Centre for Research Ethics & Bioethics
Newsletter May 2009
This is a newsletter from the Centre for Research Ethics & Bioethics (CRB) at Uppsala University published May 28, 2009
Contents:
- End of Life Decisions: Ethics in clinical practice, research and policy
- Save the Date: Is Medical Ethics Really in the Best Interest of the Patient?
- Re-launched CODEX – Your guide to ethics guidelines
- Research Ethics for the Social Sciences: New course for PhD students
- Biobank Ethics Publications from CRB
- Recent Publications
- Centre for Research Ethics & Bioethics
End of Life Decisions:
Ethics in clinical practice, research and policy
XI Annual Swedish Symposium on Biomedicine, Ethics and Society
June 8-9 2009.
Clinical ethics is a multi-disciplinary and multi-professional field. We invite scholars and professionals to participate in a research symposium that focuses on end of life decisions such as shifting focus from curative to palliative treatment, how clinical research at the end of life can be improved and the role policy documents play in clinical practice.
Keynote addresses:
The Good Death Revisited
Simon Woods, Policy, Ethics and Life Sciences Research Centre (PEALS), Newcastle University. Abstract >
End-Of-Life Care of Children and Adolescents with Cancer
Liisa Hovi, Hospital for Children and Adolescents, University of Helsinki. Abstract >
Medical Research at the Border of Life and Death - Risk, value and societal interest
Søren Holm, Cardiff School of Law and University of Oslo. Abstract >
Policies and Guidelines - What are their status, how are they developed and how are they implemented?
Nina Rehnqvist, SBU – The Swedish Council on Technology Assessment in Health Care. Abstract >
More information and registration >
Is Medical Ethics Really in the Best Interest of the Patient? Save the date: 14-16 June 2010
Medical ethics is practised by doctors and nurses on an everyday basis. It is also a rapidly expanding academic discipline and ethical review boards for medical research play a key role in the life sciences. The primary concern is, or at least should be, the best interest of current and future patients. But is this really so?
Tom Beauchamp, Anne Cambon-Thomsen, Marcel Verweij, Don Chalmers, Simon Whitney and Søren Holm.
Sign up for more information via e-mail >
Re-launched CODEX – Your guide to ethics guidelines
The CODEX website was re-launched in March and welcomes you to an updated website with new design and news service. CODEX collects the ethics codes and laws that regulate and place ethical demands on the research process and adds value by providing information about the codes and guidelines.
The website is run by the Swedish Research Council (Vetenskapsrådet) in collaboration with the Centre for Research Ethics & Bioethics. Welcome to www.codex.vr.se
Research Ethics for the Social Sciences – New course for PhD students
Starting this autumn CRB offers a 4 credit course for PhD students in the social sciences. The course provides knowledge of the laws and guidelines that regulate research and offers students an opportunity to reflect on ethical dilemmas in their own research.
PhD students at the faculties of medicine, pharmacy, science and technology at Uppsala Univeristy already have research ethics as a compulsory part of the PhD student curriculum.
Biobank Ethics Publications from CRB
For many years, researchers at CRB have provided constructive advice on how to deal with ethical aspects of research using human tissue material. We have collaborated with biomedical scientists and published our findings in peer reviewed journals. As a summary of this research we have compiled a list of publications with abstracts. This report was updated May 2009.
Recent Publications
Changing perspectives in biobank research – from individual rights to concerns about public health regarding the return of results
Stjernschantz Forsberg J, Hansson MG, Eriksson S., European Journal of Human GeneticsEuropean Journal of Human Genetics advance online publication 27 May 2009. Abstract and link to full text >
Ethical Issues in Cancer Register Follow-up of Hormone Treatment in Adolescence
Hultman, CM, Lindgren, A-C, Hansson, MG, Carlstedt-Duke, J, Ritzen, M, Persson, I, Kieler, H, Public Health Ethics 2009; 2(1):30-36. Abstract and link to full text >
Knowledge of human papillomavirus and attitudes to vaccination among Swedish high school students
Höglund AT, Tydén T, Hannerfors AK, Larsson M, International Journal of STD & AIDS. 2009; 20(2):102-7.
Abstract and link to full text >
Neuroéthique. Quand la matière s'éveille
Evers, K., Éditions Odile Jacob, Paris, 2009. (Neuroethics. When matter awakens).
Abstract in French >
Centre for Research Ethics & Bioethics
Research Ethics and Bioethics has become increasingly important for Uppsala University. As a result, an interfaculty Centre for Research Ethics and Bioethics was established on January 1 2008. The centre is placed at the Faculty of Medicine and administratively associated to the Department of Public Health and Caring Sciences. Medical Law is associated to the Centre through collaboration with the Department of Law at Uppsala University.
CRB is an associate member of the European Association of Centres of Medical Ethics (EACME). We collaborate with Karolinska Institutet and the Swedish University of Agricultural Sciences within the framework of a Network for Research Ethics & Bioethics (NRB). We also collaborate with the Swedish Research Council (Vetenskapsrådet) on CODEX, a gateway to codes and guidelines for research.
Centre for Research Ethics & Bioethics
Uppsala Science Park
SE-751 85 Uppsala
Phone +46 18 611 22 96
Fax +46 18 50 64 04
E-mail: crb@crb.uu.se
To subscribe, please send an e-mail to crb@crb.uu.se
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