Amal Matar

PhD, Project coordinator

Amal Matar is a project coordinator in the Human Brain Project and part of CRB's neuroethics research group, where she currently is doing research on culture and neuroscience. In addition, her research interests include social and ethical aspects of new genomic and reproductive technologies with focus on stakeholders’ perspectives as well as the wider societal implications for such technologies. She was a researcher in the H2020 SIENNA project, focusing the ethical management of disruptive technologies, where she focused primarily on different applications of genomics technology and international genomics data sharing. Moreover, she conducts research on international research ethics, primarily focusing on the Middle East (MERETI). She holds a PhD in Bioethics from Faculty of Medicine, Uppsala University, a MSc., in Biotechnology from the American University in Cairo and is a trained Medical Doctor in Immunohematology in Egypt.

E-mail: amal.matar@crb.uu.se

Recently in the media

Test för ärftliga sjukdomar inför graviditet väcker etiska frågor
Dagens Nyheter, 2019-04-15
Forskaren om genetisk screening: Här är problemen
Aftonbladet, 2019-03-11
Should we be screening future parents for genetic disorders?
Informationsdienst Wissenschaft, 2019-03-04
Should we be screening future parents for genetic disorders?
MedicalXpress, 2019-03-01
Should we be screening future parents for genetic disorders?
The Economic Times India, 2019-03-01

Preconception genetic screening

Amal Matar is looking at the ethical issues of preconception genetic testing and screening, taking the family’s and the individual's perspective into account.

Amal Matar's PhD project

The Human Brain Project

The Human Brain Project is one of the European Community flagship projects and involves over 100 groups. Kathinka Evers leads the philosophical research.

Philosophy in HBP

Technology, ethics and human rights

Genomics, Enhancement, AI & Robotics

The SIENNA project will address ethical issues in three new and emerging areas with major socio-economic impact.

Visit the SIENNA website

Publications

Ethical Analysis of Egypt's Law Regulating Clinical Research

Matar, Amal; Silverman, Henry

Part of Journal of Empirical Research on Human Research Ethics, 2022.

Open access
SIENNA D5.2: An international code of conduct for data sharing in genomics

Matar, Amal

2021.

DOI for SIENNA D5.2: An international code of conduct for data sharing in genomics

Open access
SIENNA D6.3: Methods for translating ethical analysis into instruments for the ethical development and deployment of emerging technologies

Brey, Philip; Dainow, Brandt; Erden, Yasemin J.; Matar, Amal et al.

2021.

DOI for SIENNA D6.3: Methods for translating ethical analysis into instruments for the ethical development and deployment of emerging technologies

Open access
Autonomous decisions by couples in reproductive care

Matar, Amal; Höglund, Anna T; Segerdahl, Pär; Kihlbom, Ulrik

Part of BMC Medical Ethics, 2020.

DOI for Autonomous decisions by couples in reproductive care Download full text (pdf) of Autonomous decisions by couples in reproductive care

Open access
"A perfect society": Swedish policymakers' ethical and social views on preconception expanded carrier screening

Matar, Amal; Hansson, Mats G.; Höglund, Anna T.

Part of Journal of Community Genetics, p. 267-280, 2019.

DOI for "A perfect society": Swedish policymakers' ethical and social views on preconception expanded carrier screening Download full text (pdf) of "A perfect society": Swedish policymakers' ethical and social views on preconception expanded carrier screening

Open access
Matar, Amal

Considering a Baby? Responsible Screening for the Future: Ethical and social implications for implementation and use of preconception expanded carrier screening in Sweden

Download full text (pdf) of Matar, Amal

Open access
Values and value conflicts in implementation and use of preconception expanded carrier screening: an expert interview study

Matar, Amal; Hansson, Mats G.; Höglund, Anna T

Part of BMC Medical Ethics, 2019.

DOI for Values and value conflicts in implementation and use of preconception expanded carrier screening: an expert interview study Download full text (pdf) of Values and value conflicts in implementation and use of preconception expanded carrier screening: an expert interview study

Open access
Swedish healthcare providers' perceptions of preconception expanded carrier screening (ECS)—a qualitative study

Matar, Amal; Kihlbom, Ulrik; Höglund, Anna T.

Part of Journal of Community Genetics, p. 203-214, 2016.

DOI for Swedish healthcare providers' perceptions of preconception expanded carrier screening (ECS)—a qualitative study
Curricular Aspects of the Fogarty Bioethics International Training Programs

Matar, Amal; Garner, Sam; Millum, Joseph; Sina, Barbara et al.

Part of Journal of Empirical Research on Human Research Ethics, p. 12-23, 2014.

DOI for Curricular Aspects of the Fogarty Bioethics International Training Programs
Enhancing Research Ethics Capacity in the Middle East: Experience and Challenges of a Fogarty-Sponsored Training Program

Silverman, Henry; Edwards, Hillary; Shamoo, Adil; Matar, Amal

Part of Journal of Empirical Research on Human Research Ethics, p. 40-51, 2013.

DOI for Enhancing Research Ethics Capacity in the Middle East: Experience and Challenges of a Fogarty-Sponsored Training Program

Reproductive ethics and cultural sensitivity

Today’s multi-cultural society is a challenge to the health care system, especially when it comes to reproductive and sexual health. At the same time, new technology increases our reproductive choices, increasing the challenges. Find out what Amal Matar has to say about it.

Read interview

Last modified: 2022-02-01