Research : Biobank Ethics : Genetic Information : PhD project
Ethical aspects of biobank research – Individual rights vs. the public good?
Format
Funding
This project has received funding from Autocure, BBMRI.se, CCPRB and Pfizer
Time table
2007-
Aims
In this project bioethical methods and theories are used to analyze the tenability and implications of viewing biobank based medical research from a public health perspective. Consequences of adopting such a view on biobank research are investigated, for instance regarding the issues of obtaining informed consent and returning individual results to participants. Putative rights and duties of individuals and society in the context of healthcare and medical research are explored. This research project is undertaken from an applied ethics perspective, and its focus is therefore on the practical consequences and policy implications of different philosophical positions, rather than on their theoretical underpinnings.
Publications
Stjernschantz Forsberg J, Hansson MG, Eriksson S, The Risks and Benefits of Re-Consent, Science, 2011;332:306.
Forsberg JS, Eriksson S, Hansson MG, Changing defaults in biobank research could save lives too, European Journal of Epidemiology, 2010;25(2):65-8.
Stjernschantz Forsberg J, Hansson MG, Eriksson S, Changing perspectives in biobank research – from individual rights to concerns about public health regarding the return of results, European Journal of Human Genetics, 2009:17:1544-1549.
Contact and more information
- Joanna Stjernschantz Forsberg, MD, PhD Student
Supervisors
- Mats G. Hansson, Professor of biomedical ethics, CRB
- Stefan Eriksson, Associate professor of research ethics, CRB
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