Emilia Niemiec

Emilia Niemic, Postcdoc researcher: Photo: Marc Folland. (c) Wellcome Trust Sanger Institute

Emilia Niemiec

Postdoc researcher

Emilia Niemiec investigates ethical, legal and social implications of genomics. She is a post-doc at the Centre for Research Ethics & Bioethics. During her PhD (Erasmus Plus PhD Programme in Law, Science and Technology) she studied ethical and legal issues of whole genome sequencing. She conducted the first empirical study of direct-to-consumer offer of whole genome sequencing. Emilia holds degrees in Bioethics (MSc, University of Leuven) and Biotechnology (MEng, Warsaw University of Life Sciences).

E-mail: emilia.niemiec@crb.uu.se

Recent publications

  • Phillips, Amicia; Niemiec, Emilia; Howard, Heidi Carmen; Kagkelari, Kalliopi et al.

    Communicating genetic information to family members analysis of consent forms for diagnostic genomic sequencing.

    Part of European Journal of Human Genetics, 2020.

  • Niemiec, Emilia; Howard, Heidi Carmen

    Ethical issues related to research on genome editing in human embryos

    Part of Computational and Structural Biotechnology Journal, p. 887-896, 2020.

    Open access
  • Niemiec, Emilia; Howard, Heidi Carmen

    "Genethics" and Public Health Genomics

    Part of Applied Genomics and Public Health, p. 243-257, 2020.

  • Niemiec, Emilia; Howard, Heidi Carmen

    Germline Genome Editing Research: What Are Gamete Donors (Not) Informed About in Consent Forms?

    Part of The CRISPR Journal, p. 52-63, 2020.

    Open access
  • Middleton, Anna; Milne, Richard; Almarri, Mohamed A; Anwer, Shamim et al.

    Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

    Part of American Journal of Human Genetics, 2020.

  • Middleton, Anna; Milne, Richard; Howard, Heidi; Niemiec, Emilia et al.

    Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data

    Part of European Journal of Human Genetics, p. 424-434, 2020.

    Open access
  • Raz, Aviad E.; Niemiec, Emilia; Howard, Heidi Carmen; Sterckx, Sigrid et al.

    Transparency, consent and trust in the use of customers' data by an online genetic testing company: an Exploratory survey among 23andMe users

    Part of New genetics and society (Print), 2020.

  • Voigt, Torsten H; Holtz, Verena; Niemiec, Emilia; Howard, Heidi Carmen et al.

    Willingness to donate genomic and other medical data: results from Germany

    Part of European Journal of Human Genetics, 2020.

    Open access
  • Middleton, Anna; Milne, Richard; Thorogood, Adrian; Kleiderman, Erika et al.

    Attitudes of publics who are unwilling to donate DNA data for research.

    Part of European Journal of Medical Genetics, p. 316-323, 2019.

    Open access
  • Niemiec, Emilia; Howard, Heidi Carmen

    Consenting Patients to Genome Sequencing

    Part of Clinical Genome Sequencing: Psychological Considerations, 2019.