Publikationer från CRB
Vi publicerar våra resultat i internationella peer-review tidskrifter och i bokform. Forskningsfrågorna handlar bland annat om bioetik, klinisk etik, forskningsetik och juridik, neuroetik och filosofi, vård, omvårdnad och riskinformation.
Fler publikationslistor hittar du på våra personalsidor. Du kan också läsa om policyrelevant forskning i våra policy briefs, eller gå till etikbloggen för mer filosofiska reflektioner över forksningsetik och bioetik.
Våra senaste publikationer
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Differential and shared genetic effects on kidney function between diabetic and non-diabetic individuals
Ingår i Communications Biology, 2022.
DOI för Differential and shared genetic effects on kidney function between diabetic and non-diabetic individuals Ladda ner fulltext (pdf) av Differential and shared genetic effects on kidney function between diabetic and non-diabetic individuals
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Just try it: Preliminary results of a six-month therapy for borderline personality disorder
Ingår i Personality and Mental Health, 2022.
DOI för Just try it: Preliminary results of a six-month therapy for borderline personality disorder Ladda ner fulltext (pdf) av Just try it: Preliminary results of a six-month therapy for borderline personality disorder
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The RD-Connect Genome-Phenome Analysis Platform: Accelerating diagnosis, research, and gene discovery for rare diseases
Ingår i Human Mutation, s. 717-733, 2022.
DOI för The RD-Connect Genome-Phenome Analysis Platform: Accelerating diagnosis, research, and gene discovery for rare diseases Ladda ner fulltext (pdf) av The RD-Connect Genome-Phenome Analysis Platform: Accelerating diagnosis, research, and gene discovery for rare diseases
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Making space for patients’ preferences in precision medicine: a qualitative study exploring perspectives of patients with rheumatoid arthritis
Ingår i BMJ Open, s. e058303-e058303, 2022.
DOI för Making space for patients’ preferences in precision medicine: a qualitative study exploring perspectives of patients with rheumatoid arthritis Ladda ner fulltext (pdf) av Making space for patients’ preferences in precision medicine: a qualitative study exploring perspectives of patients with rheumatoid arthritis
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Ethical Analysis of Egypt's Law Regulating Clinical Research
Ingår i Journal of Empirical Research on Human Research Ethics, 2022.
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Artificial Intelligence and Imperceptible Governance via Opinion Formation: Reflections on Power and Transparency from a Cross-Disciplinary Encounter
Ingår i Law, AI and Digitalization, 2022.
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What ethical approaches are used by scientists when sharing health data?: An interview study
Ingår i BMC Medical Ethics, 2022.
DOI för What ethical approaches are used by scientists when sharing health data?: An interview study Ladda ner fulltext (pdf) av What ethical approaches are used by scientists when sharing health data?: An interview study
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SLC38A10 knockout mice display a decreased body weight and an increased risk-taking behavior in the open field test
Ingår i Frontiers in Behavioral Neuroscience, 2022.
DOI för SLC38A10 knockout mice display a decreased body weight and an increased risk-taking behavior in the open field test Ladda ner fulltext (pdf) av SLC38A10 knockout mice display a decreased body weight and an increased risk-taking behavior in the open field test
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American and European Guidelines on Disorders of Consciousness: Ethical Challenges of Implementation
Ingår i The journal of head trauma rehabilitation, 2022.
DOI för American and European Guidelines on Disorders of Consciousness: Ethical Challenges of Implementation Ladda ner fulltext (pdf) av American and European Guidelines on Disorders of Consciousness: Ethical Challenges of Implementation
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Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research
Ingår i Frontiers in Genetics, 2022.
DOI för Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research Ladda ner fulltext (pdf) av Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research
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Indicators and criteria of consciousness: ethical implications for the care of behaviourally unresponsive patients
Ingår i BMC Medical Ethics, 2022.
DOI för Indicators and criteria of consciousness: ethical implications for the care of behaviourally unresponsive patients Ladda ner fulltext (pdf) av Indicators and criteria of consciousness: ethical implications for the care of behaviourally unresponsive patients
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Perceptions on using surplus embryos for the treatment of Parkinson’s disease among the Swedish population: a qualitative study
Ingår i BMC Medical Ethics, 2022.
DOI för Perceptions on using surplus embryos for the treatment of Parkinson’s disease among the Swedish population: a qualitative study Ladda ner fulltext (pdf) av Perceptions on using surplus embryos for the treatment of Parkinson’s disease among the Swedish population: a qualitative study
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Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations
Ingår i Arthritis Research & Therapy, 2022.
DOI för Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations Ladda ner fulltext (pdf) av Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations
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The Status Quo Problem and the Role of Consumers Against Antimicrobial Resistance
Ingår i Frontiers in Sustainable Food Systems, 2022.
DOI för The Status Quo Problem and the Role of Consumers Against Antimicrobial Resistance Ladda ner fulltext (pdf) av The Status Quo Problem and the Role of Consumers Against Antimicrobial Resistance
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Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries
Ingår i Genetics in Medicine, s. 1120-1129, 2022.
DOI för Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries Ladda ner fulltext 1 (pdf) av Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries Ladda ner fulltext 2 (pdf) av Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries
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On the Contribution of Neuroethics to the Ethics and Regulation of Artificial Intelligence
Ingår i Neuroethics, 2022.
DOI för On the Contribution of Neuroethics to the Ethics and Regulation of Artificial Intelligence Ladda ner fulltext (pdf) av On the Contribution of Neuroethics to the Ethics and Regulation of Artificial Intelligence
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Public perceptions of myocardial infarction: Do illness perceptions predict preferences for health check results
Ingår i Preventive Medicine Reports, s. 101683-101683, 2022.
DOI för Public perceptions of myocardial infarction: Do illness perceptions predict preferences for health check results Ladda ner fulltext (pdf) av Public perceptions of myocardial infarction: Do illness perceptions predict preferences for health check results
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What CVD risk factors predict self-perceived risk of having a myocardial infarction? A cross-sectional study
Ingår i International Journal of Cardiology Cardiovascular Risk and Prevention, s. 200125-200125, 2022.
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Consumer Behaviour and antibiotic resistance
Ingår i Managing Antimicrobial Resistance Through Behaviour Change, s. 16-19, 2021.
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Consumer behaviour and antibiotic resistance
Ingår i Managing Antimicrobial Resistance Through Behavior Change, March 2021, s. 13-14, 2021.
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Italian public's views on sharing genetic information and medical information: findings from the ‘Your DNA, Your Say’ study
Ingår i Wellcome Open Research, 2021.
DOI för Italian public's views on sharing genetic information and medical information: findings from the ‘Your DNA, Your Say’ study Ladda ner fulltext (pdf) av Italian public's views on sharing genetic information and medical information: findings from the ‘Your DNA, Your Say’ study
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Governance of Access in Biobanking: The Case of Telethon Network of Genetic Biobanks
Ingår i Biopreservation and Biobanking, s. 483-492, 2021.
DOI för Governance of Access in Biobanking: The Case of Telethon Network of Genetic Biobanks Ladda ner fulltext (pdf) av Governance of Access in Biobanking: The Case of Telethon Network of Genetic Biobanks
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Prospective epidemiological, molecular, and genetic characterization of a novel coronavirus disease in the Val Venosta/Vinschgau: the CHRIS COVID-19 study protocol
Ingår i Pathogens and Global Health, s. 128-136, 2021.
DOI för Prospective epidemiological, molecular, and genetic characterization of a novel coronavirus disease in the Val Venosta/Vinschgau: the CHRIS COVID-19 study protocol Ladda ner fulltext (pdf) av Prospective epidemiological, molecular, and genetic characterization of a novel coronavirus disease in the Val Venosta/Vinschgau: the CHRIS COVID-19 study protocol
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Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants
Ingår i Journal of Community Genetics, s. 577-592, 2021.
DOI för Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants Ladda ner fulltext (pdf) av Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants
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Humanness: Some neuroethical reflections
Ingår i Regulating Neuroscience: Transnational legal challenges, s. 1-179, 2021.
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Epistemic Challenges of Digital Twins & Virtual Brains: Perspectives from Fundamental Neuroethics
Ingår i SCIO: Revista de Filosofía, s. 27-53, 2021.
DOI för Epistemic Challenges of Digital Twins & Virtual Brains: Perspectives from Fundamental Neuroethics Ladda ner fulltext (pdf) av Epistemic Challenges of Digital Twins & Virtual Brains: Perspectives from Fundamental Neuroethics
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From Responsible Research and Innovation to responsibility by design
Ingår i Journal of Responsible Innovation, s. 175-198, 2021.
DOI för From Responsible Research and Innovation to responsibility by design Ladda ner fulltext (pdf) av From Responsible Research and Innovation to responsibility by design
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Genetic and Metabolic Determinants of Atrial Fibrillation in a General Population Sample: The CHRIS Study
Ingår i Biomolecules, 2021.
DOI för Genetic and Metabolic Determinants of Atrial Fibrillation in a General Population Sample: The CHRIS Study Ladda ner fulltext (pdf) av Genetic and Metabolic Determinants of Atrial Fibrillation in a General Population Sample: The CHRIS Study
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A survey of nursing teachers’ awareness of discrimination and inequity in telephone nursing care
Ingår i BMC Nursing, 2021.
DOI för A survey of nursing teachers’ awareness of discrimination and inequity in telephone nursing care Ladda ner fulltext (pdf) av A survey of nursing teachers’ awareness of discrimination and inequity in telephone nursing care
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Knowledge versus Education in the Margins: An Indigenous and Feminist Critique of Education
Ingår i Education Sciences, 2021.
DOI för Knowledge versus Education in the Margins: An Indigenous and Feminist Critique of Education Ladda ner fulltext (pdf) av Knowledge versus Education in the Margins: An Indigenous and Feminist Critique of Education
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Governing health data across changing contexts: A focus group study of citizen’s views in England, Iceland, and Sweden
Ingår i International Journal of Medical Informatics, 2021.
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Governance mechanisms for sharing of health data: An approach towards selecting attributes for complex discrete choice experiment studies
Ingår i Technology in society, s. 101625-101625, 2021.
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Functional capacity vs side effects: treatment attributes to consider when individualising treatment for patients with rheumatoid arthritis
Ingår i Clinical Rheumatology, 2021.
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Separation and not residency permit restores function in resignation syndrome: a retrospective cohort study
Ingår i European Child and Adolescent Psychiatry, 2021.
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Preferences of the Public for Sharing Health Data: Discrete Choice Experiment
Ingår i JMIR Medical Informatics, 2021.
DOI för Preferences of the Public for Sharing Health Data: Discrete Choice Experiment Ladda ner fulltext (pdf) av Preferences of the Public for Sharing Health Data: Discrete Choice Experiment
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Communicating Test Results from a General Health Check: Preferences from a Discrete Choice Experiment Survey
Ingår i Patient, s. 649-660, 2021.
DOI för Communicating Test Results from a General Health Check: Preferences from a Discrete Choice Experiment Survey Ladda ner fulltext (pdf) av Communicating Test Results from a General Health Check: Preferences from a Discrete Choice Experiment Survey
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Balancing scientific interests and the rights of participants in designing a recall by genotype study
Ingår i European Journal of Human Genetics, s. 1146-1157, 2021.
DOI för Balancing scientific interests and the rights of participants in designing a recall by genotype study Ladda ner fulltext (pdf) av Balancing scientific interests and the rights of participants in designing a recall by genotype study
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YouTube as a source of information on clinical trials forpaediatric cancer
Ingår i Information, Communication and Society, s. 1-14, 2021.
DOI för YouTube as a source of information on clinical trials forpaediatric cancer
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Prevalence and determinants of serum antibodies to SARS-CoV-2 in the general population of the Gardena valley
Ingår i Epidemiology and Infection, 2021.
DOI för Prevalence and determinants of serum antibodies to SARS-CoV-2 in the general population of the Gardena valley Ladda ner fulltext (pdf) av Prevalence and determinants of serum antibodies to SARS-CoV-2 in the general population of the Gardena valley
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The effectiveness of smartphone compassion training on stress among Swedish university students: A pilot randomized trial
Ingår i Journal of Clinical Psychology, s. 927-945, 2021.
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From local to global and back: An exploratory study on cross-scale desynchronization in schizophrenia and its relation to thought disorders
Ingår i Schizophrenia Research, s. 10-12, 2021.
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Task matters-challenging the motor system allows distinguishing unaffected Parkin mutation carriers from mutation-free controls
Ingår i Parkinsonism & Related Disorders, s. 101-104, 2021.
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Deterring cheating using a complex assessment design: A case study
Ingår i The Literacy Trek. Journal of literacy and language studies, s. 55-77, 2021.
DOI för Deterring cheating using a complex assessment design: A case study Ladda ner fulltext (pdf) av Deterring cheating using a complex assessment design: A case study
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Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries
Ingår i Genome Medicine, 2021.
DOI för Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries Ladda ner fulltext (pdf) av Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries
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Taking into Account Patient Preferences: A Consensus Study on the Assessment of Psychological Dimensions Within Patient Preference Studies
Ingår i Patient Preference and Adherence, s. 1331-1345, 2021.
DOI för Taking into Account Patient Preferences: A Consensus Study on the Assessment of Psychological Dimensions Within Patient Preference Studies Ladda ner fulltext (pdf) av Taking into Account Patient Preferences: A Consensus Study on the Assessment of Psychological Dimensions Within Patient Preference Studies
Biobanks- och registerforskning: Etik och juridik
Vi har ägnat många år åt konstruktiv vägledning kring hanteringen av etiska och juridiska aspekter av forskning på mänskligt vävnadsmaterial och persondata. Vi samarbetar med biomedicinare och publicerar våra resultat i vetenskapliga tidskrifter.
Vi har sammanställt våra publikationer (med abstracts) i en rapport. Rapporten är på engelska och uppdaterades i juni 2016.
Vårdetik och omvårdnadsetik
Relalationen mellan sjuksköterska och patient är inte jämlik. Hur ser man till att mötet ändå blir respektfullt? Vilka etiska dilemmans uppstår i sjuksköterskors vardag? Och hur kan man lösa dem?
Mycket av vår kliniskt inriktade forskning handlar om vårdetik och omvårdens etik. Vi har sammanställt våra publikationer på området (med abstracts) i en rapport. Rapporten är på engelska.
Neuroetik och medvetandefilosofi
Vår forskning kring neuroetik och neurofilosofi är mångvetenskaplig. Vi närmar oss frågorna från teoretiska, filosofiska, sociala, bio-politiska och kliniska perspektiv. Forskningen sker i nära samarbete med neurovetenskapen så att vi kan förstå de etiska och filosofiska frågorna som forskarna behöver hantera. I den här rapporten hittar du alla våra publikationer på området med abstracts. Rapporten uppdaterades i november 2016.
