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Centre for Research Ethics & Bioethics (CRB)


Evaluations of ethical issues have to be made in a systematic and informed manner, based on sound research and scholarship.

The researchers at the Centre for Research Ethics & Bioethics at Uppsala University have been active for several years investigating ethical, philosophical and legal aspects of biomedical research and clinical practice within the format of multi-disciplinary research projects.

We publish the results of our research in international peer-reviewed scientific journals and in books. Roughly our research covers three main areas: research ethics, clinical ethics and bioethics

Our research topics originate in close collaboration with clinicians, and through ongoing communication and international collaboration with highly qualified researchers and scientists.

International collaborations

Mind the Risk - CRB co-ordinates a multi-disciplinary research collaboration on how to manage and handle genetic risk information, generated by information technology. The research is funded by the Swedish Foundation for Humanities and Social Sciences (Riksbankens Jubileumsfond) Partners include the Georg-August-Universität, Göttingen: The Department of Medical Ethics and History of Medicine, the Interdisciplinary Research Center on Decision Making Processes in Milano, University of Manchester: The Centre for Health Economics, Institute of Population Health, University of Birmingham & Sandwell & West Birmingham Hospitals NHS Trust, University of Maastricht: Department of Technology and Society Studies, Faculty of Arts and Social Sciences, Karolinska Institutet and Sophiahemmet University College and deCODE genetics.

Biobank Ethics >> CRB participates in several European networks and EU-funded projects on the ethical aspects of biobanking: the EU Network of Excellence CCPRB (Cancer control using population based registries and biobanks) that ended recently; AutoCure - Curing autoimmune rheumatic diseases, an EU funded research project within the sixth framework programme; BBMRI.se (BioBanking and Molecular Resource Infrastructure of Sweden) funded by the Swedish Research Council; and the IMI (Innovative Medicines Initiative) funded BTCure, focusing on Rheumatoid Arthritis (RA) and RA-like diseases; BBMRI-LPC is an EU 7th Framework project focusing on Large prospective cohort (LPC) studies; BiobankCloud is an EU 7th Framework project aiming to build the first open and viable platform-as-a-service (PaaS) for storage and analysis of digitized genomic data; Euro-TEAM is an EU 7th Framework project aiming towards early diagnosis and biomarker validation in arthritis management; and RD-connect, an EU 7th framework programme that aims to build an integrated platform connecting registries, biobanks and clinical bioinformatics for rare disease research.

Culture, Health and Bioethics >> Together with researchers from universities and museums in Australia, Norway, Sweden and the United Kingdom, CRB has formed a multi-disciplinary network on health, culture and bioethics. The network is funded by Riksbankens Jubileumsfond (Bank of Sweden Tercentenary Foundation). The funding for this network ended in 2013.Ongoing collaborations are led by Anna-Lydia Svalastog.

Family Ethics >>In 2011, CRB received funding from Riksbankens Jubileumsfond for the initiation of this international multi-centre research collaboration on family ethics together with Expertise Center Ethics of Care at University Medical Center (ECEC), Groningen University the Centre for Biomedical Ethics (CBmE), National University of Singapore  and the Policy, Ethics and Life Sciences Research Centre (PEALS), Newcastle University on family ethics health and social care, a network that also includes Hilda Lindeman and James Nelson, philosophers from Michigan State University.
In June 2013 the group received funding for 3 years from the Dutch body NWO for the project Practices of Responsibility in Change that will result in a wider and stronger network, joint publications and a full research proposal. An ongoing PhD project on pre-conception genetic testing is part of this network, co-supervised from the Netherlands.

Neuroethics >> The CRB Neuroethics research team is led by Kathinka Evers. The group is part of the European Commission flagship initiative The Human Brain Project (HBP) that will simulate the human brain. A project with that raises many philosophical and ethical questions. CRB has extensive collaborations on Neuroethics with Collège de France and the Pasteur Institute in Paris. We also collaborate with the Centro de Investigaciones Filosóficas (CIF) and the Institute of Cognitive Neurology (INECO) in Buenos Aires. We are also part of the EU-flagship Human Brain Project.

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Meet our researchers:

Meet an editor: Pär Segerdahl

Meet a PhD Student: Michele Farisco

Meet a lecturer: Jessica Nihlén Fahlquist

Meet a Researcher: Heidi Howard

Meet a professor: Lena Ring

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Guideline for sharing specimens and data receives IRDiRC recommendation

[2015-08-25] The International Charter of principles for sharing bio-specimens and data has received a recommendation from the International Rare Diseases Research Consortium IRDiRC.

IRDiC recommendedThe Charter is part of CRB's work with the ethical, legal and social issues (ELSI) in the RD-Connect platform.

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