• Eng
  • Sve
Centre for Research Ethics & Bioethics (CRB)


RESEARCH AT CRB


Evaluations of ethical issues have to be made in a systematic and informed manner, based on sound research and scholarship.

The researchers at the Centre for Research Ethics & Bioethics at Uppsala University have been active for several years investigating ethical, philosophical and legal aspects of biomedical research and clinical practice within the format of multi-disciplinary research projects.

We publish the results of our research in international peer-reviewed scientific journals and in books. Roughly our research covers three main areas: research ethics, clinical ethics and bioethics

Our research topics originate in close collaboration with clinicians, and through ongoing communication and international collaboration with highly qualified researchers and scientists.



International collaborations

Mind the Risk - A multidisciplinary research collaboration on how to manage and handle genetic risk information, generated by information technology.

Biobank Ethics >> CRB participates in several European networks and EU-funded projects on the ethical aspects of biobanking: the EU Network of Excellence CCPRB (Cancer control using population based registries and biobanks) that ended recently; AutoCure - Curing autoimmune rheumatic diseases, an EU funded research project within the sixth framework programme; BBMRI.se (BioBanking and Molecular Resource Infrastructure of Sweden) funded by the Swedish Research Council; and the IMI (Innovative Medicines Initiative) funded BTCure, focusing on Rheumatoid Arthritis (RA) and RA-like diseases; BBMRI-LPC is an EU 7th Framework project focusing on Large prospective cohort (LPC) studies; BiobankCloud is an EU 7th Framework project aiming to build the first open and viable platform-as-a-service (PaaS) for storage and analysis of digitized genomic data; Euro-TEAM is an EU 7th Framework project aiming towards early diagnosis and biomarker validation in arthritis management; and RD-connect, an EU 7th framework programme that aims to build an integrated platform connecting registries, biobanks and clinical bioinformatics for rare disease research.

Culture, Health and Bioethics >> Together with researchers from universities and museums in Australia, Norway, Sweden and the United Kingdom, CRB has formed a multi-disciplinary network on health, culture and bioethics. The network is funded by Riksbankens Jubileumsfond (Bank of Sweden Tercentenary Foundation)

Family Ethics >> CRB collaborates with ECEC, CBmE and PEALS on family ethics health and social care with funding from Riksbankens Jubileumsfond for the initiation of this international multi-centre research collaboration.

Neuroethics >> CRB has extensive collaborations on Neuroethics with Collège de France and the Pasteur Institute in Paris. We also collaborate with the Centro de Investigaciones Filosóficas (CIF) and the Institute of Cognitive Neurology (INECO) in Buenos Aires. We are also part of the EU-flagship Human Brain Project.



Share |
CRB research news

Brain simulation raises questions

[2014-10-22] What does it mean to simulate the human brain? Why is it important to do so? And is it even possible to simulate the brain separately from the body it exists in?

Kathinka EversToday, two Human Brain Project (HBP) researchers, Kathinka Evers, philosopher at the Centre for Research Ethics and Bioethics at Uppsala University and Yadin Dudal, neuroscientist at the Weizmann Institute of Science, publish a paper in Neuron that discusses the questions raised by brain simulations within and beyond the EU flagship project HBP.


Talking about death with dying children

[2014-10-09] Open and honest communication is important in palliative care, but what about families? When is the best time to talk to your child about dying? And how should you talk about death?

Li JalmsellA group of researchers have studied how parents with children dying from cancer communicated with their child about death. The results show that the child, not the parent, was often the one who initiated conversations about death. Parents often used fairy tales as a theme for these talks. Regardless of how old the child was.

Li Jalmsell is one of the authors. She is a PhD Student at CRB but also a medical doctor and has worked with cancer patients for many years. According to her, there is of course a fear that too much focus on death could cause harm.


More news from CRB >