Publications from CRB
We publish the results of our research in international peer-reviewed scientific journals and in books. Among other things, our research deals with bioethical issues, biobanks and registries, clinical ethics, neuroethics and philosophy, risk information, nursing ethics, ethics of care and research ethics and law.
More publication lists are avaliable on our staff pages. You can also download recent policy briefs from CRB, or read about our research on the Ethics Blog.
Recent publications
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Ethical Analysis of Egypt's Law Regulating Clinical Research
Part of Journal of Empirical Research on Human Research Ethics, 2022.
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Artificial Intelligence and Imperceptible Governance via Opinion Formation: Reflections on Power and Transparency from a Cross-Disciplinary Encounter
Part of Law, AI and Digitalization, 2022.
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What ethical approaches are used by scientists when sharing health data?: An interview study
Part of BMC Medical Ethics, 2022.
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American and European Guidelines on Disorders of Consciousness: Ethical Challenges of Implementation
Part of The journal of head trauma rehabilitation, 2022.
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Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research
Part of Frontiers in Genetics, 2022.
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Indicators and criteria of consciousness: ethical implications for the care of behaviourally unresponsive patients
Part of BMC Medical Ethics, 2022.
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Perceptions on using surplus embryos for the treatment of Parkinson’s disease among the Swedish population: a qualitative study
Part of BMC Medical Ethics, 2022.
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Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries
Part of Genetics in Medicine, 2022.
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Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations
Part of Arthritis Research & Therapy, 2022.
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The Status Quo Problem and the Role of Consumers Against Antimicrobial Resistance
Part of Frontiers in Sustainable Food Systems, 2022.
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On the Contribution of Neuroethics to the Ethics and Regulation of Artificial Intelligence
Part of Neuroethics, 2022.
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Public perceptions of myocardial infarction: Do illness perceptions predict preferences for health check results
Part of Preventive Medicine Reports, p. 101683-101683, 2022.
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Consumer Behaviour and antibiotic resistance
Part of Managing Antimicrobial Resistance Through Behaviour Change, p. 16-19, 2021.
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Consumer behaviour and antibiotic resistance
Part of Managing Antimicrobial Resistance Through Behavior Change, March 2021, p. 13-14, 2021.
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Italian public's views on sharing genetic information and medical information: findings from the ‘Your DNA, Your Say’ study
Part of Wellcome Open Research, 2021.
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Governance of Access in Biobanking: The Case of Telethon Network of Genetic Biobanks
Part of Biopreservation and Biobanking, p. 483-492, 2021.
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Prospective epidemiological, molecular, and genetic characterization of a novel coronavirus disease in the Val Venosta/Vinschgau: the CHRIS COVID-19 study protocol
Part of Pathogens and Global Health, p. 128-136, 2021.
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Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants
Part of Journal of Community Genetics, p. 577-592, 2021.
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Epistemic Challenges of Digital Twins & Virtual Brains: Perspectives from Fundamental Neuroethics
Part of SCIO: Revista de Filosofía, p. 27-53, 2021.
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From Responsible Research and Innovation to responsibility by design
Part of Journal of Responsible Innovation, p. 175-198, 2021.
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Genetic and Metabolic Determinants of Atrial Fibrillation in a General Population Sample: The CHRIS Study
Part of Biomolecules, 2021.
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A survey of nursing teachers’ awareness of discrimination and inequity in telephone nursing care
Part of BMC Nursing, 2021.
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Knowledge versus Education in the Margins: An Indigenous and Feminist Critique of Education
Part of Education Sciences, 2021.
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Preferences of the Public for Sharing Health Data: Discrete Choice Experiment
Part of JMIR Medical Informatics, 2021.
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Communicating Test Results from a General Health Check: Preferences from a Discrete Choice Experiment Survey
Part of Patient, p. 649-660, 2021.
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Balancing scientific interests and the rights of participants in designing a recall by genotype study
Part of European Journal of Human Genetics, p. 1146-1157, 2021.
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Prevalence and determinants of serum antibodies to SARS-CoV-2 in the general population of the Gardena valley
Part of Epidemiology and Infection, 2021.
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From Responsible Research and Innovation to responsibility by design
Part of Journal of Responsible Innovation, 2021.
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Deterring cheating using a complex assessment design: A case study
Part of The Literacy Trek. Journal of literacy and language studies, p. 55-77, 2021.
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Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries
Part of Genome Medicine, 2021.
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Taking into Account Patient Preferences: A Consensus Study on the Assessment of Psychological Dimensions Within Patient Preference Studies
Part of Patient Preference and Adherence, p. 1331-1345, 2021.
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The dynamic consent of the Cooperative Health Research in South Tyrol (CHRIS) study: broad aim within specific oversight and communication
Part of BIOLAW JOURNAL-RIVISTA DI BIODIRITTO, p. 277-287, 2021.
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Initiating count down-gamification of academic integrity
Part of International Journal for Educational Integrity, 2021.
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Routine Oxygen Therapy Does Not Improve Health-Related Quality of Life in Patients With Acute Myocardial Infarction-Insights From the Randomized DETO2X-AMI Trial
Part of Frontiers in Cardiovascular Medicine, 2021.
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Treatment preferences for preventive interventions for rheumatoid arthritis: protocol of a mixed methods case study for the Innovative Medicines Initiative PREFER project
Part of BMJ Open, 2021.
Biobank and registry ethics & law
For many years, researchers at CRB have provided constructive advise on how to deal with ethical and legal aspects of research using human tissue material and personal data. We have collaborated with biomedical scientists and published our findings in peer reviewed journals. As a summary of this research we have compiled a list of publications with abstracts. We have grouped them thematically to help you find the ones you might be interested in reading. Our publications deal with ethical frameworks and policy, regulatory aspects of biobank and registry research, informed consent, ethical review, integrity concerns, trust, genetic testing, indicental findings, commercialization, public and patient perceptions, rare diseases, children & biobanks & genetics, and biobank studies.

Nursing Ethics & Ethics of Care
Nursing ethics is concerned with the moral dimensions of nursing practice while the ethics of care is a normative ethical theory. For many years CRB has developed these fields from different angles. We have used qualitative studies to describe and explore the kinds of ethical dilemmas nurses encounter in their day-to-day work and how they solve them. Other studies have investigated the role of ethical guidelines in the building of ethical competence in nursing practice and in priority setting. In this report, we provide a summary of our research.

Neuroethics & Philosophy of the Brain
The CRB neuroethics research team is an international, multi-disciplinary group. Our backgrounds allow us to approach these issues from theoretical, philosophical, social, bio-political and clinical perspectives. We collaborate closely with neuroscientists to understand the ethical and philosophical questions that neuroscience brings. In this report, we provide a summary of our research. The report was updated in November 2016. We are planning an update in the autumn 2020.
