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Vanja Pupovac: Visiting scholar 2016
Vanja Pupovac is a post-doctoral researcher at the Department of Social Sciences and Medical Humanities, School of Medicine University of Rijeka, Croatia. She has a degree in philosophy and informatics from the University of Rijeka and a PhD in research ethics on the frequency and characteristics of plagiarism and scientific misconduct in the Croatian and international scientific community from the School of Medicine at the University of Rijeka. Vanja Pupovac is interested in research integrity and scientific methodology. Most of her research is empirical using quantitative methods from social sciences and biomedical disciplines.She spent one week with CRB in December 2016 invited by Stefan Eriksson to exchange expertise in the field of research ethics, more precisely to discuss about prevalence and characteristics of research misconduct, review formal and informal practices for ensuring scientific integrity, and compare systems for identification and regulation of research misconduct in Croatian and Sweden. Her stay was funded by an ERASMUS staff mobility programme.
Visiting scholar 2016: Cornelius Ewuoso
Cornelius Ewuoso, M.Sc., M.A, is a PhD student in Bioethics at the Centre for Applied Ethics, Department of Philosophy, Stellenbosch University, Matieland, South Africa. He was a visiting scholar at the Centre for Research Ethics & Bioethics (CRB) for three weeks in November and December 2016 as an extension of his stay as visiting scholar at the Centre for Biomedical Ethics and Law, Katholieke Universitet, Leuven.
Cornelius Ewuoso was a recipient of the Santander/Ethics and Society scholarship for Theories and Application from Fordham University; an international visiting fellow at the institute for Medical Ethics and History of Medicine, Ruhr-Universitait, Bochum; and a recipient of the Master of Science in Bioethics scholarship award of the West African Bioethics Training Programs. Cornelius has background in philosophy, theology and bioethics. His PhD research is focused on enhancing information management skills of health care professionals within clinical context. His other research interests include: ethical issues around the management of unsolicited findings in clinical encounters, ethics of community-engaged research, End-of-life issues and communitarian Ethics.
Visting scholar 2016: Manuel Schaper
Manuel Schaper is a researcher at the Department for Medical Ethics and History of Medicine at the University Medical Center Göttingen (Germany). He has a background in cultural anthropology, gender studies and social and economic psychology. He is part of the international research collaboration Mind the Risk (MTR), dealing with ethical, social and psychological implications of genetic risk information. Manuel Schaper’s PhD project looks at the ethical aspects of communication practices of web-based direct-to-consumer genetic testing services, drawing from previous experience in qualitative research and visual methodology.
During the autumn 2016, Manuel Schaper spent four weeks at CRB. He worked together with Heidi C. Howard on the implementation of a cross-national qualitative study of lay perspectives on new possibilities in genetic testing in Sweden. This work is deepening the cooperation within the MTR project. Manuel Schaper’s four week visit to CRB was funded by the German Academic Exchange Service’s “Mobility within the U4 Network” program.
Visting scholar 2016: Layla Afkhami
Layla Afkhami spent six weeks at CRB (August - September 2016) investigating the ethical, legal and social implications (ELSI) of next-generation sequencing and newborn screening. She is currently training to be a Clinical Scientist (Genetics) in London while also studying for a fully-funded MSc in Clinical Genetics at the University of Nottingham. Part of her MSc, involves developing and facilitating the implementation of a next-generation sequencing panel for patients with suspected lymphodoema, researching each gene associated with this condition and improving the coverage of the panel through repeated run analysis. The plan is to have this panel up and running by the end of 2016. Her clinical work primarily involves analysing genetic results, interpreting DNA changes and using various analysis platforms to determine clinical diagnoses.
Visting scholar 2016: Alexandra Soulier
Alexandra Soulier is part of a French bioethics research group, Inserm, where she has conducted research on genome sequencing, biobanking, epigenetics and public health. She is currently doing a PhD at the University Paul Sabatier in France. Her thesis Vital Digital: Modus operandi of European research infrastructures in the postgenomic era will be presented in the autumn of 2016. In her thesis, Alexandra Soulier explores how the political and technological dimensions of European research infrastructures have normative consequences in the sense that they require ethical frames of research to be revised and research politics to be rethought in a harmonizing fashion. Her goal is to set out a philosophical agenda for examining the norms and politics embedded within systems of production and circulation of scientific data, which seem immaterial and transient, and yet affect society in profound ways.
Alexandra Soulier’s research draws from political philosophy and science studies and uses ethnographic and historical methods as well as discourse analysis to address key issues in the development of biomedical research. Alexandra Soulier has also lead research in relation to public understanding and engagement in science and medicine. Her work uses qualitative methods within the interpretivist tradition that contribute to social science in addition to being directly relevant to practitioners and policy makers.
Alexandra Soulier visit to CRB in April 2016 was funded by a CHIP ME short-Term Scientific Mission.