SIMSAM is short for "Swedish Initiative for Research on Microdata in the Social And Medical Sciences", an initiative supported by the Swedish Research Council via its Committee for Research Infrastructure.

By giving priority to interdisciplinary, innovative register-based research, SIMSAM will contribute to better public health and increased knowledge of social issues, for instance which factors in childhood that result in increased risk for obesity or cancer later in life. The initiative is also intended to promote improved and expanded use of registers in research and to increase the knowledge of how registry research is organized in Sweden and internationally.


This is an infrastructure project for population registers in epidemiology and in the social sciences funded by the Swedish Research Council. The project priorities are to A) develop the information from SIMSAM to the research community and provide descriptions of the SIMSAM research data bases, data management work performed on the register data, contact persons, availability, and other additional information related to these. The project will also B) develop a website for register data containing overarching information in Swedish and English on available register data from the central and regional/local authorities (including social, demographic, health care, biobank data sources).


CRB was involved in C) the analysis of the ethical foundation on which current legislation is based, in order to propose rules and applications more appropriate for research. Finally, SIMSAM-INFRA will D) review security solutions, ethical principles and ongoing reforms in the area of personal data for research, and propose legally acceptable security solutions for distributed (federated and other) data systems involving person identified data.


Contact at CRB

Joanna Stjernschantz Forsberg, PhD, was responsible for our work in SIMSAM-INFRA. She defended her thesis on ethical aspects of biobank research – Individual rights vs. the public good? in 2012.

If you have any questions about our work, contact Mats G. Hansson, Professor of Biomedical Ethics.

Biobanks- och registerforskning: Etik och juridik

Vi har ägnat många år åt konstruktiv vägledning kring hanteringen av etiska och juridiska aspekter av forskning på mänskligt vävnadsmaterial och persondata. Vi samarbetar med biomedicinare och publicerar våra resultat i vetenskapliga tidskrifter.

Vi har sammanställt våra publikationer (med abstracts) i en rapport. Rapporten är på engelska och uppdaterades i juni 2016.

Ladda ner vårt rapport om biobanker och register

Biobank and registry ethics & law, rapportomslag