Publications from CRB

Preferences for preventive treatments for rheumatoid arthritis: discrete choice survey in the UK, Germany and Romania

Simons, Gwenda; Veldwijk, Jorien; Disantostefano, Rachael L; Englbrecht, Matthias et al.

Part of Rheumatology, 2022.

DOI for Preferences for preventive treatments for rheumatoid arthritis: discrete choice survey in the UK, Germany and Romania

What names for covert awareness?: A systematic review

Schnakers, Caroline; Bauer, Chase; Formisano, Rita; Noé, Enrique et al.

Part of Frontiers in Human Neuroscience, 2022.

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Augmenting Human Selves Through Artificial Agents - Lessons From the Brain

Northoff, Georg; Fraser, Maia; Griffiths, John; Pinotsis, Dimitris A. et al.

Part of Frontiers in Computational Neuroscience, 2022.

DOI for Augmenting Human Selves Through Artificial Agents - Lessons From the Brain Download full text (pdf) of Augmenting Human Selves Through Artificial Agents - Lessons From the Brain

Including a discussion forum in a web-based intervention on fertility and sexuality following cancer - Usage and content

Gottvall, Maria; Fagerkvist, Kristina; Lampic, Claudia; Wettergren, Lena

Part of Internet Interventions, 2022.

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Clinical relevance and translational impact of reduced penetrance in genetic movement disorders

Heinzel, Sebastian; Mascalzoni, Deborah; Bäumer, Tobias; Berg, Daniela et al.

Part of Medizinische Genetik, p. 151-156, 2022.

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Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research

Lampa, Elin; Sarkadi, Anna; Osman, Fatumo; Kihlbom, Ulrik et al.

Part of International Journal of Qualitative Studies on Health and Well-being, 2022.

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Fest och fasta.: Om balans och etiska avvägningar vid val av mat.

Höglund, Anna T

Part of Signum, p. 27-32, 2022.

The Rights of Children of Prisoners During a Pandemic: A Case for Early Release of Imprisoned Parents?

Bülow, William

Part of The Global and Social Consequences of the COVID-19 Pandemic: An Ethical and Philosophical Reflection, p. 199-214, 2022.

Dignity in bodily care at the end of life in a nursing home: an ethnographic study

Holmberg, Bodil; Godskesen, Tove

Part of BMC Geriatrics, 2022.

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Barriers to and facilitators of ethical encounters at the end of life in a nursing home: an ethnographic study

Holmberg, Bodil; Godskesen, Tove

Part of BMC Palliative Care, 2022.

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Preference Variation: Where Does Health Risk Attitude Come Into the Equation?

Huls, Samare P.I.; Veldwijk, Jorien; Swait, Joffre D.; Viberg Johansson, Jennifer et al.

Part of Value in Health, 2022.

DOI for Preference Variation: Where Does Health Risk Attitude Come Into the Equation? Download full text (pdf) of Preference Variation: Where Does Health Risk Attitude Come Into the Equation?

Socio-cultural determinants of antibiotic resistance: a qualitative study of Greeks’ attitudes, perceptions and values

Papadimou, Dimitrios; Malmqvist, Erik; Ancillotti, Mirko

Part of BMC Public Health, 2022.

DOI for Socio-cultural determinants of antibiotic resistance: a qualitative study of Greeks’ attitudes, perceptions and values Download full text (pdf) of Socio-cultural determinants of antibiotic resistance: a qualitative study of Greeks’ attitudes, perceptions and values

Networked reports: Commissioning and production of expert reports on Swedish health care governance

Svallfors, Stefan; Falkenstrom, Erica; Hammar, Corrie; Höglund, Anna T

Part of Politics and Policy, p. 580-597, 2022.

DOI for Networked reports: Commissioning and production of expert reports on Swedish health care governance Download full text (pdf) of Networked reports: Commissioning and production of expert reports on Swedish health care governance

Using Ricoeur's notions on narrative interpretation as a resource in supporting person-centredness in health and social care

Josephsson, Staffan; Ohlen, Joakim; Mondaca, Margarita; Guerrero, Manuel et al.

Part of Nursing Philosophy, 2022.

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Differential and shared genetic effects on kidney function between diabetic and non-diabetic individuals

Winkler, Thomas W.; Rasheed, Humaira; Teumer, Alexander; Gorski, Mathias et al.

Part of Communications Biology, 2022.

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Just try it: Preliminary results of a six-month therapy for borderline personality disorder

Martin, Sylvia; Del-Monte, Jonathan

Part of Personality and Mental Health, 2022.

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The RD-Connect Genome-Phenome Analysis Platform: Accelerating diagnosis, research, and gene discovery for rare diseases

Laurie, Steven; Piscia, Davide; Matalonga, Leslie; Corvo, Alberto et al.

Part of Human Mutation, p. 717-733, 2022.

DOI for The RD-Connect Genome-Phenome Analysis Platform: Accelerating diagnosis, research, and gene discovery for rare diseases Download full text (pdf) of The RD-Connect Genome-Phenome Analysis Platform: Accelerating diagnosis, research, and gene discovery for rare diseases

Making space for patients’ preferences in precision medicine: a qualitative study exploring perspectives of patients with rheumatoid arthritis

Schölin Bywall, Karin; Viberg, Jennifer; Erlandsson, Inger; Heidenvall, Marie et al.

Part of BMJ Open, p. e058303-e058303, 2022.

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Ethical Analysis of Egypt's Law Regulating Clinical Research

Matar, Amal; Silverman, Henry

Part of Journal of Empirical Research on Human Research Ethics, 2022.

Artificial Intelligence and Imperceptible Governance via Opinion Formation: Reflections on Power and Transparency from a Cross-Disciplinary Encounter

Eddebo, Johan

Part of Law, AI and Digitalization, 2022.

What ethical approaches are used by scientists when sharing health data?: An interview study

Viberg, Jennifer; Bentzen, Heidi Beate; Mascalzoni, Deborah

Part of BMC Medical Ethics, 2022.

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SLC38A10 knockout mice display a decreased body weight and an increased risk-taking behavior in the open field test

Lindberg, Frida A.; Nordin, Karin; Fredriksson, Robert

Part of Frontiers in Behavioral Neuroscience, 2022.

DOI for SLC38A10 knockout mice display a decreased body weight and an increased risk-taking behavior in the open field test Download full text (pdf) of SLC38A10 knockout mice display a decreased body weight and an increased risk-taking behavior in the open field test

American and European Guidelines on Disorders of Consciousness: Ethical Challenges of Implementation

Farisco, Michele; Salles, Arleen

Part of The journal of head trauma rehabilitation, p. 258-262, 2022.

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Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research

Staunton, Ciara; Slokenberga, Santa; Parziale, Andrea; Mascalzoni, Deborah

Part of Frontiers in Genetics, 2022.

DOI for Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research Download full text (pdf) of Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research

Indicators and criteria of consciousness: ethical implications for the care of behaviourally unresponsive patients

Farisco, Michele; Pennartz, Cyriel; Annen, Jitka; Cecconi, Benedetta et al.

Part of BMC Medical Ethics, 2022.

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Perceptions on using surplus embryos for the treatment of Parkinson’s disease among the Swedish population: a qualitative study

Grauman, Åsa; Drevin, Jennifer

Part of BMC Medical Ethics, 2022.

DOI for Perceptions on using surplus embryos for the treatment of Parkinson’s disease among the Swedish population: a qualitative study Download full text (pdf) of Perceptions on using surplus embryos for the treatment of Parkinson’s disease among the Swedish population: a qualitative study

Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations

Simons, Gwenda; Caplan, Joshua; DiSantostefano, Rachael L.; Veldwijk, Jorien et al.

Part of Arthritis Research & Therapy, 2022.

DOI for Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations Download full text (pdf) of Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations

The Status Quo Problem and the Role of Consumers Against Antimicrobial Resistance

Ancillotti, Mirko; Nilsson, Elin; Nordvall, Anna-Carin; Oljans, Emma

Part of Frontiers in Sustainable Food Systems, 2022.

DOI for The Status Quo Problem and the Role of Consumers Against Antimicrobial Resistance Download full text (pdf) of The Status Quo Problem and the Role of Consumers Against Antimicrobial Resistance

Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries

Milne, Richard; Morley, Katherine I.; Almarri, Mohamed A.; Atutornu, Jerome et al.

Part of Genetics in Medicine, p. 1120-1129, 2022.

DOI for Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries Download full text 1 (pdf) of Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries Download full text 2 (pdf) of Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries

On the Contribution of Neuroethics to the Ethics and Regulation of Artificial Intelligence

Farisco, Michele; Evers, Kathinka; Salles, Arleen

Part of Neuroethics, 2022.

DOI for On the Contribution of Neuroethics to the Ethics and Regulation of Artificial Intelligence Download full text (pdf) of On the Contribution of Neuroethics to the Ethics and Regulation of Artificial Intelligence

Public perceptions of myocardial infarction: Do illness perceptions predict preferences for health check results

Grauman, Åsa; Viberg, Jennifer; Falahee, Marie; Veldwijk, Jorien

Part of Preventive Medicine Reports, p. 101683-101683, 2022.

DOI for Public perceptions of myocardial infarction: Do illness perceptions predict preferences for health check results Download full text (pdf) of Public perceptions of myocardial infarction: Do illness perceptions predict preferences for health check results

What CVD risk factors predict self-perceived risk of having a myocardial infarction?: A cross-sectional study

Grauman, Åsa; Byberg, Liisa; Veldwijk, Jorien; James, Stefan

Part of International Journal of Cardiology Cardiovascular Risk and Prevention, 2022.

DOI for What CVD risk factors predict self-perceived risk of having a myocardial infarction?: A cross-sectional study Download full text (pdf) of What CVD risk factors predict self-perceived risk of having a myocardial infarction?: A cross-sectional study

Functional capacity vs side effects: treatment attributes to consider when individualising treatment for patients with rheumatoid arthritis

Schölin Bywall, Karin; Esbensen, Bente Appel; Lason, Marta; Heidenvall, Marie et al.

Part of Clinical Rheumatology, p. 695-704, 2022.

DOI for Functional capacity vs side effects: treatment attributes to consider when individualising treatment for patients with rheumatoid arthritis Download full text (pdf) of Functional capacity vs side effects: treatment attributes to consider when individualising treatment for patients with rheumatoid arthritis

Offentlighet, sekretess och dataskydd - en introduktion

Zetterström, Stefan; Lind, Anna-Sara; Dahlqvist, Andreas

Liber AB, 2021.

Variable Determinism in Social Applications: Translating Science to Society

Evers, Kathinka

Part of Intellectica, p. 73-89, 2021.

Maten, moralen och våra val. Recension av "Matens filosofi" av Henrik Lagerlund.

Höglund, Anna T

Part of Signum, p. 58-59, 2021.

Comparing impulsivity in borderline personality, schizophrenia and obsessional-compulsive disorders: Who is ahead?

Martin, Sylvia; Graziani, Pierluigi; Del-Monte, Jonathan

Part of Journal of Clinical Psychology, p. 1732-1744, 2021.

DOI for Comparing impulsivity in borderline personality, schizophrenia and obsessional-compulsive disorders: Who is ahead?

Insight’s level in borderline personality disorder, questioning consciousness

Martin, Sylvia; Graziani, Pierluigi; Del-Monte, Jonathan

Part of Journal of Affective Disorders Reports, p. 100045-, 2021.

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Consumer Behaviour and antibiotic resistance

Nordvall, Anna-Carin; Ancillotti, Mirko

Part of Managing Antimicrobial Resistance Through Behaviour Change, p. 16-19, 2021.

Consumer behaviour and antibiotic resistance

Ancillotti, Mirko; Oljans, Emma; Hassan, Tazrin; Horikx, Lotte et al.

Part of Managing Antimicrobial Resistance Through Behavior Change, March 2021, p. 13-14, 2021.

Italian public's views on sharing genetic information and medical information: findings from the ‘Your DNA, Your Say’ study

Romano, Virginia; Milne, Richard; Mascalzoni, Deborah

Part of Wellcome Open Research, 2021.

DOI for Italian public's views on sharing genetic information and medical information: findings from the ‘Your DNA, Your Say’ study Download full text (pdf) of Italian public's views on sharing genetic information and medical information: findings from the ‘Your DNA, Your Say’ study

Governance of Access in Biobanking: The Case of Telethon Network of Genetic Biobanks

Iacomussi, Sofia; Casareto, Lorena; Locatelli, Manuela; Wang, Chiuhui Mary et al.

Part of Biopreservation and Biobanking, p. 483-492, 2021.

DOI for Governance of Access in Biobanking: The Case of Telethon Network of Genetic Biobanks Download full text (pdf) of Governance of Access in Biobanking: The Case of Telethon Network of Genetic Biobanks

Prospective epidemiological, molecular, and genetic characterization of a novel coronavirus disease in the Val Venosta/Vinschgau: the CHRIS COVID-19 study protocol

Pattaro, Cristian; Barbieri, Giulia; Foco, Luisa; Weichenberger, Christian X. et al.

Part of Pathogens and Global Health, p. 128-136, 2021.

DOI for Prospective epidemiological, molecular, and genetic characterization of a novel coronavirus disease in the Val Venosta/Vinschgau: the CHRIS COVID-19 study protocol Download full text (pdf) of Prospective epidemiological, molecular, and genetic characterization of a novel coronavirus disease in the Val Venosta/Vinschgau: the CHRIS COVID-19 study protocol

Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants

Staunton, Ciara; Kösters, Maria; Pramstaller, Peter P.; Mascalzoni, Deborah

Part of Journal of Community Genetics, p. 577-592, 2021.

DOI for Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants Download full text (pdf) of Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants

Humanness: Some neuroethical reflections

Salles, Arleen

Part of Regulating Neuroscience: Transnational legal challenges, p. 1-179, 2021.

DOI for Humanness: Some neuroethical reflections

Epistemic Challenges of Digital Twins & Virtual Brains: Perspectives from Fundamental Neuroethics

Evers, Kathinka; Salles, Arleen

Part of SCIO: Revista de Filosofía, p. 27-53, 2021.

DOI for Epistemic Challenges of Digital Twins & Virtual Brains: Perspectives from Fundamental Neuroethics Download full text (pdf) of Epistemic Challenges of Digital Twins & Virtual Brains: Perspectives from Fundamental Neuroethics

From Responsible Research and Innovation to responsibility by design

Stahl, Bernd Carsten; Akintoye, Simisola; Bitsch, Lise; Bringedal, Berit et al.

Part of Journal of Responsible Innovation, p. 175-198, 2021.

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Genetic and Metabolic Determinants of Atrial Fibrillation in a General Population Sample: The CHRIS Study

Emmert, David B.; Vukovic, Vladimir; Dordevic, Nikola; Weichenberger, Christian X. et al.

Part of Biomolecules, 2021.

DOI for Genetic and Metabolic Determinants of Atrial Fibrillation in a General Population Sample: The CHRIS Study Download full text (pdf) of Genetic and Metabolic Determinants of Atrial Fibrillation in a General Population Sample: The CHRIS Study

SIENNA D6.3: Methods for translating ethical analysis into instruments for the ethical development and deployment of emerging technologies

Brey, Philip; Dainow, Brandt; Erden, Yasemin J.; Matar, Amal et al.

2021.

DOI for SIENNA D6.3: Methods for translating ethical analysis into instruments for the ethical development and deployment of emerging technologies

SIENNA D5.2: An international code of conduct for data sharing in genomics

Matar, Amal

2021.

DOI for SIENNA D5.2: An international code of conduct for data sharing in genomics