Publikationer från CRB
Vi publicerar våra resultat i internationella peer-review tidskrifter och i bokform. Forskningsfrågorna handlar bland annat om bioetik, klinisk etik, forskningsetik och juridik, neuroetik och filosofi, vård, omvårdnad och riskinformation.
Fler publikationslistor hittar du på våra personalsidor. Du kan också läsa om policyrelevant forskning i våra policy briefs, eller gå till etikbloggen för mer filosofiska reflektioner över forksningsetik och bioetik.
Våra senaste publikationer
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Participant perspective on the recall-by-genotype research approach: a mixed-method embedded study with participants of the CHRIS study.
Ingår i European Journal of Human Genetics, 2023.
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Personal autonomy: From practice to theory
Ingår i Theoria, s. 1063-1065, 2022.
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Ethical Analysis of Egypt's Law Regulating Clinical Research
Ingår i Journal of Empirical Research on Human Research Ethics, s. 494-503, 2022.
DOI för Ethical Analysis of Egypt's Law Regulating Clinical Research Ladda ner fulltext (pdf) av Ethical Analysis of Egypt's Law Regulating Clinical Research
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Academic Integrity Outreach Efforts – Making Education Accessible and Inclusive
Ingår i Academic Integrity: Broadening Practices, Technologies, and the Role of Students, s. 3-16, 2022.
DOI för Academic Integrity Outreach Efforts – Making Education Accessible and Inclusive
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Researching Academic Integrity: Designing Research to Help Participants Give Genuine Responses Using Quantitative and Qualitative Methods
Ingår i Academic Integrity: Broadening Practices, Technologies, and the Role of Students, s. 47-65, 2022.
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Preparing Preservice Teachers to Teach Academic Integrity and Ethics
Ingår i Ethics and Integrity in Teacher Education, s. 43-54, 2022.
DOI för Preparing Preservice Teachers to Teach Academic Integrity and Ethics
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The need for a multi-disciplinary reflection about frailty and cognitive impairment in chronic kidney disease
Ingår i Nephrology, Dialysis and Transplantation, 2022.
DOI för The need for a multi-disciplinary reflection about frailty and cognitive impairment in chronic kidney disease Ladda ner fulltext (pdf) av The need for a multi-disciplinary reflection about frailty and cognitive impairment in chronic kidney disease
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Attitudes and values among the Swedish general public to using human embryonic stem cells for medical treatment
Ingår i BMC Medical Ethics, 2022.
DOI för Attitudes and values among the Swedish general public to using human embryonic stem cells for medical treatment Ladda ner fulltext (pdf) av Attitudes and values among the Swedish general public to using human embryonic stem cells for medical treatment
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Hospital staff at most psychiatric clinics in Stockholm experience that patients who self-harm have too long hospital stays, with ensuing detrimental effects.
Ingår i Nordic Journal of Psychiatry, s. 287-294, 2022.
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Age and Illness Severity: A Case of Irrelevant Utilities?
Ingår i Utilitas, s. 209-224, 2022.
DOI för Age and Illness Severity: A Case of Irrelevant Utilities?
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Rawlsian reasoning about fairness at the end of life.
Ingår i BMJ Supportive & Palliative Care, 2022.
DOI för Rawlsian reasoning about fairness at the end of life.
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Health literacy and digital health information-seeking behavior - a cross-sectional study among highly educated Swedes
Ingår i BMC Public Health, 2022.
DOI för Health literacy and digital health information-seeking behavior - a cross-sectional study among highly educated Swedes Ladda ner fulltext (pdf) av Health literacy and digital health information-seeking behavior - a cross-sectional study among highly educated Swedes
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Ethical, legal and social/societal implications (ELSI) of recall-by-genotype (RbG) and genotype-driven-research (GDR) approaches: a scoping review
Ingår i European Journal of Human Genetics, s. 1000-1010, 2022.
DOI för Ethical, legal and social/societal implications (ELSI) of recall-by-genotype (RbG) and genotype-driven-research (GDR) approaches: a scoping review Ladda ner fulltext (pdf) av Ethical, legal and social/societal implications (ELSI) of recall-by-genotype (RbG) and genotype-driven-research (GDR) approaches: a scoping review
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Ten years of dynamic consent in the CHRIS study: informed consent as a dynamic process
Ingår i European Journal of Human Genetics, s. 1391-1397, 2022.
DOI för Ten years of dynamic consent in the CHRIS study: informed consent as a dynamic process Ladda ner fulltext (pdf) av Ten years of dynamic consent in the CHRIS study: informed consent as a dynamic process
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Guidelines for Research Ethics and Research Integrity in Citizen Science
Ingår i Research Ideas and Outcomes, 2022.
DOI för Guidelines for Research Ethics and Research Integrity in Citizen Science
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Exploring preferences of at-risk individuals for preventive treatments for rheumatoid arthritis
Ingår i Scandinavian Journal of Rheumatology, s. 1-11, 2022.
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Would you consider donating your left-over embryos to treat Parkinson’s disease? Interviews with individuals that underwent IVF in Sweden
Ingår i BMC Medical Ethics, 2022.
DOI för Would you consider donating your left-over embryos to treat Parkinson’s disease? Interviews with individuals that underwent IVF in Sweden Ladda ner fulltext (pdf) av Would you consider donating your left-over embryos to treat Parkinson’s disease? Interviews with individuals that underwent IVF in Sweden
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Parent Perceptions of a Pretend Play Intervention for Their Children With Cancer
Ingår i Journal of Nursing Research, 2022.
DOI för Parent Perceptions of a Pretend Play Intervention for Their Children With Cancer
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Patients' views on using human embryonic stem cells to treat Parkinson's disease: an interview study
Ingår i BMC Medical Ethics, 2022.
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Who is Responsible for Remedying the Harm Caused to Children of Prisoners?
Ingår i Ethics and social welfare, s. 1-19, 2022.
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Patients' views on using human embryonic stem cells to treat Parkinson's disease: an interview study
Ingår i BMC Medical Ethics, 2022.
DOI för Patients' views on using human embryonic stem cells to treat Parkinson's disease: an interview study Ladda ner fulltext (pdf) av Patients' views on using human embryonic stem cells to treat Parkinson's disease: an interview study
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Who is Responsible for Remedying the Harm Caused to Children of Prisoners?
Ingår i Ethics and social welfare, s. 1-19, 2022.
DOI för Who is Responsible for Remedying the Harm Caused to Children of Prisoners?
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Does It Matter How You Ask?: Assessing the Impact of Failure or Effectiveness Framing on Preferences for Antibiotic Treatments in a Discrete Choice Experiment
Ingår i Patient Preference and Adherence, s. 2921-2936, 2022.
DOI för Does It Matter How You Ask?: Assessing the Impact of Failure or Effectiveness Framing on Preferences for Antibiotic Treatments in a Discrete Choice Experiment Ladda ner fulltext (pdf) av Does It Matter How You Ask?: Assessing the Impact of Failure or Effectiveness Framing on Preferences for Antibiotic Treatments in a Discrete Choice Experiment
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A proposal for an international Code of Conduct for data sharing in genomics
Ingår i Developing World Bioethics, 2022.
DOI för A proposal for an international Code of Conduct for data sharing in genomics
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Factor's that impact on women's decision-making around prenatal genomic tests: An international discrete choice survey
Ingår i Prenatal Diagnosis, s. 934-946, 2022.
DOI för Factor's that impact on women's decision-making around prenatal genomic tests: An international discrete choice survey Ladda ner fulltext (pdf) av Factor's that impact on women's decision-making around prenatal genomic tests: An international discrete choice survey
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Debating Embryonic Stem Cell Research: Handling Moral Concerns More Gently
Ingår i Ethical Inquiries after Wittgenstein, s. 173-188, 2022.
DOI för Debating Embryonic Stem Cell Research: Handling Moral Concerns More Gently
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Italians locked down: people's responses to early COVID-19 pandemic public health measures
Ingår i Humanities and Social Sciences Communications, 2022.
DOI för Italians locked down: people's responses to early COVID-19 pandemic public health measures Ladda ner fulltext (pdf) av Italians locked down: people's responses to early COVID-19 pandemic public health measures
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EU regulatory responses to medical machine learning in paediatric care: A missed opportunity to overcome a therapeutic gap?
Ingår i De lege Yearbook 2021:Law, AI and Digitalisation, s. 379-400, 2022.
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Medicinsk rätt
2022.
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Genetik
Ingår i Medicinsk rätt, s. 237-253, 2022.
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The voice of the self: a typology of general practitioners' emotional responses to situational and contextual stressors
Ingår i Scandinavian Journal of Primary Health Care, s. 289-304, 2022.
DOI för The voice of the self: a typology of general practitioners' emotional responses to situational and contextual stressors Ladda ner fulltext (pdf) av The voice of the self: a typology of general practitioners' emotional responses to situational and contextual stressors
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What names for covert awareness?: A systematic review
Ingår i Frontiers in Human Neuroscience, 2022.
DOI för What names for covert awareness?: A systematic review Ladda ner fulltext (pdf) av What names for covert awareness?: A systematic review
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Preferences for preventive treatments for rheumatoid arthritis: discrete choice survey in the UK, Germany and Romania
Ingår i Rheumatology, 2022.
DOI för Preferences for preventive treatments for rheumatoid arthritis: discrete choice survey in the UK, Germany and Romania Ladda ner fulltext (pdf) av Preferences for preventive treatments for rheumatoid arthritis: discrete choice survey in the UK, Germany and Romania
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Augmenting Human Selves Through Artificial Agents - Lessons From the Brain
Ingår i Frontiers in Computational Neuroscience, 2022.
DOI för Augmenting Human Selves Through Artificial Agents - Lessons From the Brain Ladda ner fulltext (pdf) av Augmenting Human Selves Through Artificial Agents - Lessons From the Brain
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Including a discussion forum in a web-based intervention on fertility and sexuality following cancer - Usage and content
Ingår i Internet Interventions, 2022.
DOI för Including a discussion forum in a web-based intervention on fertility and sexuality following cancer - Usage and content Ladda ner fulltext (pdf) av Including a discussion forum in a web-based intervention on fertility and sexuality following cancer - Usage and content
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Clinical relevance and translational impact of reduced penetrance in genetic movement disorders
Ingår i Medizinische Genetik, s. 151-156, 2022.
DOI för Clinical relevance and translational impact of reduced penetrance in genetic movement disorders Ladda ner fulltext (pdf) av Clinical relevance and translational impact of reduced penetrance in genetic movement disorders
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Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research
Ingår i International Journal of Qualitative Studies on Health and Well-being, 2022.
DOI för Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research Ladda ner fulltext (pdf) av Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research
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Fest och fasta.: Om balans och etiska avvägningar vid val av mat.
Ingår i Signum, s. 27-32, 2022.
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The Rights of Children of Prisoners During a Pandemic: A Case for Early Release of Imprisoned Parents?
Ingår i The Global and Social Consequences of the COVID-19 Pandemic, s. 199-214, 2022.
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Dignity in bodily care at the end of life in a nursing home: an ethnographic study
Ingår i BMC Geriatrics, 2022.
DOI för Dignity in bodily care at the end of life in a nursing home: an ethnographic study Ladda ner fulltext (pdf) av Dignity in bodily care at the end of life in a nursing home: an ethnographic study
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Barriers to and facilitators of ethical encounters at the end of life in a nursing home: an ethnographic study
Ingår i BMC Palliative Care, 2022.
DOI för Barriers to and facilitators of ethical encounters at the end of life in a nursing home: an ethnographic study Ladda ner fulltext (pdf) av Barriers to and facilitators of ethical encounters at the end of life in a nursing home: an ethnographic study
Biobanks- och registerforskning: Etik och juridik
Vi har ägnat många år åt konstruktiv vägledning kring hanteringen av etiska och juridiska aspekter av forskning på mänskligt vävnadsmaterial och persondata. Vi samarbetar med biomedicinare och publicerar våra resultat i vetenskapliga tidskrifter.
Vi har sammanställt våra publikationer (med abstracts) i en rapport. Rapporten är på engelska och uppdaterades i juni 2016.
Vårdetik och omvårdnadsetik
Relalationen mellan sjuksköterska och patient är inte jämlik. Hur ser man till att mötet ändå blir respektfullt? Vilka etiska dilemmans uppstår i sjuksköterskors vardag? Och hur kan man lösa dem?
Mycket av vår kliniskt inriktade forskning handlar om vårdetik och omvårdens etik. Vi har sammanställt våra publikationer på området (med abstracts) i en rapport. Rapporten är på engelska.
Neuroetik och medvetandefilosofi
Vår forskning kring neuroetik och neurofilosofi är mångvetenskaplig. Vi närmar oss frågorna från teoretiska, filosofiska, sociala, bio-politiska och kliniska perspektiv. Forskningen sker i nära samarbete med neurovetenskapen så att vi kan förstå de etiska och filosofiska frågorna som forskarna behöver hantera. I den här rapporten hittar du alla våra publikationer på området med abstracts. Rapporten uppdaterades i november 2016.
