. Hansson member of the Vårdal Foundation's new board
Read more >
2010-08-19
New network on Health, Culture and Bioethics
Together with researchers from the universities in Bergen, Oslo, Tromsö, Newcastle, Sussex, Uppsala and Umeå, CRB has formed a multi-disciplinary network on health, culture and bioethics aiming to initate research on health and culture. The network is funded by Riksbankens Jubileumsfond (the Bank of Sweden Tercentenary Foundation).
About the network >
2010-08-11
Hypothetical and factual willingness to participate in biobank research
New article by Linus Johnsson et al in the European Journal of Human Genetics.
Advance online publication >
2010-06-18
Speaking books talk about clinical trials
Researchers behind a project using 'speaking books' to improve knowledge of what it means to be involved in a clinical trial amongst those with poor literacy in Uganda presented their research at the ethics conference in Uppsala in the beginning of the week.
Read more >
2010-06-16
Etiknämnd stoppar forskning
UNT intervjuar Martin Björk om hans bidrag till konferensen om medicinsk etik som pågår just nu. Hans bidrag handlar om att inga svenska sjukhus får delta i en prövning av vilken behandling som fungerar bäst vid livshotande brustet pulsåderbråck i buken. Anledningen är att forskarna vill kringgå kravet på att patienterna ska ge sitt informerade samtycke till att delta.
Läs artikel >
2010-06-15Medicinsk etik - för vems bästa?
Läkemedelsvärlden rapporterar från den pågående konferensen om medicinsk etik, där rådande medicinetiska principer ifrågasätts. Mats Hansson, en av arrangörerna, menar att etikprövningsnämndernas krav på informerat samtycke från patienterna är för slentrianmässiga.
Läs mer på Läkemedelsvärldens webbplats >
2010-06-15Etikmodell ska öka vårdsäkerheten
En modell för att ge vägledning i svåra etiska beslut används med framgång vid Astrid Lindgrens barnsjukhus i Solna.
Läs mer i Uppsala Nya Tidning >
2010-06-14
UNT rapporterar från konferens om medicinsk etik
Med start idag måndag samlas forskare och etikexperter från hela världen i Uppsala för att under tre dagar belysa och debattera den provocerande frågan om medicinsk etik alltid är bra för patienten.
Läs artikel >
2010-06-14
Medicinsk etik diskuteras på konferens
Är medicinsk etik alltid bra för patienten? Den frågan ställer sig cirka 200 forskare från hela världen som just nu deltar i en konferens i Uppsala. Läs mer >
2010-06-08
Maria Gottvall receives young researcher award
Maria Gottvall received first prize, 500 Euro from the European Society for contraception and reproductive health.
2010-06-03
Updated biobank ethics report
An updated version of a report with CRB's publications on biobank ethics is now available, complete with abstracts and links to journals.
Download report (pdf) >
2010-05-28
Re-launched CODEX
The CODEX website was re-launched in March and welcomes you to an updated website with new design and news service. CODEX collects the ethics codes and laws that regulate and place ethical demands on the research process and adds value by providing information about the codes and guidelines. Read more >
2010-05-26
Etikregler diskriminerar dödssjuka
Kärlkirurger vid Akademiska sjukhuset, Karolinska, Sahlgrenska och Södersjukhuset har nekats tillstånd från Etikprövningsnämnden att utföra en jämförande studie på patienter med brustet pulsåderbråck utan deras uttryckliga medgivande. Nuvarande praxis diskriminerar de svårast sjuka, anser en av talarna på konferensen "Is Medical Ethics Relly in the Best Interest of the Patient" Martin Björck, överläkare på Akademiska sjukhuset och professor i kärlkirurgi vid Uppsala universitet.
Läs pressmeddelande från Akademiska sjukhuset >
Läs abstract av Martin Björcks presentation >
2010-05-25
Även döda människor har rättigheter
Intervju med Malin Masterton i SR Sameradions nyhetssändning idag klockan 07:30.
Läs mer och lyssna på SR Sameradions webbplats >
2010-05-20
Vem har rätt till Kristinas gener?
I dagens Vetandets värld, Sveriges Radio P1 intervjuas Malin Masterton om sin avhandling. Drottning Kristina är en av våra mest omtalade och omskrivna kungligheter. En fråga som diskuterats flitigt är hur det egentligen stod till med hennes könstillhörighet. Med modern DNA-teknik har vi nya möjligheter att hitta svaret. Frågan är: har vi rätt att rota i drottning Kristinas gener? Programmet sänds i repris ikväll klockan 19:38.
Lyssna på Sveriges Radios hemsida >
Malin Mastertons avhandling om mänskliga kvarlevor >
2010-05-18
PhD student in bioethics
We are looking for a PhD student to work in the project "Factors associated with participation in phase 1 and phase 3 oncology trials". Application deadline: June 18.
Project description >
2010-05-17
Research ethics for the social sciences
The research ethics course for PhD students in the social sciences is offered for the second time autumn term 2010. The course is in Swedish.
More information (Swedish, pdf) >
2010-05-12
Duties to human remains in universities and museums
On May 29, Malin Masterton will defend her doctoral thesis on the moral status of past people and protection for historical persons. The thesis also discusses our duties towards the dead.
Read more >
2010-05-10
Vetenskapsradion: Patientgrupper drabbas av strikta etiska regler
Intervju med Mats G. Hansson. Läs mer och lyssna på
Sveriges Radios hemsida >
2010-05-10
Ethical review not always in the patient’s best interest
Ethical review boards in practice deny patients access to the best medical knowledge by applying a view of autonomy that is too strict according to Mats G. Hansson, professor of biomedical ethics, in a recent article in the British Medical Journal.
Read more >
2010-05-10
Press invitation, conference: Is Medical Ethics Really in the Best Interest of the Patient?
When is it right to terminate treatments? Is it alright to conduct medical research on children? Who should receive treatment when resources are scarce? These are ethical questions that are at the heart of cases discussed in the media recently. On June 14-16, researchers from across the world will gather in Uppsala to discuss medical ethics from diverse perspectives.
Read more >
2010-05-06
Need for a wider view of autonomy in epidemiological research
New article by Mats G. Hansson in a coming issue of the British Medical Journal.
Read article on the BMJ website >
2010-05-04
CRB enters a team in "Akademiska rodden"
On Saturday 8 May the team "Etikroddarna" competes against other teacher and student teams in a University rowing competition. på fyrisån. Come support your favourite team!
Reas more (in Swedish) >
2010-04-19
Workshop on expanding the frontiers of neuroethics
Kathinka Evers will speak at a workshop on neuroethics in Buenos Aires November 22-26 2010.
More information and registration >
2010-04-19Etiska frågor i framtidens lantbruk
Föreläsning av Per Sandin, SLU.
Se och lyssna >
2010-04-06
Patient participation during hospitalization for myocardial infarction: perceptions among patients and personnel
New article by Anna T. Höglund et al in a coming issue of the Scandinavian Journal of Caring Sciences. Read more >
2010-04-06
Ulysses contracts for the doctor and for the patient
New article by Mats G. Hansson and Matti Hakama in a coming issue of Contemporary Clinical Trials. Read more >
2010-03-29
New ethical guidelines needed for dementia research
How do we handle the ethical dilemmas of research on adults who can’t give their informed consent? In a recent article in the journal Bioethics, ethicist Stefan Eriksson proposes a new approach to the dilemma of including dementia patients and others with limited decision making capabilities in research.
Read more>
2010-03-29Vetenskapsradion Forum: Kriget mot terrorismen ur ett genusperspektiv
I dagens Vetenskapsradion Forum intervjuas Anna T. Höglund. Repris tisdag 30 mars kl 19:03.
Läs mer och lyssna >
2010-03-12
Kriget mot terrorismen ur ett genusperspektiv
I tider av hot och osäkerhet tenderar människor att söka sig till det som är bekant, tryggt och igenkännbart. Traditionella uppfattningar om genus kan vara en viktig del i en sådan reaktion. I en ny bok visar Anna T. Höglund att detta var precis vad som hände i USA efter terrorattentaten den 11 september 2001.
Läs mer >
2010-03-02
On the need for improved protections of incapacitated and non-benefiting research subjects
New article by Stefan Eriksson in the coming issue of Bioethics.
Read abstract >
2010-03-02
You can use my name: You don't have to steal my story - A critique of anonymity in indigenous studies
New article by Anna Lydia Svalastog and Stefan Eriksson in the coming issue of Developing World Bioethics
Read abstract >
2010-02-15
Stefan Eriksson new Associate Professor of Research Ethics
We congratulate our senior researcher Stefan Eriksson to his new position as associate professor in research ethics at the Faculty of medicine.
Read more >
2010-02-12
Genusmedveten vård på telefon - Intervju med Anna T Höglund på Genusflödet
Anna T Höglund arbetar i en projektgrupp som nyligen har beviljats medel från Vetenskapsrådet för att undersöka och utveckla svenska telefonsjuksköterskors genuskompetens.
Läs mer på genusflödets webbplats >
2010-02-11
New book on Gender and the War on Terrorism by Anna T. Höglund
Read more >
2010-01-27
Etiska koder leder inte alltid rätt
Det har blivit allt vanligare att forskare inom alla fält använder sig av etiska koder för att inte hamna fel. Nu visar en studie från CRB att etiska koder och riktlinjer inom medicinsk verksamhet inte alltid leder dit man tänkt sig, det vill säga vägleder sjuksköterskor och läkare moraliskt. Studien har finansierats av Riksbankens Jubileumsfond.
Läs mer på RJs hemsida >
2010-01-22
Taking the patient’s side: the ethics of pharmacogenetics
New article by Mats G. Hansson in Personalized Medicine 2010:7(1): 75-85
2010-01-21
International collaboration to meet ethical challenges
How do we meet the ethical challenges posed by stem cell research and other developments in the life sciences? How do we manage an ageing society? Uppsala University and Newcastle University have formed a strategic collaboration to meet these and other ethical challenges.
Read more >
2010-01-20
New handbook for Security Studies discusses Biosecurity
Frida Kuhlau is one of the authors of a chapter on Biosecurity in a new handbook for security studies by Routledge.
About the book >
Selected previous news
2009-12-15
CRB receives funding for improving biobank research infrastructure
CRB are part of BBMRI.SE that recently received funding from the Swedish Research Council. BBMRI.SE is partner to the European network BBMRI.EU (Biobanking and Biomolecular Resources Research Infrastructure).
About BBMRI.SE >
2009-11-11
CRB researchers receives funding from the Swedish Cancer Society
Anna T. Höglund received funding from the Swedish Cancer Society for developing clearer definitions and clinical guidelines for Do Not Resuscitate (DNR) orders in oncology care.
Mats G. Hansson received funding for research on factors associated with participation in phase 1 and phase 3 oncology trials.
2009-10-13
Mats G. Hansson elected Fellow of the Hastings Center
The CRB director Mats G. Hansson has been elected fellow of the Hastings Center.
The Hastings Center website >
2008-01-20
Press invitation: New diagnostics – Can we afford to ignore?
Press seminar arranged by Uppsala BIO (www.uppsalabio.com), Uppsala University (www.uu.se) and the Swedish University of Agricultural Sciences, January 24th, 2008, 9 a.m. – Noon
Invitation >
2008-01-10
Bioethics and research ethics in focus
Uppsala University pools its resources and focuses on research ethics. On January 1, Uppsala University established a new Interfaculty Centre for Research Ethics & Bioethics. “Ethical questions are raised in several fields and the fact that we now have close ties with all faculties at Uppsala University leads to new exciting collaborations”, says Mats G. Hansson, director at the new Centre
Press release >
2007-09-14
Long-awaited international ethical guidelines for biobank researchers
Many sets of guidelines and regulations, and great differences among countries. This is what medical researchers encounter if they want to use previously collected samples from biobanks in their research. For one thing, this makes it extremely complicated to carry out major international studies. In the latest issue of Nature Biotechnology, Swedish ethics researchers at the Centre for Bioethics (CBE), together with leading biobank researchers, put forward a pioneering solution: a set of practical ethical guidelines for biobank research.
Press release from Uppsala University >
Press release from Karolinska Institutet >
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