Ethical aspects of longitudinal studies involving children
Format
Research project
Time table
Publications forthcoming
Funding
The Swedish Research Council (Vetenskapsrådet) and Swedish Council for Working Life and Social Research (FAS).
Aims
The ABIS study (All Babies in South-East Sweden) is a longitudinal predictive screening for type 1 diabetes (T1DM) that has
followed a large birth cohort since 1997 (n=17, 055). ABIS I followed children 0-7 years of age. Clinical data have been collected through diary, extensive questionnaires (at birth, 1 year, 2,5-3 years, and 5-6 years), and biological samples (cord-and capillary blood, hair, stool, saliva, urine). ABIS II will follow the same children at ages 9-14. Tied to the ABIS biomedical research is a multi-disciplinary project aiming to analyse and suggest criteria for information, consent, and disclosure issues in Swedish longitudinal medical research involving children. This is a co-operation between the ABIS group and the Centre for Bioethics. A number of publications stemming from this co-operation are under production.
The project is a collaboration between researchers at the Centre for Research Ethics & Bioethics and the ABIS group at the Department of Molecular and Clinical Medicine, Linköping University.
- More information about the ABIS study >
- ABIS related research on children's assent and participation in a longitudinal cohort study of child health
More information
- Stefan Eriksson, Associate Professor of Research Ethics
- Mats G. Hansson, Professor of Biomedical Ethics
Collaborators
Professor Mats G. Hansson (Uppsala University)
Professor Johnny Ludvigsson (Linköping University)
Gert Helgesson, PhD (Karolinska Institutet)
Stefan Eriksson, Associate Professor(Uppsala University)
Ulrika Gustafsson Stolt, PhD (Linköping University).
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