The ethics of families
A lof of our clincal research deals with the ethics of families. Since 2011, we have been part of an international network on the ethics of families.
Initially, the network was funded by Riksbankens Jubileumsfond, but in 2013 the group received funding for 3 years from the Dutch body NWO for the project Practices of Responsibility in Change that will result in a wider and stronger network, joint publications and a full research proposal.
Network members
Expertise Center Ethics of Care at University Medical Center (ECEC), Groningen University the Centre for Biomedical Ethics (CBmE), National University of Singapore and the Policy, Ethics and Life Sciences Research Centre (PEALS), Newcastle University on family ethics health and social care and researchers from Michigan State University.
Contact at CRB
Ulrik Kihlbom, Senior Lecturer & Associate Professor in Medical Ethics
Preconception genetic screening
Amal Matar is looking at the ethical issues of preconception genetic testing and screening, taking the family’s and the individual's perspective into account.
Pervasive refusal syndrome
Karl Sallin is studying pervasive refusal syndrome as a disorder of consciousness.
Pretend play for children with cancer
We ran a pilot project to see if pretend play can hellp children with cancer and their families.