Save the date: Epigenetics as the meeting point between nature and nurture
We welcome you to a multidisciplinary workshop on Epigenetics to explore the potential for multidisciplinary research initiatives
Sessions on the early development phase, nutrition, pharmacology, mental disorders and the social contexts
When: 19-20 March 2015, Uppsala, Sweden.
Where: Uppsala University main building
Confirmed speakers include: Marco Boks, Eero Castren Jean-Pierre Changeux, Mats G. Hansson, Eva Jablonka, Juha Kere, Christopher Murgatroyd, Helen Neville, Gísli Pálsson, Bart Rutten, Dietmar Spengler and Denny Vågerö
Difficult to choose criteria for screening before pregnancy
[2014-06-17] Are you afraid of passing a genetic condition to your potential future children? Couples who plan pregnancy can use something called preconceptional genetic carrier screening to learn if they are both carriers of a recessive inherited disease. But how can this difficult decision be made? A recent article by Julia Inthorn examines how fuzzy logic can help to think about the criteria used for screening.
The idea behind medical screening programmes is almost always early treatment and prevention. But how early can you prevent? And what is ethically justified for couples to test for? In a recent article in Archives for the Philosophy and History of Soft Computing, Julia Inthorn looks at the criteria used for preconception genetic carrier screening like the severity of the disease, the efficiency of the test and how applicable it is for newly developed genetic carrier screening.
But the ethical decisions are not that easy to make. Tests for recessive genetic conditions do not provide simple binary yes and no answers how to deal with a test result. There is knowledge missing regarding the relationship between genotype and phenotype. The development of new genetic screening methods and the selection of tests and diseases has to deal with lots of uncertainty.
According to Julia Inthorn, introducing what is known as 'fuzzy logic' could help ethical decision making. Fuzzy logic can take many values into account. It can also deal with reasoning that is approximate. Much like the recessive diseases preconception genetic screening deals with.
Research for the patient and the professional
[2014-06-13] The relationship between the patient and the health care professionals is one of the themes we have explored at CRB. To help you find out more about our research in nursing ethics and the ethics of care we have put a report together.
We have explored nursing ethics and ethics of care from different angles. A couple of dissertations have already been defended. Current PhD and Postdoc projects deal with everything from no not resuscitate orders, ethical competence for health care staff to telenursing and clinical trials.
If you want some reading for the summer, we suggest you download this pdf with abstracts of our publications and links to articles that are available electronically.
Nurses want clear 'do not resuscitate' orders
[2014-06-12] For some patients, there comes a point when it is time to decide what to do if the heart decides to stop. If the prognosis is very poor, doctor's sometimes write a 'do not rescuscitate' order, but they are not the only one's involved in the patient's care.
In a study that was recently published in Nursing Ethics, Mona Pettersson has interviewed 15 nurses from hematology and oncology wards in Sweden to find out how they experience no not resuscitate orders.
According to Mona Pettersson, nurses need clear and well documented orders. Patients and relatives need to be well informed an included in the decisions. But the nurse is not the only one involved in care. There is also a need for regular ethical discussions within the medical team to make sure nurses and doctors understand each others' opinions.
Read article in Nursing Ethics: Striving for good nursing care: Nurses' experiences of do not resuscitate orders within oncology and hematology care
ETHICS BLOG: Summer, sweet summer!
[2014-06-17] Summer is here! The sun is sometimes shining. There is the occasional rain. And very once in a while there is something new on the Ethics Blog.
This summer we will start a new blog project: turning digital into print.The blog will become book and at the end of the year you will be able to read a selection of texts on paper.