Public-private partnerships workshop
In recent years, universities have done a lot of work to promote research partnerships with industry. Medical schools are encouraging their research faculties to pursue entrepreneurial strategies (start ups) to start companies and partnerships with industry. Together with RD-Connect and CHIPme, we invite you to discuss these issues in a two day workshop looking at current practices for public private collaborations and especially initiatives on rare diseases.
When: November 7-8 2016.
the Ethics Blog
How to listen to (the right) patient voices?
Source: Ulrik Kihlbom 2016-10-25
Did medicine save the life of ethics?
Source: Pär Segerdahl 2016-10-18
Public health campaigns in healthcare: mothers should breastfeed!
Source: Pär Segerdahl 2016-10-03
More biobank perspectives
Source: Josepine Fernow 2016-09-27
Physicians’ experiences of do-not-resuscitate orders
Source: Pär Segerdahl 2016-09-21
We look for a PhD student
Source: Pär Segerdahl 2016-08-30
Identifying individuals while protecting privacy
Source: Pär Segerdahl 2016-08-24
Intending a philosophical system as the truth of life
Source: Pär Segerdahl 2016-08-15
Genetic screening before pregnancy?
Source: Pär Segerdahl 2016-06-20
Research ethics is not only protection ethics
Source: Pär Segerdahl 2016-06-06
News from CRB
- Giving patients a voice in drug development 2016-10-18
- Parent’s views on genetic screening before pregnancy 2016-10-17
- We need to discuss equity in health care 2016-10-04
- Managing data protection in practice – Swedish perspectives 2016-09-26
- Public-private research partnerships: Workshop 2016-09-23
- Informed consent guidelines listed among IRDiRC Recognized Resources 2016-09-22
- ELSI Helpdesk: What does it do? 2016-09-22
- Data Protection Regulation: final result 2016-06-20
- Risk of re-identification vs the need to identify individuals 2016-06-14
- Preconception genetic screening: What health care professionals think 2016-05-31
- It is your DNA, you should have a say 2016-05-27
- Age, education and health literacy affects understanding of risk 2016-05-19
- New book on direct brain communication 2016-05-13
- Feedback of individual genetic results in Europe still not feasible 2016-05-09
- Call for ELSI experts 2016-05-04
- Help to choose good bioethics journals 2016-04-19
- EU-US Privacy Shield to once again ensure safe harbours for data transfers 2016-03-15
- Effective consent for effective research 2016-03-14
- Direct-to-consumer genetic testing companies lack clear consent processes for biobanking and research 2016-03-14
- Debate: Macchiarini scandal - speech of grey-zone lacks foundation 2016-03-10
Want to talk about antibiotics resistance?
We are looking for participants for a focus group discussion in Uppsala on September 28, October 5, 12 and 19 between 6-8 PM. Participants will receive a gift certificate for 250 SEK to compensate their time and travel.
What's on at CRB
- How to make "global bioethics" global?
- Workshop on ethically sustainable partnership between industry and public funded research initiatives: PPP and rare diseases as a case study
- Experiments to help people behave more healthily: theory, practice and ethical considerations
- A qualitative study of public attitudes to antibiotics
- Medicine at the borders of life: Presentation of a research programme
Giving patients a voice in drug development
PREFER is a five year public-private research project where academic researchers and the pharmaceutical industry work together to find out when and where patients want, can and should be involved in drug development
Your DNA Your SAy
>> Tell us what you think
This is a film-survey experience on DNA and medical data sharing.
Meet a Researcher
>> Heidi C. Howard
Find out what Heidi C. Howard has to say about the ethics of genetic risk information.
Meet a PhD Student
>> Mirko Ancillotti
Find out what Mirko Ancillotti has to say about synthetic biology, ethics and antibiotics.
Meet a postdoc
>> Jorien Veldwijk
Find out what Jorien Veldwijk has to say about people's willingness, perceptions and public health.