Ulrik Kihlbom
Ulrik Kihlbom
Associate Professor of Medical Ethics
Senior Lecturer in Medical Ethics
Ulrik Kihlbom is is associate professor and senior lecturer in medical ethics at the Centre for Research Ethics & Bioethics. He works mainly on bioethical issues related to patients’ perspective and decision-making, methodology and ethical particularism. He is currently work package lead in the three year project MEET-AML, as well as in the five-year project looking at how and when to include patient preferences in the life cycle of medical products (PREFER). He lectures at various courses at the Medical school as well as for an advanced level course on public health ethics. He is also member of the Scientific Advisory Committee for the Swedish Agency for Health Technology Assessment and Assessment of Social Services (SBU) and in the ethics committee for the European research infrastructure for Personalised Medicine EATRIS PLUS.
E-mail: Ulrik.Kihlbom@crb.uu.se
Phone: +46 18 471 6233
Teaching
- Medical doctor's programme
- Ethics and public health (7,5 credits, advanced level)
PhD supervision
- Karin Schölin Bywall: The value of patient preferences in drug development for rheumatoid arthritis (main supervisor)
- Ashkan Atry: Is Fair Play Compatible with Doping in Sport?, PhD 2013 (main supervisor)
- Tove Godskesen: Factors associated with participation in phase1 and phase 3 oncology trials, PhD 2015 (main supervisor)
- Elin Inge Lampa: Optimising the involvement of vulnerable populations in health research (co-supervisor)
Recently in the media
- Study explores patient preferences in second-line RA treatment
AJMC, 2021-01-23 - Ansvar bör även läggas på forskningsledaren, Svenska Dagbladet Debatt, 16 March 2016
- Efter skandalen: ”Gråzoner sätt blanda bort korten”, Svenska Dagbladet Debatt, 10 March 2016
Managing genetic risk information
Research generates huge amounts of genetic information. How should we handle it? That is what we are trying to find out in a large international research project.
Patient preferences
Giving patients a voice in drug development
PREFER is a five year public-private research project where academic researchers and the pharmaceutical industry work together to find out when and where patients want, can and should be involved in drug development
Particularism in bioethics
Research network
This network brings together theorists and practitioners from Philosophy, Psychology and Health Care.
Family Ethics
We are part of an international network on ethics of families.
Patient prefrences
Rheumatoid Arthritis
Karin Schölin Bywall will look at how rheumatoid arthritis patient preferences can provide added value in regulatory decision making in the drug development process.
Ethics & law for medical students
Students learn to analyze ethical and legal problems in medical practice and argue for their standpoint.
Public Health Ethics
Learn more about public health ethics! We offer a 7,5 credit course to advanced level students. You need to speak Swedish.
Recent publications
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Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations
Part of Arthritis Research & Therapy, 2022.
DOI for Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations Download full text (pdf) of Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations
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Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research
Part of International Journal of Qualitative Studies on Health and Well-being, 2022.
DOI for Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research Download full text (pdf) of Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research
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Does being exposed to an educational tool influence patient preferences?: The influence of an educational tool on patient preferences assessed by a discrete choice experiment
Part of Patient Education and Counseling, p. 2577-2585, 2021.
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Does being exposed to an educational tool influence patient preferences? The influence of an educational tool on patient preferences assessed by a discrete choice experiment.
Part of Patient Education and Counseling, p. 2577-2585, 2021.
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Swedish large-scale schizophrenia study: Why do patients and healthy controls participate?
Part of Schizophrenia Research, p. 360-366, 2021.
DOI for Swedish large-scale schizophrenia study: Why do patients and healthy controls participate? Download full text (pdf) of Swedish large-scale schizophrenia study: Why do patients and healthy controls participate?
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Taking into Account Patient Preferences: A Consensus Study on the Assessment of Psychological Dimensions Within Patient Preference Studies
Part of Patient Preference and Adherence, p. 1331-1345, 2021.
DOI for Taking into Account Patient Preferences: A Consensus Study on the Assessment of Psychological Dimensions Within Patient Preference Studies Download full text (pdf) of Taking into Account Patient Preferences: A Consensus Study on the Assessment of Psychological Dimensions Within Patient Preference Studies
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Treatment preferences for preventive interventions for rheumatoid arthritis: protocol of a mixed methods case study for the Innovative Medicines Initiative PREFER project
Part of BMJ Open, 2021.
DOI for Treatment preferences for preventive interventions for rheumatoid arthritis: protocol of a mixed methods case study for the Innovative Medicines Initiative PREFER project Download full text (pdf) of Treatment preferences for preventive interventions for rheumatoid arthritis: protocol of a mixed methods case study for the Innovative Medicines Initiative PREFER project
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An Ethics Framework for Making Resource Allocation Decisions Within Clinical Care: Responding to COVID-19
Part of Journal of Bioethical Inquiry, p. 749-755, 2020.
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Patient preferences on rheumatoid arthritis second-line treatment: a discrete choice experiment of Swedish patients
Part of Arthritis Research & Therapy, 2020.
DOI for Patient preferences on rheumatoid arthritis second-line treatment: a discrete choice experiment of Swedish patients Download full text (pdf) of Patient preferences on rheumatoid arthritis second-line treatment: a discrete choice experiment of Swedish patients
Medical ethics, decision-making and patient preferences
Health care and drug development raises several philosophical questions that require practical solutions: How can patients become informed enough to answer questions in a way that is meaningful? How do we make genetic risk information understandable and meaningful? Here, Ulrik Kihlbom reflects on what happens at the intersection of philosophy and empirical work.
