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Centre for Research Ethics & Bioethics (CRB)


RESEARCH AT CRB


Evaluations of ethical issues have to be made in a systematic and informed manner, based on sound research and scholarship.

The researchers at the Centre for Research Ethics & Bioethics at Uppsala University have been active for several years investigating ethical, philosophical and legal aspects of biomedical research and clinical practice within the format of multi-disciplinary research projects.

We publish the results of our research in international peer-reviewed scientific journals and in books. Roughly our research covers three main areas: research ethics, clinical ethics and bioethics

Our research topics originate in close collaboration with clinicians, and through ongoing communication and international collaboration with highly qualified researchers and scientists.



International collaborations

Mind the Risk - A multidisciplinary research collaboration on how to manage and handle genetic risk information, generated by information technology.

Biobank Ethics >> CRB participates in several European networks and EU-funded projects on the ethical aspects of biobanking: the EU Network of Excellence CCPRB (Cancer control using population based registries and biobanks) that ended recently; AutoCure - Curing autoimmune rheumatic diseases, an EU funded research project within the sixth framework programme; BBMRI.se (BioBanking and Molecular Resource Infrastructure of Sweden) funded by the Swedish Research Council; and the IMI (Innovative Medicines Initiative) funded BTCure, focusing on Rheumatoid Arthritis (RA) and RA-like diseases; BBMRI-LPC is an EU 7th Framework project focusing on Large prospective cohort (LPC) studies; BiobankCloud is an EU 7th Framework project aiming to build the first open and viable platform-as-a-service (PaaS) for storage and analysis of digitized genomic data; Euro-TEAM is an EU 7th Framework project aiming towards early diagnosis and biomarker validation in arthritis management; and RD-connect, an EU 7th framework programme that aims to build an integrated platform connecting registries, biobanks and clinical bioinformatics for rare disease research.

Culture, Health and Bioethics >> Together with researchers from universities and museums in Australia, Norway, Sweden and the United Kingdom, CRB has formed a multi-disciplinary network on health, culture and bioethics. The network is funded by Riksbankens Jubileumsfond (Bank of Sweden Tercentenary Foundation)

Family Ethics >> CRB collaborates with ECEC, CBmE and PEALS on family ethics health and social care with funding from Riksbankens Jubileumsfond for the initiation of this international multi-centre research collaboration.

Neuroethics >> CRB has extensive collaborations on Neuroethics with Collège de France and the Pasteur Institute in Paris. We also collaborate with the Centro de Investigaciones Filosóficas (CIF) and the Institute of Cognitive Neurology (INECO) in Buenos Aires. We are also part of the EU-flagship Human Brain Project.



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CRB research news

Regulating biobank research: new book

Deborah Mascalzoni[2015-01-13] Biobank research and genomic information are changing the way we look at health and medicine. So how can we regulate it? A recent book published by Springer shows us how the regulatory systems work and raises a critical voice.

Ethics, Law and Governance of BiobankingDeborah Mascalzoni is Senior Researcher at CRB and the editor of Ethics, Law and Governance of Biobanking that was recently published by Springer. According to her, we can't keep clinical applications and research separate anymore.


Who calls Swedish Health Care Direct '1177'?

[2015-01-13] For some time now, all Swedish regions have been connected to the telenursing service Swedish Healthcare Direct (SHD), or ‘1177'. But does that mean we have equitable access to health care? Perhaps not. A recent study shows that both language and gender influences who uses the service.

Anna T. HöglundA recent study of authentic calls made to '1177' published in Clinical Nursing Studies shows that the most common caller is a young woman who is fluent in Swedish. According to the authors, it is important that we make sure that telenursing doesn't become a service only for them.


Biobanking for rare diseases

[2014-12-17] Rare diseases are uncommon, and often severe, disabling and life threatening. There is a need for research to help these patients get treatment.

Mats HanssonBut what are the current trends in biobanking for rare diseases? Mats G. Hansson is part of group of researchers that recently published a review on the current trends in biobanking for rare diseases in the Journal of Biorepository Science for Applied Medicine


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