Centre for Research Ethics & Bioethics (CRB)
Is medical ethics really in the best interest of the patient?

Preliminary programme: Monday June 14

Should ideology be allowed to trump patient well-being?


Plenary session

 

09:00 Introduction
 
09:15

Moral conflicts reconsidered: Respect for the patient as individual and the duty to care for all
Hille Haker
Catholic Faculty of Frankfurt, Goethe University, Germany
Abstract >

 
09:50 How to avoid a dichotomy between “autonomy” and “beneficence”? From liberalism to communitarianism and beyond
Margit Sutrop
Institute for Philosophy and Semiotics & Centre for Ethics, University of Tartu, Estonia
Abstract >
   
10:20 Break
 
10:50 Keynote response
Alastair V. Campbell
Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore
   
11:20 Response and panel discussion
 
11:35 Open discussion
 
12:30 Lunch
   

The afternoon programme consists of four parallel sessions:

  1. Extra session on stem cell ethics
  2. Science, economy and ideology
  3. Contexts and experiences
  4. Best interests reconsidered

I. Extra session on stem cell ethics

 

13:30

New ethical challenges in stem cell research
Ruth Faden
Johns Hopkins University, Baltimore, USA
Abstract >

 
14:20

Doing ethics: A reflection on the ethical review of stem cell science by research ethics committees in the UK
Simon Woods
Newcastle University, Policy Ethics and Life Sciences Research Centre, Newcastle upon Tyne, United Kingdom
Abstract >

   
14:40 Coffee
   
15:10

Ethical issues in stem cell research in Ireland
Fionnuala Gough
University of Manchester, Doctoral programme in Bioethics and Medical Jurisprudence, School of Law, Manchester, United Kingdom
Abstract >

   
15:35

Legal and ethical controversies around medical uses of stem cells
Aurélie Mahalatchimy1; Emmanuelle Rial-Sebbag2; Virginie Tournay3
1PACTE and INSERM U558, PACTE, Politique – Organisations Department, UMR 5194, INSERM U 558 Epidemiology and Public Health Department, Team 4, Toulouse, France; 2INSERM U 558, Epidemiology and Public Health Department, Team 4: Genomics, biotherapy and public health: an interdisciplinary approach, Toulouse, France; 3PACTE,Politique – Organisations Department, UMR 5194, Grenoble, France
Abstract >

   
16:00

Stem cells and metaphysics
Carl Reinhold Bråkenhielm
Uppsala University, Department of Theology, Uppsala, Sweden
Abstract >

 

II. Science, economy and ideology

 

13:30

Should ideology be allowed to trump wellbeing? The example of evidence based medicine
Anders Jeppsson
Lund University, Social Medicine & Global Health, Univeristy Hospital, Malmö, Sweden
Abstract >

 

 

13:55

Patient equality: to treat alike or take account of the difference?
Mari Kangasniemi
University of Eastern Finland, Department of Nursing Science, Kuopio, Finland
Abstract >

 

 

14:20

A Singaporean case study on the effect of culture on medical decision making at the end of life
Lalit Kumar Radha Krishna; Zheng Jie Marc Ho
National Cancer Centre, Singapore, Palliative Medicine, Singapore
Abstract >

 

 

14:40

Coffee

 

 

15:10

"The Actor Model" - A valuable tool in difficult ethical decisions
Ann Edner 1; Per Amark 2
1Karolinska University Hospital, Solna, Neonatal Unit, Astrid Lindgren Children's Hospital, Stockholm, Sweden; 2Karolinska University Hospital, Solna, Child Neurology, Astrid Lindgren Children's Hospital, Stockholm, Sweden
Abstract >

 

 

15:35

Hunger strike: bravery, despair or blackmail?
Simona Semen
Human Rights Ombudsman, Public healthcare, Ljubljana, Slovenia
Abstract >

 

 

16:00

Ethical issues with the development of personalised medicines for rare, childhood, genetic disease: the case of duchenne muscular dystrophy
Pauline McCormack ; Simon Woods
Newcastle University, PEALS, Newcastle upon Tyne, United Kingdom
Abstract >

 

III. Contexts and experiences

 

13:30

Patients' perceptions of bad treatment and of feeling wronged in Swedish healthcare
Maja Wessel ; Gert Helgesson ; Niels Lynoe
Karolinska Institutet, Stockholm Centre for Healthcare Ethics (CHE), LIME, Stockholm, Sweden
Abstract >

 

 

13:55

The role of medical ethics in chronic illness experience of older adults: Latvian case
Signe Mezinska
Riga Stradins University, Riga, Latvia
Abstract >

 

 

14:20

The scarcity of autonomous choice in clinical medicine
Kari Milch Agledahl 1; Aage Wifstad 2
1University of Tromsoe/Northern Norway Regional Health Authority, FFU-dep, Hammerfest Sykehus, Hammerfest, Norway; 2University of Tromsoe, Institute of Community Medicine, Faculty of Medicine, Tromsoe, Norway
Abstract >

 

 

14:40

Coffee

 

 

15:10

CANCELLED
The idea of therapeutic misconception: a sociological misconception?

Edison Bicudo
King's College London, Centre for Biomedicine and Society, London, United Kingdom
Abstract >

 

 

15:35

Ideological beliefs, death and medical diagnosis
Mehdi Damali Amir-Hamedan ; Ali Ghaleiha ; Firouzeh Akbari ; Ahmad Tajfar
Medical University, Psychiatry, Hamedan, Islamic Republic of Iran
Abstract >

 

 

16:00

West meets east: western standards for HIV testing meets Chinese duty-based confucianism
Yonghui Ma
University of Manchester, Institute for Science, Ethics and Innovation School of Law, Manchester, United Kingdom
Abstract >

 

IV. Best interests reconsidered

 

13:30

Is medical ethics really in the best interest of the patient - An Asian perspective
Michael (Cheng-tek) Tai
Chungsham Medical University, Medical Humanities, College of Medical Humanities & Social Sciences, Taichung, Taiwan
Abstract >

 

 

13:55

The "Patient's Best Interest" and clinical prudence reconsidered
Jonathan Sande
SMDC Cancer Center, Hematology/Oncology, Duluth, MN, United States
Abstract >

 

 

14:20

Infantile surgery for intersex - is it in the best interests of the child or, as many present day patient advocates suggest, should it be regarded as complying with a suspect norm?
Melanie Newbould
Royal Manchester Children's Hospital, Department of Paediatric Histopathology, Manchester, United Kingdom
Abstract >

 

 

14:40

Coffee

 

 

15:10

If we can, must we? Is there an evolving best interest of the child?
Vincent Maher
Iona College, Legal Studies and Health Care Management, New Rochelle, United States
Abstract >

 

 

15:35

From autonomy to vulnerability: How medical ethics’ paradigms produce their respective ideas of the patient’s best interest
Alexandra Soulier
INSERM U 558 team 4, Haute-Garonne, Toulouse, France
Abstract >

 

 

16:00

Don’t lie! – Why not? How to argue for truthfulness in medical practice
Theda Rehbock
University of Tartu, Department of Philosophy, Tartu, Estonia
Abstract >



Organisers

The conference is arranged by Cesagen at the universities of Lancaster and Cardiff and the Centre for Research Ethics & Bioethics at Uppsala University.

The Centre for Research Ethics and Bioethics is an interfaculty centre at Uppsala University.

Uppsala universitet

Cesagen is a collaborative research centre which is funded as part of the ESRC Genomics Network. The Centre is based at the universities of Lancaster and Cardiff.

Cesagen Cardiff University Lancaster University

In collaboration with:

Akademiska sjukhuset

Main sponsor:

Journal of Internal Medicine

More information