Jennifer Viberg Johansson

Jennifer Viberg Johansson

Jennifer Viberg Johansson

Associate Professor in Medical Ethics

Jennifer Viberg Johansson works as a licensed prosthetist and orthotist (orthopedic engineer) and site manager at Camp Pro Ortopedteknik in Uppsala. She has been an associated researcher with CRB since November 2023. Between 2012 and 2023, she has been employed, either fully or partially, by CRB.

In her research, she has been interested in methods used to investigate peoples stated preferences, and how to balance such preferences against other ethical values. For her PhD project, Jennifer Viberg Johansson was looking at the ethical issues concerning disclosure of incidental (or secondary) findings to participants of genetic research. Disclosure of health related information such as blood pressure, lung function, cholesterol and blood sugar is uncontroversial and common practice, but there is great debate in the biobank community on whether or not to disclose genetic risk information, and especially incidental findings.

Jennifer Viberg Johansson’s first two studies have a theoretical perspective on the arguments for and against disclosure, and whether offering participants to express their preferences would solve the issue. The second part of her thesis consists of empirical studies, where both qualitative and quantitative methods are used to capture participants’ preferences for genetic risk information. For example, using Discrete Choice Experiments to calculate participants’ trade-offs between different features of genetic risk information and to see if there are any differences between groups.

Jennifer Viberg Johansson is an associate professor in medical ethics at Uppsala University and holds a PhD in medical science from Uppsala University, and a MA in Rehabilitation Science from Mid Sweden University. She is a licensed Prosthetist and Orthotist. Before starting her PhD studies, she was teaching at Jönköping University. She has been involved in the IMI-funded BTCure project on Rheumatoid Arthritis, Mind the Risk and In 2018, she started her postdoc position in the projects Governance of health data in cyberspace and PREFER. She was also a researcher at the Institute of Future Studies in Stockholm. She was involved in a WASP-HS project about diffusion of artificial intelligence in society. 



Biobank and registry ethics & law

For many years, researchers at CRB have provided constructive advise on how to deal with ethical and legal aspects of research using human tissue material and personal data. We have collaborated with biomedical scientists and published our findings in peer reviewed journals. As a summary of this research we have compiled a list of publications with abstracts. We have grouped them thematically to help you find the ones you might be interested in reading. Our publications deal with ethical frameworks and policy, regulatory aspects of biobank and registry research, informed consent, ethical review, integrity concerns, trust, genetic testing, indicental findings, commercialization, public and patient perceptions, rare diseases, children & biobanks & genetics, and biobank studies.

Download our biobank and registry report

Biobank and registry ethics & law, report cover

Multidisciplinarity, genetic risk information and ethics

Genetic risk is complex and difficult to understand. People react differently to genetic risk information. Some want to know everything; others don’t want to know at all. Jennifer Viberg is working to find out what people who participate in biobank research actually want researchers to do with potential secondary findings about participant’s genetic risk for different conditions.

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Jennifer Viberg
Last modified: 2023-11-23