Amal Matar
Amal Matar
PhD, Project coordinator
Amal Matar is a project coordinator in the Human Brain Project and part of CRB's neuroethics research group, where she currently is doing research on culture and neuroscience. In addition, her research interests include social and ethical aspects of new genomic and reproductive technologies with focus on stakeholders’ perspectives as well as the wider societal implications for such technologies. She was a researcher in the H2020 SIENNA project, focusing the ethical management of disruptive technologies, where she focused primarily on different applications of genomics technology and international genomics data sharing. Moreover, she conducts research on international research ethics, primarily focusing on the Middle East (MERETI). She holds a PhD in Bioethics from Faculty of Medicine, Uppsala University, a MSc., in Biotechnology from the American University in Cairo and is a trained Medical Doctor in Immunohematology in Egypt.
E-mail: amal.matar@crb.uu.se
Recently in the media
- Test för ärftliga sjukdomar inför graviditet väcker etiska frågor
Dagens Nyheter, 2019-04-15 - Forskaren om genetisk screening: Här är problemen
Aftonbladet, 2019-03-11 - Should we be screening future parents for genetic disorders?
Informationsdienst Wissenschaft, 2019-03-04 - Should we be screening future parents for genetic disorders?
MedicalXpress, 2019-03-01 - Should we be screening future parents for genetic disorders?
The Economic Times India, 2019-03-01
Preconception genetic screening
Amal Matar is looking at the ethical issues of preconception genetic testing and screening, taking the family’s and the individual's perspective into account.
The Human Brain Project
The Human Brain Project is one of the European Community flagship projects and involves over 100 groups. Kathinka Evers leads the philosophical research.
Technology, ethics and human rights
Genomics, Enhancement, AI & Robotics
The SIENNA project will address ethical issues in three new and emerging areas with major socio-economic impact.
Publications
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International survey on the implementation of the European and American guidelines on disorders of consciousness
Part of Journal of Neurology, 2023.
DOI for International survey on the implementation of the European and American guidelines on disorders of consciousness Download full text (pdf) of International survey on the implementation of the European and American guidelines on disorders of consciousness
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Ethical Analysis of Egypt's Law Regulating Clinical Research
Part of Journal of Empirical Research on Human Research Ethics, p. 494-503, 2022.
DOI for Ethical Analysis of Egypt's Law Regulating Clinical Research Download full text (pdf) of Ethical Analysis of Egypt's Law Regulating Clinical Research
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Matar, Amal
Considering a Baby? Responsible Screening for the Future: Ethical and social implications for implementation and use of preconception expanded carrier screening in Sweden
2019.
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Values and value conflicts in implementation and use of preconception expanded carrier screening: an expert interview study
Part of BMC Medical Ethics, 2019.
DOI for Values and value conflicts in implementation and use of preconception expanded carrier screening: an expert interview study Download full text (pdf) of Values and value conflicts in implementation and use of preconception expanded carrier screening: an expert interview study
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"A perfect society": Swedish policymakers' ethical and social views on preconception expanded carrier screening
Part of Journal of Community Genetics, p. 267-280, 2019.
DOI for "A perfect society": Swedish policymakers' ethical and social views on preconception expanded carrier screening Download full text (pdf) of "A perfect society": Swedish policymakers' ethical and social views on preconception expanded carrier screening
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Matar, Amal
Couples Considering a Baby? Screen for the Future: Ethical and Implementation Aspects of Preconception Genetic Carrier Screening
2016.
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Swedish healthcare providers' perceptions of preconception expanded carrier screening (ECS)—a qualitative study
Part of Journal of Community Genetics, p. 203-214, 2016.
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Curricular Aspects of the Fogarty Bioethics International Training Programs
Part of Journal of Empirical Research on Human Research Ethics, p. 12-23, 2014.
DOI for Curricular Aspects of the Fogarty Bioethics International Training Programs
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Perspectives of Egyptian Research Ethics Committees regarding Their Effective Functioning
Part of Journal of Empirical Research on Human Research Ethics, p. 32-44, 2013.
DOI for Perspectives of Egyptian Research Ethics Committees regarding Their Effective Functioning
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Enhancing Research Ethics Capacity in the Middle East: Experience and Challenges of a Fogarty-Sponsored Training Program
Part of Journal of Empirical Research on Human Research Ethics, p. 40-51, 2013.
Reproductive ethics and cultural sensitivity
Today’s multi-cultural society is a challenge to the health care system, especially when it comes to reproductive and sexual health. At the same time, new technology increases our reproductive choices, increasing the challenges. Find out what Amal Matar has to say about it.
