Publications from CRB
We publish the results of our research in international peer-reviewed scientific journals and in books. Among other things, our research deals with bioethical issues, biobanks and registries, clinical ethics, neuroethics and philosophy, risk information, nursing ethics, ethics of care and research ethics and law.
More publication lists are avaliable on our staff pages. You can also download recent policy briefs from CRB, or read about our research on the Ethics Blog.
Recent publications
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Patients with borderline personality disorder and the effects of compulsory admissions on self-harm behaviour: a questionnaire study
Part of Nordic Journal of Psychiatry, p. 498-505, 2023.
DOI for Patients with borderline personality disorder and the effects of compulsory admissions on self-harm behaviour: a questionnaire study Download full text (pdf) of Patients with borderline personality disorder and the effects of compulsory admissions on self-harm behaviour: a questionnaire study
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International survey on the implementation of the European and American guidelines on disorders of consciousness
Part of Journal of Neurology, 2023.
DOI for International survey on the implementation of the European and American guidelines on disorders of consciousness Download full text (pdf) of International survey on the implementation of the European and American guidelines on disorders of consciousness
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How can patient preferences be used and communicated in the regulatory evaluation of medicinal products?: Findings and recommendations from IMI PREFER and call to action
Part of Frontiers in Pharmacology, 2023.
DOI for How can patient preferences be used and communicated in the regulatory evaluation of medicinal products?: Findings and recommendations from IMI PREFER and call to action Download full text (pdf) of How can patient preferences be used and communicated in the regulatory evaluation of medicinal products?: Findings and recommendations from IMI PREFER and call to action
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Experimentation, learning and dialogue: an RRI-inspired approach to dual-use of concern
Part of Journal of Responsible Innovation, 2023.
DOI for Experimentation, learning and dialogue: an RRI-inspired approach to dual-use of concern Download full text (pdf) of Experimentation, learning and dialogue: an RRI-inspired approach to dual-use of concern
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Taking Risks to Protect Others-Pediatric Vaccination and Moral Responsibility
Part of Public Health Ethics, p. 127-138, 2023.
DOI for Taking Risks to Protect Others-Pediatric Vaccination and Moral Responsibility Download full text (pdf) of Taking Risks to Protect Others-Pediatric Vaccination and Moral Responsibility
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Lack of guidelines and translational knowledge is hindering the implementation of psychiatric genetic counseling and testing within Europe - A multi-professional survey study
Part of European Journal of Medical Genetics, 2023.
DOI for Lack of guidelines and translational knowledge is hindering the implementation of psychiatric genetic counseling and testing within Europe - A multi-professional survey study Download full text (pdf) of Lack of guidelines and translational knowledge is hindering the implementation of psychiatric genetic counseling and testing within Europe - A multi-professional survey study
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Developing Capabilities for Responsible Research and Innovation (RRI)
Part of Journal of Responsible Technology, p. 100065-100065, 2023.
DOI for Developing Capabilities for Responsible Research and Innovation (RRI)
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Personalizing precision medicine: Patients with AML perceptions about treatment decisions
Part of Patient Education and Counseling, 2023.
DOI for Personalizing precision medicine: Patients with AML perceptions about treatment decisions Download full text (pdf) of Personalizing precision medicine: Patients with AML perceptions about treatment decisions
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Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together
Part of American Journal of Bioethics, p. 55-58, 2023.
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Why (at least some) moral vegans may have children: a response to Räsänen
Part of Theoretical Medicine and Bioethics, 2023.
DOI for Why (at least some) moral vegans may have children: a response to Räsänen
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Nurses' challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study
Part of International Journal of Qualitative Studies on Health and Well-being, 2023.
DOI for Nurses' challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study Download full text (pdf) of Nurses' challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study
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Physical function and severe side effects matter most to patients with RA (< 5 years): a discrete choice experiment assessing preferences for personalized RA treatment
Part of BMC Rheumatology, 2023.
DOI for Physical function and severe side effects matter most to patients with RA (< 5 years): a discrete choice experiment assessing preferences for personalized RA treatment Download full text (pdf) of Physical function and severe side effects matter most to patients with RA (< 5 years): a discrete choice experiment assessing preferences for personalized RA treatment
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About the compatibility between the perturbational complexity index and the global neuronal workspace theory of consciousness
Part of Neuroscience of Consciousness, p. 1-8, 2023.
DOI for About the compatibility between the perturbational complexity index and the global neuronal workspace theory of consciousness Download full text (pdf) of About the compatibility between the perturbational complexity index and the global neuronal workspace theory of consciousness
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The Ethical Spectrum of Consciousness
Part of AJOB Neuroscience, p. 55-57, 2023.
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Psychiatric and non-psychiatric population vulnerabilities in time of a crisis: the unsuspected aggression factor
Part of BMC Psychiatry, 2023.
DOI for Psychiatric and non-psychiatric population vulnerabilities in time of a crisis: the unsuspected aggression factor Download full text (pdf) of Psychiatric and non-psychiatric population vulnerabilities in time of a crisis: the unsuspected aggression factor
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Using values in cognitive and behavioral therapy: A bridge back to philosophy
Part of Journal of Evaluation In Clinical Practice, 2023.
DOI for Using values in cognitive and behavioral therapy: A bridge back to philosophy
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Comparing Outcomes of a Discrete Choice Experiment and Case 2 Best-Worst Scaling: An Application to Neuromuscular Disease Treatment
Part of Patient, p. 239-253, 2023.
DOI for Comparing Outcomes of a Discrete Choice Experiment and Case 2 Best-Worst Scaling: An Application to Neuromuscular Disease Treatment Download full text (pdf) of Comparing Outcomes of a Discrete Choice Experiment and Case 2 Best-Worst Scaling: An Application to Neuromuscular Disease Treatment
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ENAI Recommendations on the ethical use of Artificial Intelligence in Education
Part of International Journal for Educational Integrity, 2023.
DOI for ENAI Recommendations on the ethical use of Artificial Intelligence in Education Download full text (pdf) of ENAI Recommendations on the ethical use of Artificial Intelligence in Education
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Ethical concerns when recruiting children with cancer for research: Swedish healthcare professionals' perceptions and experiences.
Part of BMC Medical Ethics, p. 23-, 2023.
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Metacognition and insight dynamics exploration in borderline personality disorders: Exploring the underlying dynamics
Part of Journal of Psychiatric Research, p. 225-231, 2023.
DOI for Metacognition and insight dynamics exploration in borderline personality disorders: Exploring the underlying dynamics Download full text (pdf) of Metacognition and insight dynamics exploration in borderline personality disorders: Exploring the underlying dynamics
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Why using “consciousness” in psychotherapy? Insight, Metacognition and Self-Consciousness
Part of New ideas in psychology, 2023.
DOI for Why using “consciousness” in psychotherapy? Insight, Metacognition and Self-Consciousness Download full text (pdf) of Why using “consciousness” in psychotherapy? Insight, Metacognition and Self-Consciousness
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Conceptual conundrums for neuroscience
Part of Neuron, p. 608-609, 2023.
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Editorial: Digital biomarkers in testing the safety and efficacy of new drugs in mental health: A collaborative effort of patients, clinicians, researchers, and regulators
Part of Frontiers in Psychiatry, 2023.
DOI for Editorial: Digital biomarkers in testing the safety and efficacy of new drugs in mental health: A collaborative effort of patients, clinicians, researchers, and regulators Download full text (pdf) of Editorial: Digital biomarkers in testing the safety and efficacy of new drugs in mental health: A collaborative effort of patients, clinicians, researchers, and regulators
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Effects of a Pretend Play Intervention on Health-Related Quality of Life in Children With Cancer: A Swedish–German Study
Part of Journal of Pediatric Hematology/Oncology Nursing, p. 158-169, 2023.
DOI for Effects of a Pretend Play Intervention on Health-Related Quality of Life in Children With Cancer: A Swedish–German Study Download full text (pdf) of Effects of a Pretend Play Intervention on Health-Related Quality of Life in Children With Cancer: A Swedish–German Study
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Participant perspective on the recall-by-genotype research approach: a mixed-method embedded study with participants of the CHRIS study.
Part of European Journal of Human Genetics, 2023.
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Parent Perceptions of a Pretend Play Intervention for Their Children With Cancer
Part of Journal of Nursing Research, 2023.
DOI for Parent Perceptions of a Pretend Play Intervention for Their Children With Cancer Download full text (pdf) of Parent Perceptions of a Pretend Play Intervention for Their Children With Cancer
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Research Integrity and Hidden Value Conflicts
Part of Journal of Academic Ethics, p. 113-123, 2023.
DOI for Research Integrity and Hidden Value Conflicts Download full text (pdf) of Research Integrity and Hidden Value Conflicts
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Separation and not residency permit restores function in resignation syndrome: a retrospective cohort study
Part of European Child and Adolescent Psychiatry, p. 75-86, 2023.
DOI for Separation and not residency permit restores function in resignation syndrome: a retrospective cohort study Download full text (pdf) of Separation and not residency permit restores function in resignation syndrome: a retrospective cohort study
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YouTube as a source of information on clinical trials for paediatric cancer
Part of Information, Communication and Society, p. 716-729, 2023.
DOI for YouTube as a source of information on clinical trials for paediatric cancer Download full text (pdf) of YouTube as a source of information on clinical trials for paediatric cancer
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Nobeigums
Part of Medicīnas tiesības, p. 718-719, 2022.
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Ārstniecība cilvēka dzīves nogalē
Part of Medicīnas tiesības, p. 485-514, 2022.
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Pacienta datu aizsardzība
Part of Medicīnas tiesības, p. 258-300, 2022.
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Pacientu tiesības
Part of Medicīnas tiesības, p. 165-227, 2022.
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Ievads
Part of Medicīnas tiesības, p. 21-27, 2022.
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Eiropas Savienība un veselība
Part of Medicīnas tiesības, p. 69-98, 2022.
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Ārstniecības iestāžu darbības tiesiskie aspekti
Part of Medicīnas tiesības, p. 99-123, 2022.
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Personal autonomy: From practice to theory
Part of Theoria, p. 1063-1065, 2022.
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The need for a multi-disciplinary reflection about frailty and cognitive impairment in chronic kidney disease
Part of Nephrology, Dialysis and Transplantation, 2022.
DOI for The need for a multi-disciplinary reflection about frailty and cognitive impairment in chronic kidney disease Download full text (pdf) of The need for a multi-disciplinary reflection about frailty and cognitive impairment in chronic kidney disease
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Commissioned reports in Swedish healthcare governance – descriptive mapping and a content analysis
Part of BMC Health Services Research, 2022.
DOI for Commissioned reports in Swedish healthcare governance – descriptive mapping and a content analysis Download full text (pdf) of Commissioned reports in Swedish healthcare governance – descriptive mapping and a content analysis
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Preparing Preservice Teachers to Teach Academic Integrity and Ethics
Part of Ethics and Integrity in Teacher Education, p. 43-54, 2022.
DOI for Preparing Preservice Teachers to Teach Academic Integrity and Ethics
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Attitudes and values among the Swedish general public to using human embryonic stem cells for medical treatment
Part of BMC Medical Ethics, 2022.
DOI for Attitudes and values among the Swedish general public to using human embryonic stem cells for medical treatment Download full text (pdf) of Attitudes and values among the Swedish general public to using human embryonic stem cells for medical treatment
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Rawlsian reasoning about fairness at the end of life.
Part of BMJ Supportive & Palliative Care, 2022.
DOI for Rawlsian reasoning about fairness at the end of life.
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Health literacy and digital health information-seeking behavior - a cross-sectional study among highly educated Swedes
Part of BMC Public Health, 2022.
DOI for Health literacy and digital health information-seeking behavior - a cross-sectional study among highly educated Swedes Download full text (pdf) of Health literacy and digital health information-seeking behavior - a cross-sectional study among highly educated Swedes
Biobank and registry ethics & law
For many years, researchers at CRB have provided constructive advise on how to deal with ethical and legal aspects of research using human tissue material and personal data. We have collaborated with biomedical scientists and published our findings in peer reviewed journals. As a summary of this research we have compiled a list of publications with abstracts. We have grouped them thematically to help you find the ones you might be interested in reading. Our publications deal with ethical frameworks and policy, regulatory aspects of biobank and registry research, informed consent, ethical review, integrity concerns, trust, genetic testing, indicental findings, commercialization, public and patient perceptions, rare diseases, children & biobanks & genetics, and biobank studies.

Nursing Ethics & Ethics of Care
Nursing ethics is concerned with the moral dimensions of nursing practice while the ethics of care is a normative ethical theory. For many years CRB has developed these fields from different angles. We have used qualitative studies to describe and explore the kinds of ethical dilemmas nurses encounter in their day-to-day work and how they solve them. Other studies have investigated the role of ethical guidelines in the building of ethical competence in nursing practice and in priority setting. In this report, we provide a summary of our research.

