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Centre for Research Ethics & Bioethics (CRB)


RESEARCH AT CRB


Evaluations of ethical issues have to be made in a systematic and informed manner, based on sound research and scholarship.

The researchers at the Centre for Research Ethics & Bioethics at Uppsala University have been active for several years investigating ethical, philosophical and legal aspects of biomedical research and clinical practice within the format of multi-disciplinary research projects.

We publish the results of our research in international peer-reviewed scientific journals and in books. Roughly our research covers three main areas: research ethics, clinical ethics and bioethics

Our research topics originate in close collaboration with clinicians, and through ongoing communication and international collaboration with highly qualified researchers and scientists.



International collaborations

Mind the Risk - A multidisciplinary research collaboration on how to manage and handle genetic risk information, generated by information technology.

Biobank Ethics >> CRB participates in several European networks and EU-funded projects on the ethical aspects of biobanking: the EU Network of Excellence CCPRB (Cancer control using population based registries and biobanks) that ended recently; AutoCure - Curing autoimmune rheumatic diseases, an EU funded research project within the sixth framework programme; BBMRI.se (BioBanking and Molecular Resource Infrastructure of Sweden) funded by the Swedish Research Council; and the IMI (Innovative Medicines Initiative) funded BTCure, focusing on Rheumatoid Arthritis (RA) and RA-like diseases; BBMRI-LPC is an EU 7th Framework project focusing on Large prospective cohort (LPC) studies; BiobankCloud is an EU 7th Framework project aiming to build the first open and viable platform-as-a-service (PaaS) for storage and analysis of digitized genomic data; Euro-TEAM is an EU 7th Framework project aiming towards early diagnosis and biomarker validation in arthritis management; and RD-connect, an EU 7th framework programme that aims to build an integrated platform connecting registries, biobanks and clinical bioinformatics for rare disease research.

Culture, Health and Bioethics >> Together with researchers from universities and museums in Australia, Norway, Sweden and the United Kingdom, CRB has formed a multi-disciplinary network on health, culture and bioethics. The network is funded by Riksbankens Jubileumsfond (Bank of Sweden Tercentenary Foundation)

Family Ethics >> CRB collaborates with ECEC, CBmE and PEALS on family ethics health and social care with funding from Riksbankens Jubileumsfond for the initiation of this international multi-centre research collaboration.

Neuroethics >> CRB has extensive collaborations on Neuroethics with Collège de France and the Pasteur Institute in Paris. We also collaborate with the Centro de Investigaciones Filosóficas (CIF) and the Institute of Cognitive Neurology (INECO) in Buenos Aires. We are also part of the EU-flagship Human Brain Project.



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CRB research news

Telenursing challenges inequalities

[2014-09-05] Have you ever consulted a nurse on the phone? In most Western societies, chances are you have. And especially in Sweden where the entire country is connected to Swedish Healthcare Direct (SHD), or '1177'.

Anna T. HöglundIn a study from Uppsala University, Roya Hakimnia, Inger K. Holmström, Marianne Carlsson and Anna T. Höglund analyzed 20 calls made to 1177. According to them,, telenursing could potentially challenge inequalities in health care.  Through better awareness of gender biases and the callers’ different resources for making themselves heard, the communication might become more equal and better suitable for all callers.


Talking to patients that can't talk to us

[2014-09-02] There are several medical conditions that restrict or prevent consciousness. Patients with chronic coma, minimally conscious state and persistent vegetative states represent a range of changes in self-awareness. But how can we tell the difference?

Michele FariscoMichele Faricso has written a chapter in Current Topics in Behavioural Neuroscience together with Stephen Laureys and Kathinka Evers. According to them we need more scientific efforts  in neurotechnological assessment of consciousness and ‘cerebral communication’ with verbally non-communicative patients. But there is also a great need for ethical reflections.


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