Centre for Research Ethics & Bioethics (CRB)
Is medical ethics really in the best interest of the patient?
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Anne Cambon-Thomsen


Biographical Sketch

Anne Cambon-Thomsen, graduated as MD in 1978 and is presently Director of Research in CNRS (French national centre for scientific research). She studied at the Faculty of medicine, University of Toulouse, France and is a specialist in human immunogenetics; she holds also a masters in Human biology and a degree in Health Ethics. After a post-doc in Denmark on human monoclonal antibodies in autoimmunity, she directed two research units on immunogenetics and population genetics in Toulouse between 1985 and 1997. She has more than 200 scientific publications. She presently leads a multidiciplinary team on “Genomics and public health”, involving human and social sciences as well as life sciences, in the context of research in epidemiology and public health at Inserm (National Institute for Health and Medical Research) at the Faculty of Medicine of the University of Toulouse, France. She also leads a “Genetics and Society” platform at the Toulouse-Midi-Pyrénées Genopole. She is involved in several EU projects in transplantation, genomic sciences, public health and biobanks. She has been rapporteur of an EU expert group on ethical, legal and social aspects of genetic testing; she sits in several scientific advisory boards of international projects and is member of the scientific council of Inserm and of the board of the Eur Soc Hum Genet and French Society of Human Genetics. She is involved in several ethics committees. Former member of the CCNE (French national advisory bioethics committee), she is presently member of the European Group on ethics of science and new technologies and Chairs the Life sciences operational ethics committee in CNRS. Besides her work in immunogenetics she worked in the recent years especially on societal aspects of biobanks and genetic testing. She is responsible of the axes on ethical, legal and social aspects (ELSA) in several biobanks/genetic EU projects and especially leads the work package ELSA of the BBMRI project (Biobank and biomolecular resources European research infrastructure).

Keynote presentation: Informed consent and its actors: Puzzle, maze or babel tower?
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This conference is arranged by Cesagen at the universities of Lancaster and Cardiff and the Centre for Research Ethics & Bioethics at Uppsala University.