Publications from CRB

Debating Embryonic Stem Cell Research: Handling Moral Concerns More Gently

Segerdahl, Pär

Part of Ethical Inquiries after Wittgenstein, p. 173-188, 2022.

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Italians locked down: people's responses to early COVID-19 pandemic public health measures

Romano, Virginia; Ancillotti, Mirko; Mascalzoni, Deborah; Biasiotto, Roberta

Part of Humanities and Social Sciences Communications, 2022.

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Preferences for preventive treatments for rheumatoid arthritis: discrete choice survey in the UK, Germany and Romania

Simons, Gwenda; Veldwijk, Jorien; Disantostefano, Rachael L; Englbrecht, Matthias et al.

Part of Rheumatology, 2022.

DOI for Preferences for preventive treatments for rheumatoid arthritis: discrete choice survey in the UK, Germany and Romania

What names for covert awareness?: A systematic review

Schnakers, Caroline; Bauer, Chase; Formisano, Rita; Noé, Enrique et al.

Part of Frontiers in Human Neuroscience, 2022.

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Augmenting Human Selves Through Artificial Agents - Lessons From the Brain

Northoff, Georg; Fraser, Maia; Griffiths, John; Pinotsis, Dimitris A. et al.

Part of Frontiers in Computational Neuroscience, 2022.

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Including a discussion forum in a web-based intervention on fertility and sexuality following cancer - Usage and content

Gottvall, Maria; Fagerkvist, Kristina; Lampic, Claudia; Wettergren, Lena

Part of Internet Interventions, 2022.

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Clinical relevance and translational impact of reduced penetrance in genetic movement disorders

Heinzel, Sebastian; Mascalzoni, Deborah; Bäumer, Tobias; Berg, Daniela et al.

Part of Medizinische Genetik, p. 151-156, 2022.

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Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research

Lampa, Elin; Sarkadi, Anna; Osman, Fatumo; Kihlbom, Ulrik et al.

Part of International Journal of Qualitative Studies on Health and Well-being, 2022.

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Fest och fasta.: Om balans och etiska avvägningar vid val av mat.

Höglund, Anna T

Part of Signum, p. 27-32, 2022.

The Rights of Children of Prisoners During a Pandemic: A Case for Early Release of Imprisoned Parents?

Bülow, William

Part of The Global and Social Consequences of the COVID-19 Pandemic: An Ethical and Philosophical Reflection, p. 199-214, 2022.

Dignity in bodily care at the end of life in a nursing home: an ethnographic study

Holmberg, Bodil; Godskesen, Tove

Part of BMC Geriatrics, 2022.

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Barriers to and facilitators of ethical encounters at the end of life in a nursing home: an ethnographic study

Holmberg, Bodil; Godskesen, Tove

Part of BMC Palliative Care, 2022.

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Preference Variation: Where Does Health Risk Attitude Come Into the Equation?

Huls, Samare P.I.; Veldwijk, Jorien; Swait, Joffre D.; Viberg Johansson, Jennifer et al.

Part of Value in Health, 2022.

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Socio-cultural determinants of antibiotic resistance: a qualitative study of Greeks’ attitudes, perceptions and values

Papadimou, Dimitrios; Malmqvist, Erik; Ancillotti, Mirko

Part of BMC Public Health, 2022.

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Networked reports: Commissioning and production of expert reports on Swedish health care governance

Svallfors, Stefan; Falkenstrom, Erica; Hammar, Corrie; Höglund, Anna T

Part of Politics and Policy, p. 580-597, 2022.

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Using Ricoeur's notions on narrative interpretation as a resource in supporting person-centredness in health and social care

Josephsson, Staffan; Ohlen, Joakim; Mondaca, Margarita; Guerrero, Manuel et al.

Part of Nursing Philosophy, 2022.

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Differential and shared genetic effects on kidney function between diabetic and non-diabetic individuals

Winkler, Thomas W.; Rasheed, Humaira; Teumer, Alexander; Gorski, Mathias et al.

Part of Communications Biology, 2022.

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Just try it: Preliminary results of a six-month therapy for borderline personality disorder

Martin, Sylvia; Del-Monte, Jonathan

Part of Personality and Mental Health, 2022.

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The RD-Connect Genome-Phenome Analysis Platform: Accelerating diagnosis, research, and gene discovery for rare diseases

Laurie, Steven; Piscia, Davide; Matalonga, Leslie; Corvo, Alberto et al.

Part of Human Mutation, p. 717-733, 2022.

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Making space for patients’ preferences in precision medicine: a qualitative study exploring perspectives of patients with rheumatoid arthritis

Schölin Bywall, Karin; Viberg, Jennifer; Erlandsson, Inger; Heidenvall, Marie et al.

Part of BMJ Open, p. e058303-e058303, 2022.

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Ethical Analysis of Egypt's Law Regulating Clinical Research

Matar, Amal; Silverman, Henry

Part of Journal of Empirical Research on Human Research Ethics, 2022.

Artificial Intelligence and Imperceptible Governance via Opinion Formation: Reflections on Power and Transparency from a Cross-Disciplinary Encounter

Eddebo, Johan

Part of Law, AI and Digitalization, 2022.

What ethical approaches are used by scientists when sharing health data?: An interview study

Viberg, Jennifer; Bentzen, Heidi Beate; Mascalzoni, Deborah

Part of BMC Medical Ethics, 2022.

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SLC38A10 knockout mice display a decreased body weight and an increased risk-taking behavior in the open field test

Lindberg, Frida A.; Nordin, Karin; Fredriksson, Robert

Part of Frontiers in Behavioral Neuroscience, 2022.

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American and European Guidelines on Disorders of Consciousness: Ethical Challenges of Implementation

Farisco, Michele; Salles, Arleen

Part of The journal of head trauma rehabilitation, p. 258-262, 2022.

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Individual Virtues and Structures of Virtue in Public Health

Nihlén Fahlquist, Jessica

Part of Public Health Ethics, p. 11-15, 2022.

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Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research

Staunton, Ciara; Slokenberga, Santa; Parziale, Andrea; Mascalzoni, Deborah

Part of Frontiers in Genetics, 2022.

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Indicators and criteria of consciousness: ethical implications for the care of behaviourally unresponsive patients

Farisco, Michele; Pennartz, Cyriel; Annen, Jitka; Cecconi, Benedetta et al.

Part of BMC Medical Ethics, 2022.

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Perceptions on using surplus embryos for the treatment of Parkinson’s disease among the Swedish population: a qualitative study

Grauman, Åsa; Drevin, Jennifer

Part of BMC Medical Ethics, 2022.

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Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations

Simons, Gwenda; Caplan, Joshua; DiSantostefano, Rachael L.; Veldwijk, Jorien et al.

Part of Arthritis Research & Therapy, 2022.

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Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries

Milne, Richard; Morley, Katherine I.; Almarri, Mohamed A.; Atutornu, Jerome et al.

Part of Genetics in Medicine, p. 1120-1129, 2022.

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The Status Quo Problem and the Role of Consumers Against Antimicrobial Resistance

Ancillotti, Mirko; Nilsson, Elin; Nordvall, Anna-Carin; Oljans, Emma

Part of Frontiers in Sustainable Food Systems, 2022.

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On the Contribution of Neuroethics to the Ethics and Regulation of Artificial Intelligence

Farisco, Michele; Evers, Kathinka; Salles, Arleen

Part of Neuroethics, 2022.

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Public perceptions of myocardial infarction: Do illness perceptions predict preferences for health check results

Grauman, Åsa; Viberg, Jennifer; Falahee, Marie; Veldwijk, Jorien

Part of Preventive Medicine Reports, p. 101683-101683, 2022.

DOI for Public perceptions of myocardial infarction: Do illness perceptions predict preferences for health check results Download full text (pdf) of Public perceptions of myocardial infarction: Do illness perceptions predict preferences for health check results

What CVD risk factors predict self-perceived risk of having a myocardial infarction?: A cross-sectional study

Grauman, Åsa; Byberg, Liisa; Veldwijk, Jorien; James, Stefan

Part of International Journal of Cardiology Cardiovascular Risk and Prevention, 2022.

DOI for What CVD risk factors predict self-perceived risk of having a myocardial infarction?: A cross-sectional study Download full text (pdf) of What CVD risk factors predict self-perceived risk of having a myocardial infarction?: A cross-sectional study

Functional capacity vs side effects: treatment attributes to consider when individualising treatment for patients with rheumatoid arthritis

Schölin Bywall, Karin; Esbensen, Bente Appel; Lason, Marta; Heidenvall, Marie et al.

Part of Clinical Rheumatology, p. 695-704, 2022.

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Offentlighet, sekretess och dataskydd - en introduktion

Zetterström, Stefan; Lind, Anna-Sara; Dahlqvist, Andreas

Liber AB, 2021.

Variable Determinism in Social Applications: Translating Science to Society

Evers, Kathinka

Part of Intellectica, p. 73-89, 2021.

Maten, moralen och våra val. Recension av "Matens filosofi" av Henrik Lagerlund.

Höglund, Anna T

Part of Signum, p. 58-59, 2021.

Comparing impulsivity in borderline personality, schizophrenia and obsessional-compulsive disorders: Who is ahead?

Martin, Sylvia; Graziani, Pierluigi; Del-Monte, Jonathan

Part of Journal of Clinical Psychology, p. 1732-1744, 2021.

DOI for Comparing impulsivity in borderline personality, schizophrenia and obsessional-compulsive disorders: Who is ahead?

Insight’s level in borderline personality disorder, questioning consciousness

Martin, Sylvia; Graziani, Pierluigi; Del-Monte, Jonathan

Part of Journal of Affective Disorders Reports, p. 100045-, 2021.

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Consumer Behaviour and antibiotic resistance

Nordvall, Anna-Carin; Ancillotti, Mirko

Part of Managing Antimicrobial Resistance Through Behaviour Change, p. 16-19, 2021.

Consumer behaviour and antibiotic resistance

Ancillotti, Mirko; Oljans, Emma; Hassan, Tazrin; Horikx, Lotte et al.

Part of Managing Antimicrobial Resistance Through Behavior Change, March 2021, p. 13-14, 2021.

Italian public's views on sharing genetic information and medical information: findings from the ‘Your DNA, Your Say’ study

Romano, Virginia; Milne, Richard; Mascalzoni, Deborah

Part of Wellcome Open Research, 2021.

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Governance of Access in Biobanking: The Case of Telethon Network of Genetic Biobanks

Iacomussi, Sofia; Casareto, Lorena; Locatelli, Manuela; Wang, Chiuhui Mary et al.

Part of Biopreservation and Biobanking, p. 483-492, 2021.

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Prospective epidemiological, molecular, and genetic characterization of a novel coronavirus disease in the Val Venosta/Vinschgau: the CHRIS COVID-19 study protocol

Pattaro, Cristian; Barbieri, Giulia; Foco, Luisa; Weichenberger, Christian X. et al.

Part of Pathogens and Global Health, p. 128-136, 2021.

DOI for Prospective epidemiological, molecular, and genetic characterization of a novel coronavirus disease in the Val Venosta/Vinschgau: the CHRIS COVID-19 study protocol Download full text (pdf) of Prospective epidemiological, molecular, and genetic characterization of a novel coronavirus disease in the Val Venosta/Vinschgau: the CHRIS COVID-19 study protocol

Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants

Staunton, Ciara; Kösters, Maria; Pramstaller, Peter P.; Mascalzoni, Deborah

Part of Journal of Community Genetics, p. 577-592, 2021.

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Humanness: Some neuroethical reflections

Salles, Arleen

Part of Regulating Neuroscience: Transnational legal challenges, p. 1-179, 2021.

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Epistemic Challenges of Digital Twins & Virtual Brains: Perspectives from Fundamental Neuroethics

Evers, Kathinka; Salles, Arleen

Part of SCIO: Revista de Filosofía, p. 27-53, 2021.

DOI for Epistemic Challenges of Digital Twins & Virtual Brains: Perspectives from Fundamental Neuroethics Download full text (pdf) of Epistemic Challenges of Digital Twins & Virtual Brains: Perspectives from Fundamental Neuroethics

From Responsible Research and Innovation to responsibility by design

Stahl, Bernd Carsten; Akintoye, Simisola; Bitsch, Lise; Bringedal, Berit et al.

Part of Journal of Responsible Innovation, p. 175-198, 2021.

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