This is a list of our most recent publications.
Legal issues in governing genetic biobanks: the Italian framework as a case study for the implications for citizen's health through public-private initiatives..Journal of Community Genetics Epub ahead of print. DOI
- Debates About Neuroethics: Perspectives on Its Development, Focus, and Future, . 89-107 DOI (2017).
- Vaccine, . 35(21): 2823-2830 DOI (2017).
- Personalized Medicine, . 14(3): 249-257 DOI Download fulltext (2017).
- Förvaltningsrättslig Tidskrift, 169-192 Download fulltext (2017).
Oversight of EU medical data transfers: An administrative law perspective on cross-border biomedical research.Health and Technology, 1-12 DOI Download fulltext
- Journal of Economic Behavior and Organization, 135: 39-52 DOI (2017).
Can Neuroscience contribute to practical ethics?: A critical review and discussion of the methodological and translational challenges of the neuroscience of ethics.Bioethics, 2017(31): 328-337 DOI
- International Journal of Feminist Approaches to Bioethics, . 10(1): 248-251 (2017).
- AJOB Neuroscience, 8(1): W4-W5 DOI (2017).
- Förvaltningsrättslig Tidskrift, 67-79 (2017).
Giving Patients’ Preferences a Voice in Medical Treatment Life Cycle: The PREFER Public–Private Project.Patient, . 10(3): 263-266 DOI
- Medicine, Health care and Philosophy, 20(2): 163-170 DOI (2017).
- BMC Medical Ethics, 18 DOI Download fulltext (2017).
- Scandinavian Journal of Public Health, 45(1): 25-32 DOI Download fulltext (2017).
Neuroscience of Childhood Poverty: Evidence of Impacts and Mechanisms as Vehicles of Dialog With Ethics.Frontiers in Psychology, 8(61)
- Nurse Education Today, 48: 134-139 DOI (2017).
- Public Understanding of Science, . 26(2): 235-250 DOI Download fulltext (2017).
Biobank and registry ethics & law
For many years, researchers at CRB have provided constructive advise on how to deal with ethical and legal aspects of research using human tissue material and personal data. We have collaborated with biomedical scientists and published our findings in peer reviewed journals. As a summary of this research we have compiled a list of publications with abstracts. We have grouped them thematically to help you find the ones you might be interested in reading. Our publications deal with ethical frameworks and policy, regulatory aspects of biobank and registry research, informed consent, ethical review, integrity concerns, trust, genetic testing, indicental findings, commercialization, public and patient perceptions, rare diseases, children & biobanks & genetics, and biobank studies.
Nursing Ethics & Ethics of Care
Nursing ethics is concerned with the moral dimensions of nursing practice while the ethics of care is a normative ethical theory. For many years CRB has developed these fields from different angles. We have used qualitative studies to describe and explore the kinds of ethical dilemmas nurses encounter in their day-to-day work and how they solve them. Other studies have investigated the role of ethical guidelines in the building of ethical competence in nursing practice and in priority setting. In this report, we provide a summary of our research.
Neuroethics & Philosophy of the Brain
The CRB neuroethics research team is an international, multi-disciplinary group. Our backgrounds allow us to approach these issues from theoretical, philosophical, social, bio-political and clinical perspectives. We collaborate closely with neuroscientists to understand the ethical and philosophical questions that neuroscience brings. In this report, we provide a summary of our research. The report was updated in November 2016.