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Centre for Research Ethics & Bioethics (CRB)


RESEARCH AT CRB


Evaluation of ethical issues have to be made in a systematic and informed manner, based on sound research and scholarship.

The researchers at the Centre for Research Ethics & Bioethics at Uppsala University have been active for several years investigating ethical, philosophical and legal aspects of biomedical research and clinical practice within the format of multi-disciplinary research projects.

We publish the results of our research in international peer-reviewed scientific journals and in books. Roughly our research covers three main areas: research ethics, clinical ethics and bioethics

Our research topics originate in close collaboration with clinicians, and through ongoing communication and international collaboration with highly qualified researchers and scientists.



International collaborations

Mind the Risk - A multidisciplinary research collaboration on how to manage and handle genetic risk information, generated by information technology.

Biobank Ethics >> CRB participates in several European networks and EU-funded projects on the ethical aspects of biobanking: the EU Network of Excellence CCPRB (Cancer control using population based registries and biobanks) that ended recently; AutoCure - Curing autoimmune rheumatic diseases, an EU funded research project within the sixth framework programme; BBMRI.se (BioBanking and Molecular Resource Infrastructure of Sweden) funded by the Swedish Research Council; and the IMI (Innovative Medicines Initiative) funded BTCure, focusing on Rheumatoid Arthritis (RA) and RA-like diseases; BBMRI-LPC is an EU 7th Framework project focusing on Large prospective cohort (LPC) studies; BiobankCloud is an EU 7th Framework project aiming to build the first open and viable platform-as-a-service (PaaS) for storage and analysis of digitized genomic data; Euro-TEAM is an EU 7th Framework project aiming towards early diagnosis and biomarker validation in arthritis management; and RD-connect, an EU 7th framework programme that aims to build an integrated platform connecting registries, biobanks and clinical bioinformatics for rare disease research.

Culture, Health and Bioethics >> Together with researchers from universities and museums in Australia, Norway, Sweden and the United Kingdom, CRB has formed a multi-disciplinary network on health, culture and bioethics. The network is funded by Riksbankens Jubileumsfond (Bank of Sweden Tercentenary Foundation)

Family Ethics >> CRB collaborates with ECEC, CBmE and PEALS on family ethics health and social care with funding from Riksbankens Jubileumsfond for the initiation of this international multi-centre research collaboration.

Neuroethics >> CRB has extensive collaborations on Neuroethics with Collège de France and the Pasteur Institute in Paris. We also collaborate with the Centro de Investigaciones Filosóficas (CIF) and the Institute of Cognitive Neurology (INECO) in Buenos Aires. We are also part of the EU-flagship Human Brain Project.



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CRB research news

Karl Sallin will study pervasive refusal syndrome as a disorder of conciousness

[2014-01-24] Despite severe symptoms apparently affecting consciousness, Karl Sallinpervasive refusal syndrome has received little attention from neuroscience. Dr Karl Sallin has initiated a collaboration between clinicians and neuroscientists in order to study PRS as a disorder of consciousness.


Pretend play can facilitate treatment and improve quality of life for children with cancer

[2014-01-15 ] In health care, and particularly in children’s cancer care, it is difficult for children to gain a sense of understanding, control and involvement. This may cause fear and discomfort.Mats G. Hansson

An international collaboration involving experienced researchers, clinicians and ethics researchers will examine if pretend play can have a positive effect on children aged 3-10 years.


Too quiet on the ethical and social implications of genetic testing

[2013-12-16] 99 US dollars will buy you a genetic test and information about what diseases you are at risk of developing in the future. But there is not enough discussion on the ethical and social implications of genetic testing.


CRB coordinates unique research collaboration on genetic risk information

[2013-10-16] The Swedish Foundation for Humanities and Social Sciences has granted CRB and research partners SEK 35,9 million to conduct research on how to manage and handle genetic risk information.


More news from CRB >