Pretend play: children with cancer
Recent reviews show that children seldom participate in consultations and decisions regarding their care. There is disagreements between health care professionals on whether children should be involved or not.
Studies indicate that by being more active children's understanding of their illness might improve and their pain may be reduced. According to the UN Declaration of children's rights, every child has a right to acquire knowledge and skills for communication, enabling them to relate to the world around them in their own unique way.
Aims
- To explore the usability of pretend play for increasing children's engagement in care situations
- To investigate whether pretend play can contribute to increased communication skills and a broader behavioral /emotional repertoire in care situations
- To examine the clinical ethical implications regarding involvement of children and their families in pediatric oncology care
Funding
This research is funded by the Swedish Childhood Cancer Foundation (Barncancerfonden)
About Pretend Play
In 2015, a pilot study of the project was conducted on five children with cancer and five healthy children. Lessons learned from the pilot study were that recruitment of children and parents can take time and that the number of questionnaires must not be too big. Positive aspects were that the play intervention worked well and that the videotaping of them was accepted by both parents and children.
The main project is designed in the same way as the pilot study, but with an increased number of children. Around 15 children, at the age 4-10 and with a cancer diagnosis from two Swedish hospitals, and their parents will be asked to participate. Each child will take part in six to eight play sessions led by a play facilitator. Each session includes three or four pretend play situations. The play sessions will be videotaped. Before and after the intervention both parents and children are asked to fill out a questionnaire, measuring quality of life, well-being, anxiety, self-efficacy and affect in play in the child. Both children and parents will also be interviewed after the intervention. In a concluding theoretical study the clinical ethical implications of increased participation and autonomy of children with cancer will be investigated.
The play intervention is designed to present something positive and funny for children with cancer. Through their participation, children with cancer and their parents can contribute to increased quality of care for children and make children more autonomous and participating in their care situation.
Contact
- Mats G. Hansson, Professor of Biomedical Ethics
- Sara Holm, PhD, Researcher
- Anna T. Höglund, Associate Professor of Ethics
Collaborators outside CRB
- Lena Ring, Adjunct Prof. Quality of Life Research in Health Care, Uppsala University
- Sandra Russ, Professor of Psychology, Case Western Reserve University, Cleveland
- Monika Bullinger, Professor of Medical Psychology, University of Hamburg
- Gustaf Ljungman, Associate Professor of Paediatric Oncology at Uppsala University and Uppsala University Hospital
Vårda patienter
Sjuksköterskor måste hantera etiska problem i stt dagliga arbete. Men vård och omvårdnad har också en moralisk dimension.
Att inte återuppliva patienter med hjärtstopp
Mona Pettersson undersökte kliniska och etiska perspektiv på beslut att avstå från att återuppliva patienter inom onkologisk och hematologisk vård efter ett hjärtstopp (Ej-HLR).
Klinisk etik
Vi forskar om hälso- och sjukvården och de människor som befinner sig där: både de som arbetar där och patienterna.
Vårdetik och omvårdnadsetik
Relalationen mellan sjuksköterska och patient är inte jämlik. Hur ser man till att mötet ändå blir respektfullt? Vilka etiska dilemmans uppstår i sjuksköterskors vardag? Och hur kan man lösa dem?
Mycket av vår kliniskt inriktade forskning handlar om vårdetik och omvårdens etik. Vi har sammanställt våra publikationer på området (med abstracts) i en rapport. Rapporten är på engelska.
