Research : Clinical Ethics : PhD project
At the intersection of curative and palliative treatment in paediatric oncology
Format
Funding
The Swedish Childhood Cancer Foundation (Barncancerfonden)
Time table
2009-
Aims
Today there is no clear picture about how children in terminal care and their families perceive the meaning and importance of palliative care in the Nordic countries. How patients and their families see the distinction between curative and palliative treatment has primarily been a focus for retrospective interviews with parents and there is a lack of knowledge in particular regarding the clinical and moral significance of hope.
The degree of activity for patients in the terminal phase of care varies, but there is only anecdotal evidence available. We need to understand how different paediatric oncology departments manage the intersection of curative and palliative treatment and how children and their relatives perceive the different activities offered to them.
In this project, we will
1. examine to what extent there is a distinctive focus on palliative treatment in departments of paediatric oncology in Denmark, Finland, Norway and Sweden.
2. examine how children in terminal care and their families perceive the meaning and importance of palliative care
3. give an account of the clinical and moral significance of hope in paediatric oncology
The project is designed with an integration of three different methodologies. It has a descriptive, a qualitative and a philosophical/theological component.
Contact and more information
- Li Jalmsell, MD, PhD Student
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Supervisors:
Mats G. Hansson, Professor of biomedical ethics, CRB
Britt-Marie Frost, Department of Paediatric Oncology, Uppsala University Hospital (Akademiska sjukhuset)
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