Ulrik Kihlbom

Ulrik Kihlbom

Associate Professor of Medical Ethics
Senior Lecturer in Medical Ethics

Ulrik Kihlbom is associate professor and senior lecturer in medical ethics at the Centre for Research Ethics & Bioethics. He is currently involved in a five-year project looking at how and when to include patient preferences in the life cycle of medical products (PREFER). He is also responsible for the Medical ethics & law program at the Medical school as well as for an advanced level course on public health ethics. In recent years, he has worked with bioethical issues related to reproduction, ethical particularism, family ethics and autonomy.

E-mail: Ulrik.Kihlbom@crb.uu.se
Phone: +46 18 471 6233


PhD supervision

Recently in the media

Recent publications

  • Whichello, Chiara; Soekhai, Vikas; Levitan, Bennett; Veldwijk, Jorien et al.

    Compendium of methods for measuring patient preferences in medical treatment

    Part of Pharmacoepidemiology and Drug Safety, p. 517-518, 2018.

    Open access
  • Renzi, Chiara; Provencal, Nadine; Bassil, Katherine C; Evers, Kathinka et al.

    From Epigenetic Associations to Biological and Psychosocial Explanations in Mental Health.

    Part of Progress in Molecular Biology and Translational Science, p. 299-323, 2018.

  • Kihlbom, Ulrik

    Genetic risk and value

    Part of Journal of Risk Research, p. 222-235, 2018.

  • de Bekker-Grob, Esther W.; Juhaeri, Juhaeri; Kihlbom, Ulrik; Levitan, Bennett et al.

    Giving patients' preferences a voice in the medical product lifecycle: why, when and how?: The public-private PREFER project: Work package 2

    Part of ISPOR Value & Outcomes Spotlight, p. 19 19-21 21, 2018.

  • Schölin Bywall, Karin; Veldwijk, Jorien; Hansson, Mats G.; Kihlbom, Ulrik et al.

    Patient Perspectives on the Value of Patient Preference Information in Regulatory Decision Making: A Qualitative Study in Swedish Patients with Rheumatoid Arthritis

    Part of the patient - patient-centered outcomes research, 2018.

    Open access
  • Kihlbom, Ulrik; Russo, Selena; Monzani, Dario; Stichele, Geert Vander et al.

    Patient-centered benefit-risk decision-making and the role of educational tools and psychological instruments in preference elicitation-Year 1 of IMI prefer

    Part of Pharmacoepidemiology and Drug Safety, p. 512-512, 2018.

  • Soekhai, V; Whichello, C.; Levitan, B.; Veldwijk, Jorien et al.

    Compendium Of Methods For Measuring Patient Preferences In Medical Treatment

    Part of Value in Health, p. A684-A685, 2017.

  • Godskesen, Tove; Kihlbom, Ulrik

    "I have a lot of pills in my bag, you know": Institutional Norms in the Provision of Hope in Phase 1 Clinical Cancer Trials

    Part of Journal of Oncology Pharmacy Practice, p. 679-682, 2017.

  • Schölin Bywall, Karin; Veldwijk, Jorien; Hansson, Mats G.; Kihlbom, Ulrik et al.

    Rheumatoid Arthritis Patients’ Perspectives On The Value Of Patient Preferences In Regulatory Decision-Making During Drug Development: A Qualitative Study

    Part of Value in Health, p. A540-A540, 2017.

  • Godskesen, Tove; Kihlbom, Ulrik; Nordin, Karin; Silen, Marit et al.

    Differences in trial knowledge and motives for participation among cancer patients in phase 3 clinical trials

    Part of European Journal of Cancer Care, p. 516-523, 2016.

Medical ethics, decision-making and patient preferences

Health care and drug development raises several philosophical questions that require practical solutions: How can patients become informed enough to answer questions in a way that is meaningful? How do we make genetic risk information understandable and meaningful? Here, Ulrik Kihlbom reflects on what happens at the intersection of philosophy and empirical work.

Read interview

Ulrik Kihlbom