Controlling chronic inflammatory diseases with combined efforts (COMBINE)
Format
Research project (Work Package 13 in the COMBINE Consortium).
Funding
COMBINE Consortium (Vinnova, Vårdalstiftelsen, Reumatikerförbundet, Invest in Sweden Agency, KK-stiftelsen, Stiftelsen för strategisk forskning)
Background
There are both national and international studies on public perceptions of medial research: How we perceive genetic research, and how scientists use human biobanks and animal models. There is, however, a lack of knowledge about how patients, or end users, of this knowledge, perceive these issues. From an ethical point of view, this is a major concern since it is these groups, the patients, that most directly suffer or benefit from the results of the research the scientists conduct. Patients are actively participating by donating blood, medical information and by testing medicines, and patients are in the end also the most important: the end users.
Aim
To investigate how patients perceive research on chronic inflammation.
COMBINE
The COMBINE consortium aims to create a network of scientists, clinicians, patients and industrial representatives, which together can use unique Swedish advantages to improve understanding of why inflammatory diseases develop, what are the most essential goals for patients to achieve, and to develop and implement novel prevention and therapy for these diseases. The operational strategy is to create infrastructure and programs where systematic capture of data takes place in routine healthcare and is utilised in research, and where the same infrastructure is used to feed information from research back to healthcare.
The consortium consists of clinicians/scientists, biomedical scientists, epidemiologists, care scientists, bioethicists, members of patient organisation, and representatives from industry. The steering committee has been chosen to both represent all medical faculties/universities in Sweden and to have a track record of building functional national research networks. We suggest the formation of a new structure for a public private partnership between academia, care and industry in translational research, clinical trials and longitudinal patient studies where unique resources in Swedish health care and epidemiology are utilised. We also suggest a new structure for international collaboration utilising the same Swedish resources where investments from international partners can supplement investments from the Foundations and other national agencies.
The aims will be approached within 13 work packages (WP), each with distinct goals and budgets. The Centre for Research Ethics & Bioethics participate with Work Package 13: Ethics.
Project Group (Work Package 13) at the Centre for Research Ethics & Bioethics
- Mats G. Hansson, Professor of Biomedical Ethics
- Sofia Kälvemark, PhD, Researcher
- Malin Masterton, PhD, Researcher
- Tobias Renberg, PhD, Researcher
More information about COMBINE
Lars Klareskog (coordinator), Professor, Rheumatology Unit, Karolinska Institutet.
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