Informed consent guidelines listed among IRDiRC Recognized Resources


We are pleased to announce that a set of guidelines for informed consent in international collaborative rare disease research developed within the RD-Connect framework has received the IRDiRC Recognized Resources” label. 

The label is a quality indicator based on a specific set of criteria. It is open for platforms, tools, standards and guidelines of fundamental importance to the international rare diseases research and development community. The endorsement is valid for three years.

Improving the informed consent process in international collaborative rare disease research: effective consent for effective research, Gainotti S et al, Eur J Hum Genet, 2016;24(9):1248-54. 

Read about the label

IRDiRC Recognized Resources

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