Santa Slokenberga
Santa Slokenberga
Santa Slokenberga
LLD, Researcher
Santa Slokenberga received her LLD in medical law in November 2016. Her research focuses on the coexistence of the EU and Council of Europe in regulating health-related direct-to-consumer genetic testing. In addition, she has been teaching in the fields of EU law and medical law and since 2011, she is lecturing in several medical law related subjects at Riga Stradins University (Latvia) for both undergraduate and graduate students, including supervision. Since 2014, Santa Slokenberga teaches the summer school course “Comparative human rights in healthcare” at Yale University. Prior to starting her doctoral studies, Santa Slokenberga worked as a legal advisor for Deloitte Latvia.
E-mail: santa.slokenberga@crb.uu.se
Biobanks and registries in research
We aim for a biobank and registry management that satisfies ethical and legal demands from the research community, the public and the individual.
B3Africa
B3Africa will harmonise ethical and legal frameworks between European and African partner institution and provide an informatics solution for data management, processing and sharing that works with limited Internet access.
Technology, ethics and human rights
Genomics, Enhancement, AI & Robotics
The SIENNA project will address ethical issues in three new and emerging areas with major socio-economic impact.
Recently in the media
- Transferring biobank research data between the EU and African countries
BBMRI-ERIC Newsflash & web, 2018-09-18 - Överföring av personinformation mellan EU och länder i Afrika
BiobankSverige.se, 2018-08-28
Publications
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GDPR and Biobanking: Individual Rights, Public Interest and Research Regulation across Europe
2021.
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Setting the Foundations: Individual Rights, Public Interest, Scientific Research and Biobanking
Part of GDPR and Biobanking, p. 11-30, 2021.
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The standard of care and implications for paediatric decision-making: the Swedish viewpoint
Part of Routledge Handbook of Global Health Rights, 2021.
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You can’t put the genie back in the bottle: on the legal and conceptual understanding of genetic privacy in the era of personal data protection in europe
Part of BioLaw Journal, p. 223-250, 2021.
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You can't put the genie back in the bottle: On the legal and conceptual understanding of genetic privacy in the era of personal data protection in Europe
Part of BIOLAW JOURNAL-RIVISTA DI BIODIRITTO, p. 223-250, 2021.
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Biobanking and data transfer between the EU and Cape Verde, Mauritius, Morocco, Senegal, and Tunisia: adequacy considerations and Convention 108
Part of International Data Privacy Law, p. 132-145, 2020.
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D5.6: Recommendations for the enhancement of the existing legal frameworks for genomics, human enhancement, and AI and robotics
2020.
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Genetiska interventioner inom och utanför hälso- och sjukvården
Part of Medicinsk rätt, p. 185-200, 2020.
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