Biobanks as Health Resources : Ethical, legal and economic prerequisites for efficiency and integrity
The conference Biobanks as Health Resources - Ethical, legal and economic prerequisites for efficiency and integrity opened on March 10, 2003, with a plenary session in the Rikssalen at Uppsala Castle. The second day of the conference consisted of paralell workshops in Swedish.
The potential benefits of biomedicine and biotechnology are considerable, but this is also an area of science and medicine that is sometimes found controversial. Descisions made by scientists, by health care professionals and by policymakers must be well informed and based on knowledge and sound research. Legal experts concerned with public law and intellectual property rights, philosophers and social pharmastists have been collaborating with geneticists, pathologists and doctors in several research projects in order to seek the kind of biobank management that would satisfy the interests of both the research community and the general public as regards new medicines and forms of treatment, whilst protecting the integrity of the individual.
The conference reported research conducted within several multi-disciplinary research projects within the framework of the Research Program Ethics in Biomedicine at Uppsala University. A summary of that research was presented at the conference, and in the report, Biobanks as Resources for Health, Hansson, M.G. & Levin, M. [eds.] that was included in the conference documentation.
The research presented at the conference Biobanks as Health Resources have been funded by the Swedish Foundation for Strategic Research (through the ELSA Program), the Swedish Agency for Innovation Systems (VINNOVA), the Federation of County Councils, the National Board of Health and Welfare and the Knut and Alice Wallenberg Foundation (through the Biobank Programme of SweGene and Wallenberg Consortium North).
The conference Biobanks as Health Resources opened on March 10, with a plenary session in the Rikssalen at Uppsala Castle. Vice-Rector Ulf G. Pettersson opened the plenary and introduced Associate Professor Kathinka Evers, Research Program Ethics in Biomedicine who functioned as moderator.
Mike Pellini, CEO, Genomics Collaborative Inc., Boston Biobanks, Clinical Data, spoke on Informed Consent - Three conditions for Functional Genomics
Joakim Dillner, Professor of Medical Microbiology, Lund University spoke on A Swedish Platform for Biobanking
After lunch, Bengt Westerberg, Chairman of the Board, the Swedish Research Council spoke on Biobanks from the Perspective of the Patient
The plenary session ended with a speech by Mats G. Hansson, Associate Professor of Ethics, Uppsala University who addressed questions on Combining Efficiency and Concerns about Integrity in the Use of Human Biobanks
The plenary session ended with a Conference dinner in Rikssalen at Uppsala castle. The Governor of Uppsala County, Anders Björck, addressed the delegates and the all women's quire, La Capella, performed.
Jacques Deshaies, Canadian artist, showed his paintings "the Human Genome Odyssey" at the conference.
Workshops 11 mars
- Biobankers reglering - efter fem år av turbulens
Juridiska och etiska aspekter på innehållet i dagens regelverk - Vad tycker allmänheten och patienterna?
- Vem äger Dina celler?
På vilka sätt kan biologiskt material övergå från en person till annan - gåva eller donation? - Kommersialisering av biobanker
Organisationsformer; patent och andra immaterialrätter; avtal - Rätten till insamlat material - Forskarens eller annans?
- Juridiska och etiska tillämpningar för biobanksforskning
- Forskning och företagande - Avtal om nyttjande av biobanksmaterial
Ett praktiskt exempel med särskilt fokus på stamcelle