Publications from CRB

Salles, Arleen; Evers, Kathinka; Farisco, Michele

Anthropomorphism in AI

Part of AJOB Neuroscience, p. 88-95, 2020.

DOI To DiVA

Pestoff, Rebecka; Svensson, Karin; Paneque, Milena; Ingvoldstad, Charlotta

Developing a national certification pathway for genetic counselors in Sweden: a short report

Part of Journal of Community Genetics, p. 113-117, 2020.

DOI To DiVA

Niemiec, Emilia; Howard, Heidi Carmen

Germline Genome Editing Research: What Are Gamete Donors (Not) Informed About in Consent Forms?

Part of The CRISPR Journal, p. 52-63, 2020.

DOI Uploaded full-text To DiVA

Dal-Ré, Rafael; Solberg, Berge; Fuhr, Uwe; Eriksson, Stefan

Reporting the details of consent procedures in clinical trials

Part of Journal of Clinical Epidemiology, p. 150-151, 2020.

DOI To DiVA

Niemiec, Emilia; Howard, Heidi Carmen

“Genethics” and Public Health Genomics

Part of Applied Genomics and Public Health, p. 243-257, 2020.

To DiVA

Rejnö, Åsa; Ternestedt, Britt-Marie; Lennart, Nordenfelt; Silfverberg, Gunilla et al.

Dignity at stake: Caring for persons with impaired autonomy

Part of Nursing Ethics, p. 104-115, 2020.

DOI To DiVA

Motta, Benedetta M.; Grander, Christoph; Gogele, Martin; Foco, Luisa et al.

Microbiota, type 2 diabetes and non-alcoholic fatty liver disease: protocol of an observational study

Part of Journal of Translational Medicine, 2019.

DOI Uploaded full-text To DiVA

Nihlén Fahlquist, Jessica

Public Health and the Virtues of Responsibility, Compassion and Humility

Part of Public Health Ethics, p. 213-224, 2019.

DOI To DiVA

Fernow, Josepine

Achieving impact: some arguments for designing a communications strategy

Part of RRI implementation in bioscience organisations, p. 177-180, 2019.

To DiVA

Declich, Andrea

RRI implementation in bioscience organisations: Guidelines from the STARBIOS2 project

2019.

Uploaded full-text To DiVA

Whichello, Chiara; Levitan, Bennett; Juaheri, Juaheri; Kihlbom, Ulrik et al.

PATIENT PREFERENCES IN THE MEDICAL PRODUCT LIFECYCLE: INITIAL RESULTS FROM THE IMI PREFER PUBLIC-PRIVATE PROJECT

Part of Value in Health, 2019.

DOI To DiVA

Hansson, Mats G.; Holm, Anna; Segerdahl, Pär

MIND THE RISK · DEN GENETISKA RISKINFORMATIONENS ETIK FÖR INDIVID OCH SAMHÄLLE: SLUTRAPPORT FRÅN ETT FORSKNINGSPROGRAM

Makadam Förlag, 2019.

To DiVA

Godskesen, Tove

The culture of hope and ethical challenges in clinical trials: A qualitative study of oncologists and haematologists’ views

Part of Clinical Ethics, 2019.

DOI To DiVA

Frygner-Holm, Sara; Russ, Sandra; Quitmann, Julia; Ring, Lena et al.

Pretend Play as an Intervention for Children With Cancer: A Feasibility Study

Part of Journal of Pediatric Oncology Nursing, p. 65-75, 2019.

DOI To DiVA

Fellmann, Florence; van El, Carla G.; Charron, Philippe; Michaud, Katarzyna et al.

European recommendations integrating genetic testing into multidisciplinary management of sudden cardiac death

Part of European Journal of Human Genetics, p. 1763-1773, 2019.

DOI Uploaded full-text To DiVA

Middleton, Anna; Milne, Richard; Howard, Heidi; Niemiec, Emilia et al.

Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data

Part of European Journal of Human Genetics, 2019.

DOI Uploaded full-text To DiVA

van Overbeeke, Eline; Janssens, Rosanne; Whichello, Chiara; Schölin Bywall, Karin et al.

Design, Conduct, and Use of Patient Preference Studies in the Medical Product Life Cycle: A Multi-Method Study

Part of Frontiers in Pharmacology, 2019.

DOI Uploaded full-text To DiVA

Niemiec, Emilia; Howard, Heidi Carmen

Include egg donors in CRISPR gene-editing debate

Part of Nature, p. 51-51, 2019.

DOI To DiVA

Goisauf, Melanie; Martin, Gillian; Bentzen, Heidi Beate; Budin-Ljösne, Isabelle et al.

Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research

Part of PLoS ONE, 2019.

DOI Uploaded full-text To DiVA

Molema, Claudia; Veldwijk, Jorien; Wendel-Vos, Wanda; de Wit, Ardine et al.

Chronically ill patients' preferences for a financial incentive in a lifestyle intervention. Results of a discrete choice experiment

Part of PLoS ONE, 2019.

DOI Uploaded full-text To DiVA

Northoff, Georg; Tumati, Shankar

"Average is good, extremes are bad" - Non-linear inverted U-shaped relationship between neural mechanisms and functionality of mental features

Part of Neuroscience and Biobehavioral Reviews, p. 11-25, 2019.

DOI Uploaded full-text To DiVA

Ormond, Kelly E.; Bombard, Yvonne; Bonham, Vence L.; Hoffman-Andrews, Lily et al.

The clinical application of gene editing: ethical and social issues

Part of Personalized Medicine, p. 337-350, 2019.

DOI To DiVA

Whichello, Chiara; van Overbeeke, Eline; Janssens, Rosanne; Schölin Bywall, Karin et al.

Factors and Situations Affecting the Value of Patient Preference Studies: Semi-Structured Interviews in Europe and the US

Part of Frontiers in Pharmacology, 2019.

DOI Uploaded full-text To DiVA

Milne, Richard; Morley, Katherine I.; Howard, Heidi; Niemiec, Emilia et al.

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

Part of Human Genetics, p. 1237-1246, 2019.

DOI Uploaded full-text To DiVA

Kaminsky, Elenor; Höglund, Anna T

Swedish Healthcare Direct managers' views on gender (in)equity - Applying a conceptual model

Part of International Journal for Equity in Health, 2019.

DOI Uploaded full-text To DiVA

Farisco, Michele

Brain, consciousness and disorders of consciousness at the intersection of neuroscience and philosophy

Uploaded full-text To DiVA

Staunton, Ciara; Slokenberga, Santa; Mascalzoni, Deborah

The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks

Part of European Journal of Human Genetics, p. 1159-1167, 2019.

DOI Uploaded full-text To DiVA

Salles, Arleen; Evers, Kathinka; Farisco, Michele

The Need for a Conceptual Expansion of Neuroethics

Part of AJOB Neuroscience, p. 126-128, 2019.

DOI Uploaded full-text To DiVA

Soulier, Alexandra

Reconsidering Dynamic Consent in Biobanking Ethical and Political Consequences of Transforming Research Participants into ICT Users

Part of IEEE technology & society magazine, p. 62-70, 2019.

DOI To DiVA

Pennartz, Cyriel M. A.; Farisco, Michele; Evers, Kathinka

Indicators and Criteria of Consciousness in Animals and Intelligent Machines: An Inside-Out Approach

Part of Frontiers in Systems Neuroscience, 2019.

DOI Uploaded full-text To DiVA

Fernow, Josepine; de Miguel Beriain, Inigo; Brey, Philip; Stahl, Berndt

Setting future ethical standards for ICT, Big Data, AI and robotics: The contribution of three European projects

Part of Orbit Journal, 2019.

DOI Uploaded full-text To DiVA

Guerrero, Manuel; Del Villar, María Soledad; Hau, Boris; Johansson, María Teresa

Professions and Profiles:: Epistemic Communities and the Registration of Human Rights Violations

Part of Resistance to Political Violence in Latin America, p. 79-115, 2019.

DOI To DiVA

Northoff, Georg; Wainio-Theberge, Soren; Evers, Kathinka

Is temporo-spatial dynamics the “common currency” of brain and mind?: In Quest of “Spatiotemporal Neuroscience”

Part of Physics of Life Reviews, 2019.

DOI To DiVA

Janssens, Rosanne; Russo, Selena; van Overbeeke, Eline; Whichello, Chiara et al.

Patient Preferences in the Medical Product Life Cycle: What do Stakeholders Think? Semi-Structured Qualitative Interviews in Europe and the USA

Part of Patient, p. 513-526, 2019.

DOI Uploaded full-text To DiVA

Viberg, Jennifer; Langenskiöld, Sophie; Segerdahl, Pär; Hansson, Mats G. et al.

Research participants' preferences for receiving genetic risk information: a discrete choice experiment

Part of Genetics in Medicine, p. 2381-2389, 2019.

DOI To DiVA

Larrivee, Denis; Farisco, Michele

Realigning the Neural Paradigm for Death

Part of Journal of Bioethical Inquiry, p. 259-277, 2019.

DOI To DiVA

Grauman, Åsa; Hansson, Mats G.; Puranen, Arvid; James, Stefan et al.

Short-term mental distress in research participants after receiving cardiovascular risk information

Part of PLoS ONE, 2019.

DOI Uploaded full-text To DiVA

Slokenberga, Santa; Reichel, Jane; Niringiye, Rachel; Croxton, Talishiea et al.

EU data transfer rules and African legal realities: is data exchange for biobank research realistic?

Part of International Data Privacy Law, p. 30-48, 2019.

DOI To DiVA

Godskesen, Tove; Eriksson, Stefan

Selektiv rapportering av kliniska prövningar

Part of Dagens Medicin, 2019.

To DiVA

Slokenberga, Santa; Howard, Heidi Carmen

THE RIGHT TO SCIENCE AND HUMAN GERMLINE EDITING. Sweden, its external commitments and the ambiguous national responses under the Genetic Integrity Act

Part of Förvaltningsrättslig Tidskrift, p. 199-222, 2019.

Uploaded full-text To DiVA

Russo, Selena; Jongerius, Chiara; Faccio, Flavia; Pizzoli, Silvia F.M. et al.

Understanding Patients' Preferences: A Systematic Review of Psychological Instruments Used in Patients' Preference and Decision Studies

Part of Value in Health, p. 491-501, 2019.

DOI Uploaded full-text To DiVA

Dal-Ré, Rafael; Avendaño-Solà, Cristina; Bloechl-Daum, Brigitte; de Boer, Anthonius et al.

Low risk pragmatic trials do not always require participants' informed consent

Part of BMJ. British Medical Journal, 2019.

DOI To DiVA

Grauman, Åsa; Hansson, Mats G.; James, Stefan K; Veldwijk, Jorien et al.

Exploring research participants' perceptions of cardiovascular risk information-Room for improvement and empowerment

Part of Patient Education and Counseling, p. 1528-1534, 2019.

DOI Uploaded full-text To DiVA

Stahl, Bernd Carsten; Akintoye, Simisola; Fothergill, Tyr; Guerrero, Manuel et al.

Beyond Research Ethics: Dialogues in Neuro-ICT Research

Part of Frontiers in Human Neuroscience, 2019.

DOI Uploaded full-text To DiVA

Carrieri, Daniele; Howard, Heidi Carmen; Clarke, Angus J.; Stefansdottir, Vigdis et al.

Reply to Bombard and Mighton

Part of European Journal of Human Genetics, p. 507-508, 2019.

DOI To DiVA

Mascalzoni, Deborah; Bentzen, Heidi Beate; Budin-Ljosne, Isabelle; Bygrave, Lee Andrew et al.

Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?

Part of Annals of Internal Medicine, p. 332-334, 2019.

DOI To DiVA

Ballantyne, Angela; Eriksson, Stefan

Research ethics revised: The new CIOMS guidelines and the World Medical Association Declaration of Helsinki in context

Part of Bioethics, p. 310-311, 2019.

DOI To DiVA

Middleton, Anna; Milne, Richard; Thorogood, Adrian; Kleiderman, Erika et al.

Attitudes of publics who are unwilling to donate DNA data for research.

Part of European Journal of Medical Genetics, p. 316-323, 2019.

DOI Uploaded full-text To DiVA

Helgesson, Gert; Bülow, William; Eriksson, Stefan; Godskesen, Tove

Should the deceased be listed as authors?

Part of Journal of Medical Ethics, p. 331-338, 2019.

DOI To DiVA

Cornel, Martina C.; Howard, Heidi Carmen; Lim, Daniel; Bonham, Vence L. et al.

Moving towards a cure in genetics: what is needed to bring somatic gene therapy to the clinic?

Part of European Journal of Human Genetics, p. 484-487, 2019.

DOI To DiVA