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This is a newsletter from the Centre for Research Ethics & Bioethics (CRB) at Uppsala University. To join or leave our lists, please click here, or send an e-mail to crb@crb.uu.se. |
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Newsletter February 2011
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European Science Foundation report praises Uppsala University's work to secure research integrityThe European Science Foundation (ESF) has completed a study of how institutions of higher education in different countries proactively approach research ethical issues. Uppsala University is held up as a positive example in the associated report.
The ESF study found that interest in such issues varies from country to country. Two institutions of higher education – Uppsala University and Sheffield Hallam University in the UK – are singled out in the report. Uppsala University is praised for its thorough efforts at preventing research misconduct and promoting sound research practices. Special mention is made of the University’s Centre for Research Ethics & Bioethics.
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Conference: Nordic Biobank Research - Obstacles and OpportunitiesBiobanking raises ethical questions on how to address integrity, privacy, access, legislation and protection from information excess in light of the possibilities to understand and treat diseases using new technology.
The Nordic countries have a long history of utilising biological samples, patient records and health registers to study disease in the population and develop new forms of intervention, treatments and medications. We now invite you to a two day conference to discuss these issues.
When: 3-4 May 2011, Uppsala Konsert & Kongress Registration deadline: 13 April
The conference is arranged by the Nordic Committee on Bioethics in collaboration with the Centre for Research Ethics & Bioethics (CRB) at Uppsala University and BioBanking and Molecular Resource Infrastructure of Sweden (BBMRI.se). The conference is free of charge.
More information and registration >
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Focus on nursing ethicsFor many years CRB has developed nursing ethics from different angles. Currently we have three PhD projects running on gender aspects in telenursing, guidelines for Do Not Resuscitate (DNR) orders in oncology care and social and ethical aspects of HPV vaccinations. Find out more about our research >
We have published a report with all our publications in the field on our website, complete with abstracts and links to journals. Download nursing ethics report (pdf) >
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New blog about family ethicsA new blog on issues relating to ethics and family has been set up. It is run by Marian Verkerk at the University Medical Centre Groningen, one of the partners in a new research collaboration on family ethics. Despite many attempts to broaden its ethical gaze beyond the patient-centred focus of traditional medical ethics, bioethics remains strongly individualistic. The patient is treated as a self-interested individual unencumbered by personal relationships, and the principle of self-determination is dominant. However, many areas of biomedicine call for a more relational perspective. A workshop in Groningen on 28-29 April 2011 will kick-off a joint venture into just that.
Partners in this international research collaboration are the Centre for Research Ethics & Bioethics, the Expertise Center Ethics of Care, Groningen University, the Centre for Biomedical Ethics, National University of Singapore, the Policy, Ethics and Life Sciences Research Centre, Newcastle University and the Department of Philosophy at Michigan State University.
Follow our work at www.family-ethics.com.
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Recent publications from CRBDoes Informed
Consent Have an Expiry Date? A Critical Reappraisal of Informed Consent as a
Process
The need to down regulate. A minimal ethical framework for biobank research Hansson, M.G., in: Dillner, J. (ed), Methods in Biobanking, Methods in Molecular Biology Book Series No 675, The Humana press, Springer 2011.
Neuroética. Cuando la materia se despierta Evers, K, Katz editores, Buenos Aires & Madrid, 2010
The moral primacy of the human being: A reply to Parker Helgesson, G, Eriksson S, Journal of Medical Ethics, 37 (2011), pp. 56-57. (Also read previous article by Helgesson G & Eriksson S, Against the principle that the individual shall have priority over science, Journal of Medical Ethics 34 (2008), pp. 54-56)
In search of the missing subject: narrative identity and posthumous wronging Masterton, M, Hansson MG & Höglund AT, Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences, doi:10.1016/j.shpsc.2010.10.010, online pre-publication
Gottvall M, Tydén T, Höglund AT, Larsson M, International Journal of STD & AIDS 2010; 21:558-562.
Paediatric health calls to Swedish telenurses: a descriptive study of content and outcome Kaminsky E, Carlsson M, Höglund AT, and Holmström I, J Telemed Telecare doi:10.1258/jtt.2010.100110, online pre-publication |
Centre for Research Ethics & Bioethics
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