Josepine Fernow has worked with research dissemination and communication for fifteen years. She co-ordinates activities and manages CRB’s external and internal communications. She is also one of the editors of Biobank Perspectives, our newsletter on current issues in biobank ethics and law. Josepine Fernow is also communications manager and academic co-lead of the management work package in the IMI-funded PREFER project.
Josepine Fernow holds a BA in Cultural Anthropology and Sociology, and has studied biomedical ethics, marketing and communications. She has organized several international multi-disciplinary conferences and was responsible for the first BBMRI HandsOn: Biobanks (an annual conference arranged by national BBMRI-nodes) in 2012 where she developed an interactive session where researchers and industry together help participants follow the route biobank samples take: from consent and collection through storage and analysis to outcomes in terms of ethics and trust, health economy, drug development, clinical practice.
Phone: +46 18 471 62 22
Giving patients a voice in drug development
PREFER is a five year public-private research project where academic researchers and the pharmaceutical industry work together to find out when and where patients want, can and should be involved in drug development
Managing genetic risk information
Research generates huge amounts of genetic information. How should we handle it? That is what we are trying to find out in a large international research project.
Rare disease research
RD-Connect is a 7th framework project that aims to build an integrated platform connecting registries, biobanks and clinical bioinformatics for rare disease research. We address the ethical, legal and social issues (ELSI).
Arthritis risk communication
Euro-TEAM is a 7th framework programme aiming towards early diagnosis and biomarker validation in arthritis management. We are working with risk communication.
Arthritis: Early treatment
The development of new therapeutic agents against Rheumatoid arthritis (RA) and RA-like diseases requires a dynamic interaction between studies in humans and in animal models of disease.
Helping Europeans get healthier
BBMRI-LPC is building a network to connect established large-scale biobanks to new European biobank initiatives for large prospective cohort studies (LPC). We are involved in ethical and legal issues of transnational access to samples and data.
Josepine Fernow on the Ethics Blog
Research data, health cyberspace and direct-to-consumer genetic testing
Source: Josepine Fernow 2016-12-14
More biobank perspectives
Source: Josepine Fernow 2016-09-27
Learning ethics online
Source: Josepine Fernow 2014-11-26
ELSI-Service for BBMRI.se
We run the ELSI-Services for BBMRI.se (BioBanking and Molecular Resource Infrastructure of Sweden): a national effort for efficient and automated collection of biological material funded by the Swedish Research Council.