E-books and reports from CRB
We publish most of our work in peer-reviewed articles and books. We sometimes put these publications together in reports. Here you can find older online publications in English, Swedish and French. If you are interested in recent and policy relevant research, we suggest you have a look at our policy brief series!
Thinking about ethics
Why would a cancer patient agree to test a drug that might not be effective on their own disease? And are researchers responsible if their research can be used to develop biological weapons? This collection of texts might not provide the answers, but at least give you some food for thought.
Pär Segerdahl invites you on a journey through some of the issues that the Ethics Blog has dealt with in the recent years. He writes about researchers’ responsibilities, about participating in research and about information and integrity. But he also writes about ethics as such: What is it today, really? In this book you can read about data protection and population based biobank studies. But you can also read about apes writing articles and about the risk with knowing the risk.
Nursing Ethics & Ethics of Care
Nursing ethics is concerned with the moral dimensions of nursing practice while the ethics of care is a normative ethical theory. For many years CRB has developed these fields from different angles. We have used qualitative studies to describe and explore the kinds of ethical dilemmas nurses encounter in their day-to-day work and how they solve them. Other studies have investigated the role of ethical guidelines in the building of ethical competence in nursing practice and in priority setting. In this report, we provide a summary of our research.
Neuroethics & Philosophy of the Brain
The CRB neuroethics research team is an international, multi-disciplinary group. Our backgrounds allow us to approach these issues from theoretical, philosophical, social, bio-political and clinical perspectives. We collaborate closely with neuroscientists to understand the ethical and philosophical questions that neuroscience brings. In this report, we provide a summary of our research. The report was updated in November 2016. We are planning an update in the autumn 2020.
Neuroéthique. Quand la matière s'éveille
Evers K, Neuroéthique. Quand la matière s'éveille, Centre for Research Ethics & Bioethics (CRB) 2014, originally published by Éditions Odile Jacob, Paris, 2009.
The book has sold out and we offer an author version for download. The book has also been published in Spanish (Evers K, Neuroética. Cuando la materia se despierta, Katz editores, 2010).
Biobank and registry ethics & law
For many years, researchers at CRB have provided constructive advise on how to deal with ethical and legal aspects of research using human tissue material and personal data. We have collaborated with biomedical scientists and published our findings in peer reviewed journals. As a summary of this research we have compiled a list of publications with abstracts. We have grouped them thematically to help you find the ones you might be interested in reading. Our publications deal with ethical frameworks and policy, regulatory aspects of biobank and registry research, informed consent, ethical review, integrity concerns, trust, genetic testing, indicental findings, commercialization, public and patient perceptions, rare diseases, children & biobanks & genetics, and biobank studies.
Finnish Biobank Law
Stjernschantz Forsberg 2013
Joanna Stjernschantz Forsberg has interviewed biobank researchers and authorities in Finland to describe the background and content in the Finnish biobank law that was enacted in 2013.
The report is in Swedish with an English summary.
Biobanks as resources for health
Hansson & Levin (eds) 2003
The potential benefits of biomedicine and biotechnology are considerable, but this is also an area of science and medicine that is sometimes found controversial. Decisions made by scientists, by health care professionals and by policymakers must be well informed and based on knowledge and sound research. Legal experts concerned with public law and intellectual property rights, philosophers and social pharmacists have been collaborating with geneticists, pathologists and doctors in several research projects in order to seek the kind of biobank management that would satisfy the interests of both the research community and the general public as regards new medicines and forms of treatment, whilst protecting the integrity of the individual. A summary of that research is presented in this book.