Publications from CRB
We publish the results of our research in international peer-reviewed scientific journals and in books. Among other things, our research deals with bioethical issues, biobanks and registries, clinical ethics, neuroethics and philosophy, risk information, nursing ethics, ethics of care and research ethics and law.
More publication lists are avaliable on our staff pages. You can also download our reports, and discuss on the Ethics Blog.
Recent publications
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International Legal Approaches to Neurosurgery for Psychiatric Disorders
Part of Frontiers in Human Neuroscience, 2021.
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Sal IX, Universitetshuset, Biskopsgatan 3, Uppsala 2021-03-15 09:00
Ancillotti, Mirko
Antibiotic Resistance: A Multimethod Investigation of Individual Responsibility and Behaviour
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D5.6: Recommendations for the enhancement of the existing legal frameworks for genomics, human enhancement, and AI and robotics
2020.
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Genetiska interventioner inom och utanför hälso- och sjukvården
Part of Medicinsk rätt, p. 185-200, 2020.
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Vid vägs ände: några nutida och framtida utmaningar för den medicinska rätten
Part of Medicinsk rätt, p. 277-284, 2020.
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The case for open science: rare diseases
Part of JAMIA Open, p. 472-486, 2020.
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Patient preferences on rheumatoid arthritis second-line treatment: a discrete choice experiment of Swedish patients
Part of Arthritis Research & Therapy, 2020.
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An Effort Worth Making: A Qualitative Study of How Swedes Respond to Antibiotic Resistance
Part of Public Health Ethics, 2020.
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COVID-19 and misinformation: Is censorship of social media a remedy to the spread of medical misinformation?
Part of EMBO Reports, 2020.
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Preferences regarding antibiotic treatment and the role of antibiotic resistance: a discrete choice experiment
Part of International Journal of Antimicrobial Agents, 2020.
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Spatiotemporal neuroscience – what is it and why we need it
Part of Physics of Life Reviews, p. 78-87, 2020.
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The Culture-Bound Brain: Epigenetic proaction revisited
Part of Theoria, 2020.
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Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?
Part of American Journal of Human Genetics, p. 743-752, 2020.
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Allmän rösträtt 30 år?: En tvärvetenskaplig blick på rätten till politiskt inflytande för barn, funktionshindrade och mottagare av försörjningsstöd
Part of Nordisk socialrättslig tidskrift, 2020.
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An overview of critical decision-points in the medical product lifecycle: Where to include patient preference information in the decision-making process?
Part of Health Policy, p. 1325-1332, 2020.
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The ethics of DNR-decisions in oncology and hematology care: A qualitative study
Part of BMC Medical Ethics, 2020.
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Of Ethical Frameworks and Neuroethics in Big Neuroscience Projects: A View from the HBP
Part of AJOB Neuroscience, p. 167-175, 2020.
DOI Uploaded full-text (pdf) Uploaded full-text (pdf) To DiVA
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Ethical and Social Aspectos of Neurorobotics
Part of Science and Engineering Ethics, 2020.
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Towards Establishing Criteria for the Ethical Analysisof Artificial Intelligence
Part of Science and Engineering Ethics, 2020.
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Responsible Research and Innovation & Digital Inclusiveness during Covid-19 Crisis in the Human Brain Project (HBP)
Part of Journal of Responsible Technology, 2020.
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Patients' Experiences of Telehealth in Palliative Home Care: Scoping Review
Part of Journal of Medical Internet Research, 2020.
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Are cancer patients better off if they participate in clinical trials?: A mixed methods study
Part of BMC Cancer, 2020.
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Autonomous decisions by couples in reproductive care
Part of BMC Medical Ethics, 2020.
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Ethical issues related to research on genome editing in human embryos
Part of Computational and Structural Biotechnology Journal, p. 887-896, 2020.
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Willingness to donate genomic and other medical data: results from Germany
Part of European Journal of Human Genetics, p. 1000-1009, 2020.
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What shall we eat?: An ethical framework for well-grounded food choices
Part of Journal of Agricultural and Environmental Ethics, p. 283-297, 2020.
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Germline Genome Editing Research: What Are Gamete Donors (Not) Informed About in Consent Forms?
Part of The CRISPR Journal, p. 52-63, 2020.
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Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data
Part of European Journal of Human Genetics, p. 424-434, 2020.
Biobank and registry ethics & law
For many years, researchers at CRB have provided constructive advise on how to deal with ethical and legal aspects of research using human tissue material and personal data. We have collaborated with biomedical scientists and published our findings in peer reviewed journals. As a summary of this research we have compiled a list of publications with abstracts. We have grouped them thematically to help you find the ones you might be interested in reading. Our publications deal with ethical frameworks and policy, regulatory aspects of biobank and registry research, informed consent, ethical review, integrity concerns, trust, genetic testing, indicental findings, commercialization, public and patient perceptions, rare diseases, children & biobanks & genetics, and biobank studies.

Nursing Ethics & Ethics of Care
Nursing ethics is concerned with the moral dimensions of nursing practice while the ethics of care is a normative ethical theory. For many years CRB has developed these fields from different angles. We have used qualitative studies to describe and explore the kinds of ethical dilemmas nurses encounter in their day-to-day work and how they solve them. Other studies have investigated the role of ethical guidelines in the building of ethical competence in nursing practice and in priority setting. In this report, we provide a summary of our research.

Neuroethics & Philosophy of the Brain
The CRB neuroethics research team is an international, multi-disciplinary group. Our backgrounds allow us to approach these issues from theoretical, philosophical, social, bio-political and clinical perspectives. We collaborate closely with neuroscientists to understand the ethical and philosophical questions that neuroscience brings. In this report, we provide a summary of our research. The report was updated in November 2016. We are planning an update in the autumn 2020.
