Emilia Niemiec investigates ethical, legal and social implications of genomics in SIENNA project. She is a post-doc at the Centre for Research Ethics & Bioethics. During her PhD (Erasmus Plus PhD Programme in Law, Science and Technology) she studied ethical and legal issues of whole genome sequencing. She conducted the first empirical study of direct-to-consumer offer of whole genome sequencing. Emilia holds degrees in Bioethics (MSc, University of Leuven) and Biotechnology (MEng, Warsaw University of Life Sciences).
Technology, ethics and human rights
Genomics, Enhancement, AI & Robotics
The SIENNA project will address ethical issues in three new and emerging areas with major socio-economic impact.
News from the SIENNA project
- Embedded EthiCS postdoc opportunity at Harvard University 2018-12-14
- Looking for AI expertise! 2018-12-04
- AI & Robotics: New project video 2018-11-14
- Collecting stakeholder input on legal aspects of Genomics, Human Enhancement, AI & Robotics 2018-11-08
- Law Disrupted, Law Re-Imagined, Law Re-Invented 2018-11-06
- Human Enhancement: Issues for SIENNA 2018-09-12
- SIENNA infographic on AI and robotics 2018-07-11
- SIENNA - soon in your langauge! 2018-07-05
- The SIENNA project in Spanish 2018-06-26
- Fostering cooperation and finding synergies 2018-06-11
- SIENNA underscores major issues of big data and AI at SHERPA workshop 2018-05-24
- Brazilian perspectives on ethics and new technology 2018-03-09
- Let us know what you think about Human Enhancement 2018-02-08
- AI ethics, foresight and ethics by design: Digital Ethics Summit 2017-12-20
- SIENNA at Brave New World conference 2017-11-07
- ETHICS BLOG: Ethics, human rights and responsible innovation 2017-10-31
- SIENNA: Preparing the ground for responsible innovation 2017-10-19
- SIENNA project kicks off 2017-10-10
- European funding for research on ethical and legal aspects of new technologies 2017-04-28
Your DNA Your SAy
>> Tell us what you think
This is a film-survey experience on DNA and medical data sharing.
Ethical, legal and social issues of gene editing
Gene editing technology pushes genetics beyond diagnostic testing and into the realm of treatment. We address the ethical, legal and social issues associated.
How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings?: A content analysis
Part of Clinical Genetics, p. 321-329, 2018.
'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods
Part of Personalized Medicine, p. 311-318, 2018.
Current ethical and legal issues in health-related direct-to-consumer genetic testing
Part of Personalized Medicine, p. 433-445, 2017.