We investigate the ethical, philosophical and legal aspects of biomedical research and clinical practice and publish the results of our research in international peer-reviewed scientific journals and in books.
CRB is a multi-disciplinary research environment and our research topics originate from close collaborations with clinicians, researchers and scientists outside the centre. We work with clinical ethics, with a special focus on nursing ethics and the ethics of care. We are also involved in research ethics, where we have been working with the ethical and legal issues of biobank and registry research for over a decade and more recently started looking at how we should handle risk information. We are also working on other types of bioethics research, especially neuroethics and neurophilosophy, where we are developing a 'fundamental' neuroethics.
Publications from CRB
- Proactive epigenesis and ethical innovation. 2016
- The risk of re-identification versus the need to identify individuals in rare disease research. 2016
- Alternative Rule-Making within European Bioethics - Necessary and Therefore Legitimate?. 2016
- Let the Individuals Directly Concerned Decide: A Solution to Tragic Choices in Genetic Risk Information. 2016
- Big Science, Brain Simulation and Neuroethics. 2016
- Neurotechnological assessment of consciousness disorders: five ethical imperatives. 2016
- Proactive epigenesis and ethical innovation: A neuronal hypothesis for the genesis of ethical rules. 2016
- The contribution of neuroethics to international brain research initiatives. 2016
- Valuing Child Health Utility 9D Health States with Young Adults: Insights from a Time Trade Off Study. 2015
- Children with cancer share their views: tell the truth but leave room for hope. 2016
- Impact of telephone nursing education program for equity in health. 2016
- Perceptions of risk and predictive testing held by the first-degree relatives of patients with rheumatoid arthritis in England, Austria and Germany: a qualitative study. 2016
- Physicians’ experiences of do-not-resuscitate (DNR) orders in hematology and oncology care – a qualitative study. 2016
- Bereaved Siblings' Advice to Health Care Professionals Working With Children With Cancer and Their Families. 2016
- Challenges and opportunities for ELSI early career researchers. 2016
- Responsible implementation of expanded carrier screening. 2016
- The Differential Earnings and Income Effects of Involuntary Job Loss on Workers with Disabilities: Evidence from Sweden. 2016
- Developing ethical competence in healthcare management. 2016
- Higher cardiogenic potential of iPSCs derived from cardiac versus skin stromal cells.. 2016
- 'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research.. 2016
- Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?. 2016
- Improving the informed consent process in international collaborative rare disease research: effective consent for effective research. 2016
- Swedish healthcare providers' perceptions of preconception expanded carrier screening (ECS)—a qualitative study. 2016
- Exploring how individuals complete the choice tasks in a discrete choice experiment: an interview study. 2016
- Ethical issues in consumer genome sequencing: Use of consumers' samples and data. 2016
- Codici, linee guida e commentari di etica della ricerca: la questione della qualità. 2014
- An Update of Public Perceptions of Synthetic Biology: Still Undecided?. 2016
- Design and Implementation of the advanced cloud privacy threat modeling. 2016
- Parenthood and the Gender Gap in Pay. 2016
- Nothing About Us Without Us?: A Comparison of Adolescent and Adult Health-State Values for the Child Health Utility-9D Using Profile Case Best-Worst Scaling. 2016
Biobanks and registries in research
We aim for a biobank and registry management that satisfies ethical and legal demands from the research community, the public and the individual.
We are investigating risk information from serval perspectives.
the Ethics Blog
Two researchers in neuroethics
Source: Pär Segerdahl 2016-12-05
The apparent academy
Source: Pär Segerdahl 2016-11-29
The brain develops in interaction with culture
Source: Pär Segerdahl 2016-11-16
What is the risk?
Source: Pär Segerdahl 2016-11-02
How to listen to (the right) patient voices?
Source: Ulrik Kihlbom 2016-10-25
Did medicine save the life of ethics?
Source: Pär Segerdahl 2016-10-18
Public health campaigns in healthcare: mothers should breastfeed!
Source: Pär Segerdahl 2016-10-03
More biobank perspectives
Source: Josepine Fernow 2016-09-27
Physicians’ experiences of do-not-resuscitate orders
Source: Pär Segerdahl 2016-09-21
We look for a PhD student
Source: Pär Segerdahl 2016-08-30
Caring for patients
Nurses encounter ethical dilemmas in their daily work. But there are also moral dimensions to nursing practice.
Neuroethics & Neurophilsophy
Any attempt at understanding how the mind and the brain work comes with a set of philosophical, ethical and social issues.
Neurotechnology and direct brain communication
Welcome to a mini-symposium that will discuss new insights and responsibilities concerning speechless but communicative subjects.
Both infant brains and patients with disorders of consciousness (DOC) are at the forefront of contemporary neuroscience. The prospective use of neurotechnology to access mental states in these subjects, including neuroimaging, brain simulation, and brain computer interfaces, offers new opportunities for clinicians and researchers, but has also received specific attention from philosophical, scientific, ethical, and legal points of view.
When: October 6, 2016, 13-17
Where: BMC, Husargatan 3, Uppsala, room A1:111a